labyrinthitis or meniere's

Hi John

Thanks for the reply. 

Yes I guess only time will tell, I’ve done so many test at the hospital and they seem keen on BPPV. I’ve seen about four ENT and two neurologist for their  opinions test etc 

Hi, 

Yes the rehab has helped out a lot, I’ve been doing it twice a day for three weeks now.  I really try my best to push myself even when I feel horrible. 

Ruby,  have you flown since that last attack?   I am flying this Saturday and I am very nervous that it could bring on an attack and ruin my trip.

Hi. I have flown since my vertigo attacks but no more than 4 hours.  I use earplane plugs the entire flight and have diazapam on standby or take a low dose before the flight. I have had a couple of mild vertigo issues upon reaching my destination but got them under control with the diazapam. I have not flown since my sac decompression surgery in May. I’m very nervous out it. Hope not to fly until next year. Good luck..

Hello Rubye, 

How are you feeling after your surgery, are there any improvements? 

I had a hearing test yesterday and everything came back normal. My right ear hears a little bit better than my infected one but not anything major. 

My ringing in the left ear is only noticeable when I’m by myself and the fullness popping feeling is gone. 

The weird thing now is I have a really sore neck and oddly enough most the discomfort is towards my left side ( same as possibly infected ear ) not sure if it’s  coincidental or not. 

I’ll be doing more test next week VNG, ECOG and VEMP.

I doing as can be expected. No episodic vertigo attacks but still struggling with BPPV. I understand that they are different. Just as frustrating but better than episodic attacks. They can respond to eply maneuvers and vestibular therapy. 

Your news is great. I'm glad to hear that things are stable and improving. I had major neck and muscle pain,soreness and stiffness after my sac decompression surgery caused by the frequent bouts of vertigo until the body recovered from the shock. Took quite a while. I had stiffness all along because of bouts too but not as severe. 

Best of luck ...

I didn’t know you can have minease disease and BPPV at the same time, is the vertigo with BPPV the same feeling or worse ? 

Today I’m feeling a little sluggish and the ringing in my ear is little bit louder now. Also little sensitive to sound as well, maybe I’m just having a bad day.  I’ll have all the test next week to ecog etc to see if it’s MD. 

Ive read about a few MD that did the  orthokine stem cell and seems to control it more. They say it’s its one attack  for every two months on average. 

I was diagnosed with Menieres disease and BPPV about a couple of years later. I was only having sudden episodes initially . I could move around, turnover, lie flat, etc without a problem. Then about  two years later certain movements brought on vertigo attacks as well. The vertigo is the same but can be stopped quicker if the crystals fall or are put back into place with the BPPV.  Episodic vertigo bouts felt a bit worse to because of its suddenness and unpredictability along with the tinnitus, fullness, etc.  Everyone is so different with medical issues....

Best to you 

By the way, I have not heard about stem cell research for menieres disease. I get the feeling that I’m way beyond the benefits of that advancement.  I hope you can get some major relief during the early stages it. 

Hi, 

There’s two posters that had the same surgery as you and they seem to be doing much better. Another one without the surgery says he hasn’t had an attack in 13 months..  the only problem is the clinic is in Germany and I hear it takes awhile for them to approve the treatment 

Thank you. If it comes to the US and is approved, I will be very interested in learning about it.  Sometimes these approvals just take forever.   

Yes in the states the healthcare system/FDA/Gov hard to get things approved.

Luckily now I work in Singapore we’re healthcare is good and cheap compared to the states.

Hopefully with more success rates it’ll get approved   

Hi, 

How do you feel on a regular day basis? Like do you only feel bad on the onset, during and after an attack? Or is it an everyday thing ? 

That’s were I’m a little confused with this MD vs LAB etc it seems most people with MD feel bad on the onset of an attack, during and after for a few days. Then things go back to normal ? 

Or maybe I’m just reading wrong 

Regards 

Ben 

Hi. Prior to my recent sac decompression surgery, I was miserable during and for some time after vertigo episodes. I would take diazapam to calm them which left me quite drowsy.  After things settled and my system rebalanced and residuals gone, I was pretty much normal.  I had a life again. I drove but not long trips alone anymore. I avoided fast highway driving more.  There is one exception to normalcy, there was always some anxiety lurking about because I didn’t know when the next episode coming. You have to make some adjustments for unpredictable conditions.  They challenge our quality of life in some way. 

Hi, 

So it’s seems like In Labyrinthitis, you tend to have one severe episode at onset and gradually recover from it over a period of weeks/months.  One and done.  You can have periods of decompensation which can feel like a recurrent episode, but if you examine yourself, 95% never have an attack like the first one. 

In Menieres you have a severe - throw your life into chaos - episode with painfully slow recovery.  In Menieres, you tend to have episodic, non-poisional nystagmus that will bring you to the floor.  Many seem to vomit during episodes and say that they are unable to figure out which way is up.  Between attacks, Menieres patients can return to relative normality (albeit, likely an anxious normal).  The disease brings a lot of unpleasant feelings of fear/anxiety.  

So it’s seems like each attack In MD is just as severe or gets even worse over time ?