Labia Minora Shrinking!!

Posted , 26 users are following.

Hi Ladies

I have never used clob and have managed my itching, soreness and lesions with natural things. Olive oil or coconut oil to keep things moist and a little dab of tea tree directly onto the itch which for me is at the top of my left labia majora just on the inside edge. This is where my white patches are plus a few slightly raised what I think must be hair follicle spots. ( waiting for a dermatologist ref to come through re this). What is concerning me is that in the last couple of months my labia Minora has noticeably shrunk and my clit has also shrunk! I have no fusing and can still have sex with no pain. ( long may this continue). Does clob prevent shrinkage or will it happen regardless. I was diagnosed 2 years ago. Maybe I've been lucky up to now and LS is starting to enforce her true colours on me now. I don't want to use clob but if this is a preventative measure then perhaps I should. I don't have any LS symptoms other than shrinkage at present other than on my labia majora. I am 55yrs so maybe this could also be atrophy from menopause? Any feedback would be appreciated. Thank ladies.

1 like, 134 replies

134 Replies

Prev Next
  • Posted

    Hi Nettie,

    ‘I wrote to you yesterday but see my comment is on hold by the moderators as I placed websites in it. Hopefully you receive this one,

    Take a look at the following: bsccp organisation on net and search for the lichens of the vulva. You will see a 25 minute video that I found gave me a good idea of what the vulva looks like and different impact of LS and shrinkage. 

    If you don’t find it, pm me and I’ll send you the link.

    Samantha 

  • Posted

    Hi nettie 62 and ladies,

     ok i checked myself two days ago since being diagnosed a year ago, was so shocked , i am hoping the aloe/turmic oil will help me unfuse. i am having problems in what to eat, i am Latina and love and used to eating eggs/ flour tortillas/ hot salsa with chips...beer and now i dont know what to do...i am trying to look and get gluten free stuff but am still eatin what i eat. i get some itchin at nite and i am still using the emuaid and the aloe .. started the vit e and d. so do some of you get constapation with all the vitamins janie

    • Posted

      HI janie - be sure to include magnesium in your supplements list. IT will keep the vitamin D and other from causing constipation. also be sure to be drinking about 8 glasses of WATER a day - ESpecially in this hottest summer on record!   dehydration also causes constipation. Yeah... creatigna  whole new diet really takes some imagination and work but I'm kinda enjoying hte opportunity to learn new things to eat. smiles. 

    • Posted

      Nancy, ok i will get that one, i think im getting a flare up cause im feeling a little burning, and im thinking it was the snow cone i ate on sunday!!!!!!!!or Flat bread with herbs and avacodo on Monday,,, i cant sleep but did a epson/coconut oil bath last nite and put on emuaid... felt better but i dont want it to get really bad. I think i am loseing weight which is a good thing, but neighbors and friends are gonna wonder what  is going on, only my daughters know what is happening to me, i lost interest in my hobby of sewing, just want to be buy myself, does thsi get better? feeling sad lonely janie
    • Posted

      Hi Janie, dont let LS change who you are.  Honestly, I know its a bitter blow and shock at first but you really do need to continue on with things you enjoy, like sewing..stress isnt great for Lichen Sclerosus and so worrying over it will make things worse...
    • Posted

      Hi Guppy007, Yes i know, and i am trying not to feel this way, but any little feeling dwn there I am like am I fusing... am I gonna be in pain... i am gonna try harder to be strong , thank you so much for your kind words...  janie
    • Posted

      Keep your chin up Janie , this is such a good place to talk when this gets you down as it does with us all , keep up your sewing to keep your mind from it and  your not alone on here to chat x
    • Posted

      I’m feeling super bummed out! Need some cheering up sad after about 6 weeks of trying all these things: borax, bicarbonate, supplements, oils, etc I’m looking down there to see improvement. Two weeks ago things were starting to look better with white areas fading but today I looked and the entire area is white as ever and the skin over my clitoris is thickening and closing up! I’ve had this for years and thought all these natural things would help but I’m just super down right now. All my efforts, multiple times a day doing all the right things, only to find a depressing situation. Zero unfusing or any sign of it, no flesh tone has returned. Arg!! Help 
    • Posted

      Ms Donna , thank you and i am ,but you know sometimes this ugly LS brings you down...thank you all you ladies for being here...Janie
    • Posted

      Hi Lynn, what I sometimes wonder is that with all the tips that people suggest it is tempting to try a bit of everything and I think that is a mistake.  Everyone will react differently, and so it makes sense to stick with a limited routine for a while to see if there is progress or not before moving on and trying something else.  Also six weeks isnt all that long, not really. 

      With regard to the borax...how are you using that? what kind of routine and how much? maybe you need to be adding a bit more?   

      There are so many women on this site that use the borax maybe they will chime in.

       

    • Posted

      HI there lucky Lynn to live in the worlds most wonderful city - San Francisco! smiles.  

      Ahhh... I had my day all planned out for getting some creative work done... and somethng this morning made me follow my nose... after another person mentioned  who? mentioned the bit of chocolate that threw her off 3 days after consuming it. ARGH! is right.  I occasionally notice that I feel like a bull being led around by a nose ring willy-nilly wherever this LS feel like it, eh? dang no... 

      OH! I never look down there anymore - I go by how I FEEL - it's too discouraging otherwise. I learned that attitude from Guppy actaully; she mentioned something some months ago. Just to live our lives and not let this run us in circles... who cares if the color is a little off if I'm not hurting   But yeah... Lynn, I too have noticed a little backpeddling today - whaaaat? I've been a good girl. 

       I started to read up yet again on the supplements that I had already found and to delve deeper into their use. I started with chromium that is on my list because I've been aware of it for 40 years since find out about hypoglycemia.  I couldn't remember if i have it on my LS list for a generic reason for  everyone. Well YES! it reduces infections in skin AND it helps to reduce BELLY FAT.. which as it turns out has a huge association with vitamin D deficiency -  holy moly!   

      BUT on the way to that I stumbled somehow on a conversation about whether autoimmune diseases really are what scientists are thinking they are - "auto" - holy s**t - you mean after my months of reading on how our illness' all converge?

      Well, the research scientist (sorry, too may tabs open tonight for the moment) gave a explanation that these all might be connected through fungus! MOLD to be precise. ??? is that possible. Do we really keep reinfecting ourselves from our own environment? 

      The part about BORON/BORAX and Apple Cider Vinegar water is precisely based upon that theory...  they are known antiviral, antifungal and anti whatever.....

      So thinking of that today, I've been wondering whether all you who are spritzing yourselves with borax water in the middle of the day are Also taking the borax water INTERNALLY? Is that written up on here? I know it's in my 17 page itemization sometime back.  Internally is the way to get to the systemic part of our issues.   

      Cheer up Lynn - let's keep adding to our knowledge base. I really liked the homeopathic Graphites & calendula cream that someone mentioned today. i read up on each product - it sounds like another thing to give a good try to also ... more later more seems to e coming in . now where did I put that . ... what doyou all think aobut a possible hidden mold problem? do any of you "hose down' your homes with hydrogen peroxide or something? ahhh   

    • Posted

      hi janie, yeah, I get shocked too when I realize how quickly our bodies give us feedback now.  My assumption is that my body has been sending me signals for years.. and I wasn't ready to listen. Yeah, what about  you? Looking back I remember that I used to get some cookies with the thougth I can "cheat " this isn't much I eaat so well other wise.... etc etc.  finally realized that our whole culture is built on "cheating" - thinking we can "get away with something. SO I'm now enjoying realy getting involved with my own body carefully listening to it.   no cookie's for me - no snow cones for you smiles. Didyou see my comment about chromium a bit ago? it really helps to stave off the sugar cravings... plus all sort sof other good help.   

      HOw is your sleep now, Janie??  Not only is MAGNESIUM good for preventing constipation is also is fabulous for sound sleep.  I''m currently taking about 800 mg. we are here for you your'e not alone blessings! 

    • Posted

      Guppy you are so right , I have been trying new things and not with great results.

      I feel i over do things as everytime someone mentions a breakthrough i try it.

      My LS does not like so many things.

      So i have resorted to basics with a few adjustments 🤗

    • Posted

      Hi guppy, yep I’ve been a jack of all trades with regard to trying EVERYTHING. I was using bicarbonate for 3 weeks in a spritz bottle with water and a dab of tea tree/lavender - a spray after every bathroom trip- feels great,  makes me smell great and maybe it made a tiny change for the better. Over the last 5 days I’ve both added borax in equal parts to the water spray along with the bicarbonate - also did a borax/water only very concentrated mix, shook it in a bottle, put on a cotton swab and lathered it only my skin- only did that two times. Started sits bath now two days in a row with borax and bicarbonate. In addition to that I’m using emu/aloe for moisturizer and an essential oil mix also. My vajayjay rarely is left alone, it’s always pampered with something! I will admit I’ve had sugar over the last 4 days since coming home and and since getting my period and now wondering if either of those factors could actually turn my skin whiter?? 
    • Posted

      Nancy, thank you for the support. I actually have to look down there so I know what’s going on. I didn’t look down there for 8 years and had I done so I may have been able to get this thing under control earlier on. But it’s inportant to gauge what’s happening down there for me, it’s a way to understand when it’s progressing and when it’s recessing/taking a pause. Sometimes seeing it look worse makes me question my diet or stress or sleep pattern. I dunno anymore. All I know is thank God for this group and you all 
    • Posted

      oh indeed you are right, Lynn.. .i think it's just that we don't need to do it every day, a kind of  thing  where constant anticipation causes more distress. 

    • Posted

      Hi Lynne, I do know that having sugar can start up LS symptoms real quick but I have no idea whether it can make the white areas whiter....I guess it could be possible with the onset of your period (hormones) as well.

      Maybe try not to put anything on your Vjay during the day for a while, and just use the borax and a bit of oil before bed.  Sometimes overdoing it can make things a bit worse I think.

    • Posted

      Hi Guppy, I love that idea of not doing anything for a day (scares me lol). The only thing that worries me is now that I’m always applying things, I notice that when I dont I get sharp itching due to dryness. I guess plain oil cant hurt. Thanks for the tip and support as always

       

    • Posted

      hi nancy, i have taking gummys sleep restful and they have been working pretty good , not all the time but its helps. i have to get the list still that i need to add more vitamins to what i am taking , but trying to take everyting on your list . thank you nancy so much janie

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.