L.p. everywhere!!

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my eyes, my ears, my esphogus, my mouth, gums ,tongue, my legs, feet, head/scalp, my nasal cavity, and my Vagina.

How does one work all of these issues, I'm exhausted , tired, weak, I use sprays, ointment creams,eye drops, ear drops, probiotics, Vit D, pills, more pills, 2 types of insulin for diabetes 4 times a day, C-pap....and the list goes on...and on...where does one start??, was at mayo for 2 years, Froedter Hosp Milwaukee over a year, now have Appt new Spec of L.P. Seem at Northwestern, Chicago Late Feb. Can't wait.... some say no milk/dairy, what actually are we trying to avoid in the dairy? some suggest no diet products that have sweetners?? Once again what are we trying to avoid? Does anyone know if there is a book out there for LP/OLP diets, the dos and donts to avoid flare ups?? I feel like I'm drowning with no way to surface, I've noticed many comments from the UK, they seem to have Doctors that are more learned with Lichen Planus than our stateside Physicans, why is this?

Things I have had to give up are tomato based sauces, ketchup, bbq, spice if any kind, Chinese, Korean, even egg rolls, tacos, my favorite tomatoes, eating out ff there is no way and restaurants are a thing of the past, anything citrus lemon, lime, oranges, tangerine, fruit juices, I have to cook everything plain and bland, it's getting old...no crunchy foods, chips, cereal, tortilla, cookies, and the big one chocolate...

I'm also allergic to vanilla, cinnamon, nutmeg, cloves.....

Ok I'm off my soap box, if anyone has any suggestions on how I begin a way of eating that will benefit me so it's not so overwhelming all at once, List in the Midwest! Thank you !

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  • Posted

    So sorry for your pain. It sounds awful. I can't answer your questions I'm afraid. Have you tried Aloe products? I use an Aloe toothpaste for my OLP. Also I take pro biotics in a daily acidophilus capsule , rather than pro biotics from yogurt. I have also improved my oral hygeine. I have improved to a bearable situation, but whether it's due to the above I don't know. I was told by the dental hospital that stress sets it off as I'm sure you already know.

    I do hope you improve soon and if you get answers to your questions, please post.

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  • Posted

    I'm now on vegan diet even that I have to tweak coz no sugar or choc but I can use carob powder in baking and coconut sugar I tried to eat vegan pastry but had to soak it in water was too hard for mouth dairy inflames body you see and I am always tired sleep for England I do !! I think it's coz immune system is working too hard so it tires you out I still swear by homeopathic remedies coz doctors don't seem to be able to help ! Xx

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  • Posted

    So sorry you have Lp to that extent! I also have it all over my body and in my mouth! Check out the AIP diet. The way you are eating is very similar. There is a whole community around AIP eating and lifestyle. They have a lot of yummy recipes. I have been following that way of eating for 1.5 years. It has eased my symptoms a slight bit but for me I believe it is more chemical, heavy metals,triggered. I also have 5 root canals that I think may play a part ugh! Good luck with your quest👍🏼🤞🏼🙏🏼

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    • Posted

      I agree it's related to mercury fillings I had loads out and implants put in plus last week had old one drilled n filled white and my mouth blew up next day white lines on sides of tongue and cheeks ouch !! X

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  • Posted

    Hi, I can totally relate to you. I had posted question on the same forum asking about my purplish lesions all over my body. I was told to avoid the below food from the doctor who is treating me and it seems to be helping. 

    You should avoid certain foods, such as shellfish, spicy food ( onion, ginger, garlic, pepper, chili, etc) alcohol, coffee, dairy products, gluten, lamb, beef, cheese, refined sugar, tomatoes, eggplant, and tropical fruits (mango, pineapple, papaya). 

    Apart from this I apply turmeric all over my body and leave it for an hour and then I wash it with moong dal powder. 

    Don't give up your hope. Prayers have helped me a lot and connection with God has kept me sane during this tough and worst period of my life.

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  • Posted

    The book you should read is medical medium by Anthony William he says your immune system never attacks your body it is trying to attack the virus that causes diseases such as LP very interesting reading makes total sense to me anyway

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  • Posted

    Hi TAB61 , it sounds like you have a lot more than just LPP to deal with ( as if LPP isn’t hard enough ) 

    I too have it everywhere, I will tell you I totally get it , my daily routine is just exhausting!!!

    I have found that ozone water , drinking it bathing in it I ozone non preservative eye wash , I’ve done a mixture with small part coffee enema . Hope this helps and stay positive and less stress is the best .

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  • Posted

    Hi all

    Just wanted to let you know that I have Oral Lichen Planus and a bad immune system. Just like to let you know I have been told to take Vitamin A (30,000) per day FOR 90 DAYS ONLY (then you must break from it). When you have finished the 90 days take Sea Buckthorn caps for a few months. I am just starting on my vitamin A. I need to check the vitamin A dosage again. This is coming from one of Britain's top nutritionists. Also as much vitamin C as you can take (you can't overdose on it but a lot can make you poop). The key is the vitamin A though. Beta Glucans are a good idea for the immune system too. Hope this helps and hope we can beat it! 

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    • Posted

      Hi , thank you so much for the information, what was the dosage on the Vitamin A 30,000 IU ?
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    • Posted

      Hi

      I have vit A tablets that are 10,000 each tablet. I've been advised to take 3 of these tablets a day =30,000. Take for 90 DAYS ONLY.  Buy the NON beta carotene type. Lots of vitamin C is a good idea too.

      If you have oral planus take sea buckthorn after the 90 days of the vitamin A  but NOT whilst taking vitamin A. Sea buckthorn repairs mucous membranes. 

      Stop eating sugar too.

      Hope this helps smile 

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    • Posted

      Hi best vitamin C to use is Buffered C.   It is less acidic on the stomach and more absorbed. Cost about the same.  Also anything I take is Citrate.  Magnesium citrate and on.  Better absorbed.

      Was married to a Naturopath for years.  She was a celiac so we had to be wheat free and vegan.

      No small trick as wheat is in everything.  After seven years I went back to fish and eggs.  You need to be careful taking to much vitamins , A ,D, K and E as you can do more harm than good. Hope you are doing good.

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  • Posted

    What are the symptoms of LP in the esphogus I have it on my vagina I think I mite have it there because I have stinking sore throat and Gullet all TNT time I can't eat anything spicy or fatter 

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  • Posted

    What are the symptoms of LP in the esphogus I have it on my vagina I think I mite have it there because I have stinking sore throat and Gullet all TNT time I can't eat anything spicy or fatter 

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    • Posted

      Honestly I would not know what the symptoms of LP are in the esophagus. But your GP will know.

      I have lots of allergies, all wheat, all cows milk including cheese, alcohol, milk, yogurt and even crisps because of the milk protein. I am also allergic to grapes. I am vegetarian too so imagine how limited I am. My diet is very plain, mostly soups and salads.I can eat goats milk cheese and goats milk yogurt.

      basically you need to avoid processed foods and sugar. Sugar is so bad on your immune system. I think you are gonna have to strip it right back to basics and have no spicy foods etc. Make some home made kefir with goats milk and also get some saurkraut, this will help a lot. 

      We are not meant to eat crap but we do, and we end up ill because of it. May I recommend the following video which is very inspirational. I managed it for 3 days and felt better already.

      good luck x 

      Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

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