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L.p. everywhere!!

Posted , 11 users are following.

TAB61
TAB61

my eyes, my ears, my esphogus, my mouth, gums ,tongue, my legs, feet, head/scalp, my nasal cavity, and my Vagina.

How does one work all of these issues, I'm exhausted , tired, weak, I use sprays, ointment creams,eye drops, ear drops, probiotics, Vit D, pills, more pills, 2 types of insulin for diabetes 4 times a day, C-pap....and the list goes on...and on...where does one start??, was at mayo for 2 years, Froedter Hosp Milwaukee over a year, now have Appt new Spec of L.P. Seem at Northwestern, Chicago Late Feb. Can't wait.... some say no milk/dairy, what actually are we trying to avoid in the dairy? some suggest no diet products that have sweetners?? Once again what are we trying to avoid? Does anyone know if there is a book out there for LP/OLP diets, the dos and donts to avoid flare ups?? I feel like I'm drowning with no way to surface, I've noticed many comments from the UK, they seem to have Doctors that are more learned with Lichen Planus than our stateside Physicans, why is this?

Things I have had to give up are tomato based sauces, ketchup, bbq, spice if any kind, Chinese, Korean, even egg rolls, tacos, my favorite tomatoes, eating out ff there is no way and restaurants are a thing of the past, anything citrus lemon, lime, oranges, tangerine, fruit juices, I have to cook everything plain and bland, it's getting old...no crunchy foods, chips, cereal, tortilla, cookies, and the big one chocolate...

I'm also allergic to vanilla, cinnamon, nutmeg, cloves.....

Ok I'm off my soap box, if anyone has any suggestions on how I begin a way of eating that will benefit me so it's not so overwhelming all at once, List in the Midwest! Thank you !

0 likes, 29 replies

29 Replies

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  • Gillian1956
    Gillian1956 TAB61

    Posted

    What are the symptoms of LP in the esphogus I think I mite have it and what treatment do you have 
  • joyce6460
    joyce6460 TAB61

    Posted

    How do you know if you have lp in your oesphagus do they test for i have an inflamed oesphagus but when I asked if there may be a connection because I have it in my mouth I was told no 
    • Gillian1956
      Gillian1956 joyce6460

      Posted

      I'm thinking the same I've having symptoms in my gullet I have LP in my lady bits surly they can do a endoscopy and take a biopsy what are your symptoms I get burning and soreness in Gullet and throats 

  • joyce6460
    joyce6460 TAB61

    Posted

    I was have troubling swallowing I've had an endoscopy which has shown an inflamed oesphagus I already have it in my mouth but when I mentioned that t to the doctor he was very dismissive I also have it vaginally and have had problems with abnormal smears but I don't know how to get a diagnosis it took long enough to have it diagnosed in my mouth

    • mary_pooh
      mary_pooh joyce6460

      Posted

      Please note it is all related my doc kept saying no but you must put your foot down and request tests or see dermatologist there are specialists who deal with vulva LP and will also make the link this disease comes from within us so of course it can spread wherever xx
    • joyce6460
      joyce6460 Gillian1956

      Posted

      HI yes I,m taking lansoprazole it has helped a lot but. It gives me an upset stomach and I have to run to the loo every morning . 
    • Gillian1956
      Gillian1956 joyce6460

      Posted

      You could she for a different one I'm taking Zoton   Fastab  it's almost the same thing as Lansoprazole but it's the original one do it's better then the cheap versions so not so many side affects I had trouble with Lansoprazole myself do you find a problem drinking anything hot I gave to leave every drink  I have to go  cool and eating anything hot also I can't eat any sharp foods when it's burning bad do stock up soft foods no chips cakes spicey foods no coffee that affects me and I love it 🙁 And no chocolate another one of my loves I can't eat 

    • joyce6460
      joyce6460 Gillian1956

      Posted

      Yes I,m the same I have to wait for drinks and meals to cool I do eat chocolate sometimes but only a little bit .i,ve stopped drinking wine cos I think that was irritating things. It's awful no chocolate no wine ??

    • Gillian1956
      Gillian1956 joyce6460

      Posted

      I know what can you eat if you don't mind me asking also  I see a dermatologist for my LP so I can hunk next time I go I will ask if this could be my problem in my gullet I'm convinced it is 

  • mary_pooh
    mary_pooh TAB61

    Posted

    Can I suggest you Google this : lichen planus oesophagus it will tell you where you can get LP !!
    • joyce6460
      joyce6460 mary_pooh

      Posted

      Thanks so much for that i.ve looked on it and I have all the classic symptoms I mentioned this when I had my last endoscopy but the doctor didn't even discuss it when I said could there be a connection he just said no so I think i.ll print some of the things of that site

    • mary_pooh
      mary_pooh joyce6460

      Posted

      It's unbelievable that we can Google so much ! And yet doctors don't seem to join the dots ! I had vlp then when I got it in mouth my doc said no to olp kept giving me thrush medication !! Til I said no more I demand to see a specialist then I had tongue biopsy which proved it was olp not thrush by which time (5months later) the thrush meds completely stripped my skin out of my mouth so now 18 months later I'm still red raw can only eat vegs n boiled mash rice ! Can only drink water it's hell

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