Kicking Mirtazapine and Insomnia to the curb

Posted , 7 users are following.

Male

Age : 39

Time on Mirt: 10 months April '17 til Feb '18

Time off Mirt: 7 MONTHS! And counting

Dosage: 30 mg most of the time, then 45 for one month, back to 30 for a while and then progressively less until nothing.

Reason for going on Mirt: Sudden onset of insomnia and anxiety/ depression due to failed business project

Feel better now?: Hell yeah

Previous medication: 1 year on Citalopram in 2012

Disclaimer: I could sleep fine before I had a sudden onset of Insomnia that wouldn't shift. I was put on Mirtazapine only so there were no side effects from other meds. Once off Mirt, exercise, meditating 10 mins a day, Vitamin D tablets and believing there was a hopeful future for me was instrumental to getting me feeling as good as I do now. There are still down periods but not for long as the brain gets used to thinking proactively and I can bounce back. Now read on:

I am writing this to help Mirtazapine users who want to get off it. I immediately felt increased anxiety and dread when starting Mirt, comparable to nothing I'd ever felt before. There was not enough caution from my Doctor in recommending it to me for my insomnia and anxiety symptoms. It was like using a sledgehammer to kill an ant . In a 'funny' coincidence the same doctor recommended it to a female work colleague of mine, who then had a panic attack at work and immediately got off it. She told me about it in confidence when we were talking about antidepressants one day. Another person I know felt like driving into oncoming traffic once on Mirt.  It made me realise I wasn’t the only one who felt so bad on it. My experience was 3 weeks of extreme unease followed by 2 weeks of calm x the whole time I was on it. The doctor's answer to my worry over Mirt's roller coaster effects was to bump up the dose. This didn't work. My answer to this was to change to a kinder doctor who listened and didn't discourage my efforts to get off it. On the bad stretches there was churning stomach action most of the time, diarrhoea, weight loss, paranoia, feeling of the world moving too fast, worthlessness, no self esteem, suicidal ideation, low level tinnitus after starting Mirt (and I still have it now), fear and dread of getting through work another day, weird envy and inferiority issues,and social anxiety that cut me off from my friends. ( Some 'friends' are not helpful because they put pressure on you to explain yourself in the guise of being a do-gooder. In my desperate state I didn't have the capability to assert myself and tell them to give me space. ) Facebook was a minefield with its inferior comparisons with other people's lives. Memory and concentration were shot and I was certain I'd never get them back. I would describe myself as a sad, scared zombie who couldn't cope with day to day life. So why stay on this crap?  Well It was the only thing helping me sleep- what if I stopped it, I would be screwed? Secondly It was often said in the forums that Mirt was harder to get off than crack, i.e practically impossible and would take multiple years.This was a supposed fact I accepted. Don't believe it. We are stronger than we know. I took me 4 months not years and I was on 30 mg. Maybe this is too fast for most people but you have to push yourself. So how to get off? According to the forums it was a pretty convoluted process with dilutions of liquid Mirt being mentioned and sometimes scales. Well all I used was my trusty Equadose pill cutter.

I used the marks on the pill as a reference where to cut each day.The first month I cut off microscopic amounts with the thought I was committing to years of pill cutting. This gave me some bad side effects, though similar to my normal bad days on it. I read someones post on this forum saying don’t waste years of your life - try to get off it quicker. I was angry at how bad Mirt made me feel and thought ‘to hell with it’ so that is what I did. Cut more off. I had nothing to lose. It just sped up the roller coaster so instead of such long stretches feeling like crap, they passed quicker. Wow you'd feel it if the cut was slightly too big. Man it was a tedious exercise. I had crappy oblong pills so the cutting wasn't extremely accurate -it wasn’t easy. But that's all I could do. When I finally got down to small enough amounts I'd order the next dose down from my understanding doc. 30 mg was the smallest dose of Mirt I could buy here so there was lots of cutting ahead of me. My doc said do I want some Quitiepine to help calm me down while reducing Mirt? Um no thanks Doc. One addiction is quite enough for me at the mo.  I have never spent so much on Doctors bills than during this time. Anyway back to cutting.. I ended up with a pile of little cut off pill ends, but hey it has to be done. Getting off this s*** was worth the inconvenience. I was sure I'd end up in a psych ward or dead well before getting off this garbage. But trusting that Mirt was causing me pain and not wanting to permanently feel like a vegetable spurred me on.

As for the insomnia (which started basically overnight after I had bad news about my business. 2-3 hours of broken sleep a night feeling the minutes crawl by or 5 hours on a good night) I first went through 3 doctors who gave me assorted sleeping pills: Phenergan, Melatonin, Zopiclones. Not good long term solutions. My lack of sleep gave me paranoia and anxiety so in desperation I tried Mirtazapine. Immediately I felt the dread but it gave me hours more sleep- in the good stretches that is. Fast forward until I took the step to get off Mirt. They have a sleep clinic at my health centre which I first thought was a joke but actually probably saved me.There I wrote down my (lack of) sleeping patterns and here is what they suggested that helped me to sleep: blackout curtains, earplugs, eye mask, no tea/coffee only chamomile tea with milk,no screens past 7pm, blue light filter on phone, blue light blocking glasses, sleep hygiene, Melatonin tablets, 150 mg magnesium tablets before bed, also cheese and / or drinking chocolate made with hot milk before bed for the tryptophan which keeps you asleep for longer. In no way did this work suddenly. It's only a gradual process where you need a higher faith that it will all work out. sometimes you can't see improvements at all, but as sure as day follows night they will come. Its good to keep a diary saying how many hours sleep you had, how your mood is on a scale of 10 and trigger issues/thoughts that may be affecting your mood. Then you have concrete proof you are improving over time or not. Gradually your sick days from work get less and less. I am forgetting the single biggest thing to help give you peace and make you relax: a belief in a better future for yourself. So try counselling, make plans to get out of any rut and brainstorm like crazy in your good times. The past is the past so make a new future for yourself now.

When I needed hope I wanted to know how long had people been off Mirt (but couldn't find many examples) and what are their experiences once off it- never more than a few months off and usually they were not having a great time. So I hope this convinces someone there is hope eventually. Thanks

 

3 likes, 11 replies

11 Replies

  • Posted

    Hi Dan

    Congratulations in getting off of Mirt.  Thanks for giving such a good amount  of  how you did it. I'm sure that your story will prove an inspiration to many who are trying yo get off this drug.

    Best Wishes

    Kim

  • Posted

    A very well expressed personal experience worth many congrats. Hope you achieve your set goals in life. I am in debate with myself to come off 15mg Mirt. taking for a year now for a chronic panic disorder that never responded to many SSRIs or TCAs. So I can see a difficult but not impossible BATTLE ahead.

    BW

    akhan1414

    • Posted

      Thank you very much Akhan. I wish you all the strength to get off Mirt if that is your decision. Take care mate
  • Posted

    Congratulations Dan

    You have given eloquent testimony to the dangers of Mirt, the difficulties in coming of it and the terrific feeling of freedom and accomplishment in being clean.

    Best Wishes

    Kim

    • Posted

      Thanks for your kind words Kim. There was a lot of info to cover but I didn't want to miss anything. Good luck to you.

       

  • Edited

    Hi Dan

    Thank you for this post.

    I have had a similar experience, and a similar approach to recovering from this drug. I tried once to come off, but the second time I feel I was really ready, and I basically had a 'f**k this' attitute and like you said to myself, I am stronger than I think. That was the key I believe. Don't listen to anyone else. Don't even talk about it with anyone because no one really understands who hasn't been through it, including those 'professionals' who prescribed it to us in the first place. In fact I have trouble describing it to people and it consumes too much of my energy to do so, so I don't.

    I am still getting daily chemical imbalances which cause numerous feelings/emotions, but having that steely determination that I am on top of this keeps me positive.

    So thanks again, and good to read from someone who is not being swayed by this opinion and that!

    All the best in your continual improvement.

    deebee

    • Edited

      Thank you very much Deebee,

      Yes, that is completely true that we have reserves of strength that seldom get tapped but once they do, all preconceived ideas of what we are capable of doing are just blown out of the water. I have been off Mirt for nearly a year now and from this perspective can see it was totally wrong for me, was pulling me down to depths never before experienced and constantly had me questioning my sanity. A doctor that didn't think there was anything wrong with Mirt as well as reading all those posts that said it will take literally years to get off added to the sense of hopelessness. But fast foward to now when after all this time it has finally left my system and I can say that the freedom of triumphing over this s**t is magnificent. Such is the mind bending power of Mirt, now I can barely remember the suffocating feeling of despair I felt most days as well as the guilt that I was dragging my family down with me. But that was the old me - now meditation and exercise have worked miracles and pushed me to go for anything because life is too short. Im happier and more relaxed than I ever was even previous to Mirt. Maybe that is its 'gift'. May you get to this point too. Look foward to hearing about it when you do!

  • Edited

    Thank you so much for sharing your positive story! there are enough horror stories on the net. we need more positivity.

    I took Mirt from Dec 2019-Nov2020 and have been going through withdrawals since Dec - anxiety, insomnia, depression (all of these I NEVER had before I was put on the drug! But my most troubling symptom was burning feeling all over my body!! I am working with a functional MD and am taking vitamins and supplements - Niacin, Taurine, Theanine, Tryptophan and HOly Basil and they are helping me tremendously! sounds like a lot but at the beginning it was so bad I had suicidal idealization and I needed these vitamins to rebuild my system. also taking multivit 2x a day, 3000mg vit c, vit d, fish oil, bioidential progesterone and DHEA (my hormones are out of whack) when we are in withdrawal, the adrenals can sometimes overcompensate cortisol production and lower sex hormones production, which is what happened in my case. doing meditation, daily 30min walk with 20min grounding and yoga 2x a day (am and pm) i am feeling so much better and hopeful this will be over soon.

    • Edited

      Dear Jen

      Thanks for reading my post. That was 2 years ago and i needed to be reminded of what hell i was in back then. It sounds like you are well on your way. Mirt obviously seems to affect people in different ways. Logically looking at it now I can see if I never had the insomnia and suicidal ideation before (and for you the burning feeling) then the drug is the culprit. My cortisol level at the time felt very high with all the anxious fretting, usually about feeling anxious, so its a vicious cycle. So to continue down the path to remove it from your life and to believe in your eventual return to full health requires a heroic amount of faith when it seems like no progress is being made. But it will happen for you just as it did for me. Time works its magic and the effects lessen (despite reading the horror stories which say it will stay with you forever). You will do it!

  • Posted

    Thanks Dan. Very helpful post. I'm about to start tapering using the10% method and advice i find on the Surviving Antidepressants website which is linked to in resources for else anyone reading this*

    Like you i experienced a crisis that triggered massive anxiety and insomnia. During lockdown i had become very isolated and on top of my chronic illness (me/cfs) my cat went missing...cue meltdown and i moved in to stay with my mother for two months, at point when my cat turned up starving and very thin. After tinkering with short acting ad hoc medications and herbal remedies, i opted for Mirtazapine. It has helped with minimal side effects. I think a low grade back ground headache is probably the drug. I was seeing a counsellor anyway pre-lockdown and i increased the frequency of my sessions to support me during this time of acute distress. As my anxiety was mostly situational I've been able to address issues successfully that were amplifying the stress. Also, thanks to the pressure that triggered emotional flashbacks to early life trauma...i found myself breaking from those and my anxiety just dropped. I am now more aware of a drugged feeling and i want off the drug.

    *Emis moderators have posted link to Surviving Antidepressants website on using the 10% tapering last dose method (not original dose) it's the fourth link on list if you click here:

    https://patient.info/forums/discuss/depression-resources-298570

    Reducing ADs using 10% withdrawal method

    • Posted

      Thanks for sharing your story Angelfish. Its scary how the insomnia can start suddenly, then that makes anxiety worse too. Very good to taper off Mirt very slowly as you are doing. I had a pill cutter which wasnt very accurate, I was just judging by eye how much to cut off. It was an oval or ellipse shaped tablet just to add more stress haha but made the best of it (despite feeling scared that without Mirt Id never sleep again and would be back to square one.) But at the sleep clinic had melotonin, blue light blocking glasses, magnesium tablets to help the transition to regain the sleeping habit. Hope your withdrawls aren't bad and you beat the headaches. It will be worth it.

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