Labyrinthitis and Prochlorperazine Maleate

Hi Michelle,

I was interested to hear your story as was very similar to mine. I do find if I am ill (I contracted Vestibular Neuritis in April 2011) that sometimes I get some of the symptoms especially if it is a head cold. I wondered if you had experienced the same thing. I was unlucky to contract a stomach illness as I was getting better in October 2011 which meant it took longer for me to recover from Vestibular Neuritis. It is such a relief to talk to people who have experienced the same scary situations because of the illness. I nearly became afraid to go outside because the noise would set off the feeling of dizziness and anxiety.

I am really pleased that your story has had a happy ending like mine.

Sara

Hi guys , I have been fighting labrynthesis for the past 10 yrs or so .

Though I haven't been so seriously affected until recently when I had room spin. For me I realised that it was due to the cold winter breeze going into the ear . You must always cover your ears while going out .

Please let me know if it makes sense . Last 3 days I have been taking this tablet . Tomorrow going to be first day without it . Wish me luck .

Cheers !

Yes - I have same problem. When I go outside from inside and is cold it affects my balance. Also the noise of certain air conditioning units makes me off balance as well. I am used 2 it now but it is a pain and can b frightening. On the plus side - I can drink alcohol and caffeine with no effect 2 my balance now!

Good luck!

had Labrythitis last year for most of the year ,off work 3 months,,on stroke unit for 10 days in June.All tests clear. Seeing Neurologist next week.Gradually got better and was 95% better by xmas, only for it to rear its ugly head last week. Off work again.Symptoms numb/pins and needles right side of face,arm leg,blocked ear,tinnitus,head 'shuddering',Pressure on right side of face and ear from it being blocked.Decided to try Ginkgo and vit B complex to see if that helps. Not drink too many cups tea /coffee. Had ear candling last year so going to try this again as it did help

Hello,I were diagnosed with Labyrinthitis back in December and in the middle of January I were prescribed Prochlorperazine 5mg 3 times a day, they have been a god send I'm able to go to work and lead a normal life. My GP has now advised me to reduce them to do 2 a day which I have been doing only to find this morning I had a very mild episode slightly off balance/stagger as if the base of my skull were full of water which

only last about a minute and I've had a headache since. Has anyone else experienced symptoms while

reducing their tablets?

Is there anyone else who is taking prochlorperazine with ginkgo aswell?Just started the proch today.Hopefully back to normal asap.

Hello everyone!

This really is an awful illness and so my sympathies go out to everyone on here. I can't tell you how much I relied on reading forums similar to this to give me advice and hope that it would come to an end.

It is now February and I still experience symptoms even though I first became ill in June. I honestly can't believe this is true, but it is sadly. I try not to let it get me down since my symptoms are no where near as bad as they used to be and I would say I am able to live a normal life 90% of the time. I can now drink tea and coffee but alcohol and illness as well as being very very tired will cause the symptoms to rear their ugly head. I still have to do VRT every day and in this way keep the symptoms at bay and progressing ever so slightly. I am hoping when the weather becomes warmer and I can get outside to exercise more that I can reduce them further still. In those instances where the symptoms are bad again I will take a third of a table of sometimes a half of prochlorazine but I try to only take it at night because I know medicating in this way hinders progress and slows the recovery.

I have never taken ginkgo with them, I found GINGER helped A LOT. Either as a tea or a capsule before I had to do something that I knew would cause me nausea.

When i was first diagnosed I was taking 3 tablets a day. The doctor at the time never told me I had to reduce the amount I was taking, I found this out myself on these forums. I too had to function as normally as possible (work, traveling abroad, moving house) so I"m afraid I ended up being on 3 tablets a day for about a month. I was able to reduce by a half a pill after about 6 weeks. i think I managed my first pill free day about 2 and a half months after I was diagnosed but this was with a lot of symptoms that I just tried to manage in other ways. You will have to feel dizzy sometimes in order for your brain to learn itself to compensate. The more you can do to stay active and work through the dizzies, the quicker you will recover. This is so important. I really wish I had been able to reduce my medication down much sooner because I do wonder if this is why it has taken me so long to make a full recovery. So get as much help as you can with everyday tasks and just take each day as it comes. You will not notice yourself getting better day to day, more like week to week or month to month so don't be disheartened if it doesn't appear to be happening quick enough. Just keep reducing by seeing how long you can go before taking a does and in this way I was able to reduce down to only when I absolutely need one. Its been 8 month and I would say I still have to take a small dose maybe twice a month.

Good luck everyone.

started with the proch tablets yesterday , hopefully they will kick in ASAP.need to get back to work and have a NORMAL LIFE!!! I recommend pilates as way of exercise but also distraction from this illness.It relaxes the whole body and mind, I have got a Darcy Bussel dvd which is excellent.

I feel ok again today,I'm going to stay on 2 aday until next weekend then reduce to 1 but take it at night,I am leaving 12 hours between the 2 tablets, I had been trying to leave the morning 1 as late as possible before taking it,until yesterday. I'm due to fly at the beginning of July and this illness is causing me to worry how the pressure change will affect me and would it trigger an "episode". I am currently waiting to see the ENT specialist, would it help if I asked to be referred for the Epley exercise?? I try and keep active I walk round alot at work also too and from work,I also move my head as normal although sometimes this can make my head feel dizzy without the actual spins.Thankfully no nausea,I've also noticed my head tilts to the right nearly resting on my shoulder when I sit down,recently my optician had to hold my head in the correct postition for me to have my eye's tested.Anyone else have a tilt when they are sat down?? Carol1965 hope you feel better soon,

Hi everyone after reading a lot of things about this illness I think I may have it myself

I have suffered hearing problems for the past 37 yrs mastoiditis on my left ear and collapsed eardrum on my

Right along with hundreds of ear infections more recently a lot in my right I've been to the ENT but they have said it's just an infection but my symptoms are those of labyrinthitis I'm on antibiotics and optimize spray

My hearing is normally ok with the hearing aid but now for the past few days it's no good what so ever so getting abit worried as I can hear nothing at all now I've read this can go on for years so slightly shitting myself

Was diagnosed with labyrinthitis yesterday and given aciclovir and

Prednisolone I have to take 1x5 times a day and 12x 1 times a day has anyone else had these??

I was never given Prednisolone but I do remember reading that steroids can be given by doctors for labyrithitis. There is lots of information on this online. I think it is to reduce inflammation. I never had hearing loss so was only treated for the nausea and dizziness.