Labyrinthitis and Prochlorperazine Maleate

Hi how long did your dizziness go on for the hearing loss part doesn't really bother me as I've had hearing difficulty for 30 odd years its the tinnitus and spinning room that's doing my head in I've had it for about a week

Now

hi everyone, like you im a sufferer of this Labs since Oct 2012.

Started on a Saturday evening as the wife and i were getting ready to go out, felt a wobble or two and thought itd pass then the spinning started and i was throwing up everywhere, luckily i made it out onto the patio...

So Monday the paramedics come and take me away to hospital as i hadnt recovered and was told Labs so home and the GP took over, 5 types of meds later im on Prochlorperazine Maleate, took months to get to this stage though.

In that time i had lots of good and lost days, went to the movies and had to leave as couldnt keep up, eyes to brain messages were out of sync. Needless to say id stopped driving and also became housebound as i couldnt be bothered so a bit of depression i think. Got a little dog in Feb 2013 to help me have a daily focus other than myself being cabbage'd out and that has been wonderful, just a little Shi-Tzu so nothing adventurous but certainly the exercise and company through the day helped.

Work was next to useless TBH as i didnt have a visible issue, crazy after 8 years service and we declared £665million profits in 2012... still thats life i suppose. I returned March 2013 (part time now) and took it slow but have had 2 episodes since then, most recently 3 weeks back. No real triggers to identify why and i put it down to slow recovery. Again a hard bit, no instant recovery just more of the same. wont get me to start on the meds again though as too isolated, anyways its more the tiredness afterwards that gets me down.

I stopped these meds back in March 2013 by cutting down and seeing aht happened, simply finished the last pack i opened, still have another in case but have no intention of taking them as the lethargy has followed me through and im trying to get past it. since then some fuzzy edged days and i stopped driving for 3 months in 2012 too just because of my peripheral vision loss, unnerved me this. Also im not a fast driver anymore, im so sedate now and being a passenger is a real challenge at times. Worse thing has been a bit of memory loss as i meet people and cant remember their names, from a guy who was razor sharp im now like a blunt spoon, its got its funny side too though as it challenges your conversation skills. Its been likened to losing my index to the filing cabinet and it comes and goes.

This for me is what i see a lot of suferers having, how to get energy restored and gain back to that lust for life, dont get me wrong i can have some great days but the following days im worn out again, theres just no equilibrium. Meds i dont see as the answer for myself as im just slow to move and dont bend over to pick stuff up, i crouch down now instead so adjustments have been made as Slinkymad says, do more to gain more confidence and recovery time shortens.

Work ask why i wont take meds and words fail me (im in management) as if they know better, but you cant tell them about it, they want to see something wrong like an episode of dizziness, mindless idiots.

This is something ive noticed are the changes to me as a person and a manager, im less tolerant of work practices and even more gracious daily, my wife likes it anyways so im a new man.

Recovery is my issue as im 43 yrs old and feel wrecked constantly, im usually a get up and go guy but not anymore, slept 11 hrs last night! I started a university course in Sept 2012 and had to defer for another year so hoping to complete this year, we shall see.

I found this post through researching meds and Labs treatment but there doesnt seem to be any just an ongoing battle to have a normal day and week. I hope some of this post has given you hope, humour and a bit of humility as it has mysel writing it, looking back its certainly been different.

Good luck with your own speedy recoveries everyone

This Labrythitis is a b.....d. I feel for anyone who has the sickness but my problem for the last year has been the blocked ear which then brings on all the other symtoms ,nausea,numb face ,arm and leg on right side which is why i ended up on the stroke unit last year. Have been tested for ms,stroke,all clear.I am still seeing neuro who I get the impression he thinks it isn't lab. I am off work again as i work full time in the Post Office so job is full on, but it is really affecting my home life, my husband feels the effects of this and it is very depressing and all consuming. Taking vit b12 aswell as ginkgo aswell as prop. Seeing nuero tomoro with my husband to see what is next

Wow! All this is really cheering me up and making me look forward to recover NOT lol think I better get used to the slow recovery if any , I'm off to ENT tomorrow for my 2nd consultation so will see what they come up with this time I've read about physio therapy for this illness but it doesn't say anywhere I've read what the excersises are so don't know what to do to try and help it along

I too suffered from depression last summer, never feeling like anyone understood what it felt like, feeling panicky in situations with a lot of people and noise. Awful waking up just to see how dizzy I felt. The doctor offered me something for the depression, but i didn't feel this was the way forward.

Chris 1971 - there are great VRT - Vestibular Rehabilitation Exercises on utube you can take a look at. The information I read was conflicting, some said it wasn't a good idea to start any yourself until you had a proper diagnosis but as you're seeing the ENT again perhaps they will be able to tell you. I did start some myself. I tried to get out walking everyday early, before I took any meds just to see how far I could get. and then once I'd seen the Physiotherapist (I found the best one I could in Toronto) he gave me a list of exercises to do everyday. Once I'd seen him and started the exercises, there was a marked improvement in my symptoms. However I didn't see him until the 3 or 4 month mark because my ENT appointment took ages to come through and they were no help at all! The Physiotherapist diagnosed me with vestibular nueritis because I didn't have hearing loss.

Ok thank you I'll have a look on YouTube then I think I've lost 99% of my hearing at the moment in what was my good ear as my left is knackered through mastoidectomy about 12 yrs ago so looks like I'll be looking for a sign language school soon lol

First I was diagnosed with Labrythinitis, then Meniers's, finally it was BPPV, now they are not convinced that is the right diagnosis. Waiting to go back to the ENT specialist. None of the normal tablets work for me.

went to neurologist yesterday afternoon and he said all the tests i have ha d so far on my brain have come back clear which is FAB . Next steps are,seeing having another MRI, seeing a different ENT man and then if that doesnt solve anything going to see a Neuortologist in Wakefield. Neuro thinks it could be Menieres but he said my particular symtoms sound like it could be an acoustic neuroma,he offered a second opinion but we{myself and my husband}are happy that these further tests are been done. Just hope i am not waiting too long,

Good luck to everyone with any kind of neuro condition,I know from this last year of ill health that if you haven;t got good health if someone offered me a lump sum of money or your health it would be the latter!!!

Hi carol well that good then at least your going down a path the right way after my 3rd visit to ent in the last 10 days I seem to have got nowhere, no mention of an MRI or ct scan it was just a case of here take these they might help now I'm on buccastem to ease the sickness feeling but like I said to them I don't feel sick at all just drunk and dizzy so what's the point Ive also never read so much literature in my whole life as I have this past few days lol but what else can you do apart from do as the doc says the hospital where I'm at qmc in nottingham is supposed to be one of the best for these dissorders but I'm optimistic about that claim anyway hope you get some solid answers soon

Hello all,

I've been feeling constantly dizzy now for around 3 weeks, so I went to see my GP yesterday who prescribed 5mg tabs of Prochlorperazine Maleate to be taken 3 times per day.

I was just wondering how long they may take to kick in as I'm on my 3rd one and don't feel any less dizzy?

Thanks peeps.

Hi everyone, I was diagnosed with labyrinthitis by a specialist about 4 years ago. I woke one morning and the room was spinning, I couldn't get out of bed because my balance had gone, I really thought I was having a stroke it was frightening. I was on medication for a while but was told not to stay on them for long because in the long term they made it worse! I can't believe that this condition is still with me, don't have it all the time but it seems to return when I have a cold or feeling unwell, I also find that if I look upwards sometimes the dizziness returns. Can anyone tell me if this will finally go as I feel I shall have this forever and it is very debilitating, any suggestions to help with this condition. Thanks

Hi Ray, They can take a couple of day's to kick in, take them at the same time everyday. I were on them for just over 4 weeks, now on my 6th week tablet free.. but I still occasionally feel unsteady similar to being on a boat but were told this could happen,the sensation only happens when I'm tired.hope you feel better soon.

Hi Elaine, You could have BPPV, it's vertigo triggered by movement of the head..there are exercises online you can do,look on youtube. I get very mild symptom's when I'm tired or stressed,simlilar to being on a boat,so I avoid getting over tired if I can.Keep mobile,walk,and try the exercises, good luck

Hi Cheryl and thanks for your reply.

I wasn't sure if they were supposed to work straight away, but that sounds encouraging, so I'll keep with them for now. On day 2 and still no change really but I'll wait and see. Thanks again.