Labyrinthitis/ Vestibular Neuritis...Please Help

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Hi guys,

First time poster, I hope I can find people that can relate to my condition or help with it. This may be a bit of a long post, I would appreciate it if you would spare some time to read it all.

Condition: Most likely labyrinthits (In my 7th week now)

Background info:

2 months ago at uni when I was in the gym, I was exerting myself doing weights and felt something pop in my left ear. I felt really faint and headed back...over the next few days I had severe vertigo/dizziness/nausea. I also experienced my first anxiety/panic attack when i felt these symptoms, which to be honest felt worse than the actual symptoms. I went to the uni GP and she said I had labyrinthitis (though she did no tests). I also recall not having any flu like symptoms so I'm not sure how it could be viral labyrinthitis. Thankfully all symptoms vanished within 1 week.

Life was back to normal. However 3 weeks later, I was back home for the summer and had been back in the gym for a week or 2 when I felt really lightheaded and faint again. Sometimes I feel like this in the gym when I exert myself so didn't think much of it. I came home however and experienced another anxiety attack. The dizziness/vertigo etc was MUCH LESS severe than the initial attack 3 weeks ago at uni, however it has persisted for coming up to 7 WEEKS now.

Currently:

Over the past 7 weeks, I have had good days and bad days...good hours and bad hours. I went to the local GP who once again said the symptoms matched labyrinthitis without doing any tests. He prescribed some stemetil (which I took only twice as it didn't help and also because I have read everywhere online that it only slows down the recovery from labyrinthitis).

I tried just walking around, passing the ball about with a friend to 'retrain' my brain. However, the symptoms were still in the background and didn't really seem to disappear. But I did feel much better then than I do now.

For the past week, everything seems to have gotten worse. I have spent more time in bed than normal as my friends are on holiday at the moment and I'm not sure if this is the cause? As I'm no longer carrying on with things as normal.

Other info:

Since day 1, I have also had a popping sensation in my left ear every time I swallow.

Head feels heavy. Neck aches. Feel a pressure within my head/ear.

Though I have had anxiety attacks a few times, lately it feels like I'm on the verge of one all the time.

I also have other normal symptoms such as feeling nauseous, tiredness etc.

Very recently, it feels like my vision is a part of the problem too. My eyes feel very heavy and like I cant focus on things. Also, the last few days, I see little flashes of lights which aren't actually there (this has only happened about 3 times in as many days)

Note: I have finally managed to get a specialist ENT appointment, which isnt for another 5 weeks unfortunately, but better than nothing. I'm sure at that point, they will confirm it to be labyrinthitis or something similar as the symptoms all match.

Questions:

Is there anyone else in a similar situation as me? How are you dealing with it?

I have done some generic VRT exercises, but it doesn't seem to help too much. Thoughts about VRT?

What triggers your symptoms? For me it's been hot weather, shower, loud noises, bright lights, dim lights and more (nothing specific).

My anxiety seems to be triggered by anything that I think is abnormal, e.g. sudden tingling somewhere on my body, sudden temporary noise in my ears, sudden temporary dizziness etc etc. All of which is probably normal, but they seem to trigger anxiety when I feel like this. Does this also happen to anyone else?

Are there any tips to control the anxiety? I swear its a lot worse than actual dizziness.

Are there any tips to control the dizziness? Such as VRT or others. Is it better to stay active and feel worse for a short while or should I just stay in bed?

Any other useful information?

WILL THIS EVER END?? I have read some success stories, but will it really take months to years??

Is it also true that even if it goes away, it can come back any time in the future? This is what scares me the most as it seems there is no permanent cure.

I am getting seriously depressed about this as the past 7 weeks have been pure hell, I wouldn't wish it on my worst enemy!

Thanks for listening to my rant/story. I am looking forward to hearing back from anyone at all!

Thank you

sad

8 likes, 338 replies

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  • Posted

    i also have same problem...please tel me the treatment.my Gp is saying dat im in depression. he is giving me anti depresants.but its not working.please help me out

     

  • Posted

    Good Day

    Hi I am a filipino working in saudi arabia,

    Sorry for my bad english let me share 1st my history on your sickness same as mine.

    i just read your situation mr. shishir i feel most of your complain back 2009 of june to march 2010 i feel very stress, vertigo nausea and axiety, i easily get tired loss of fatigue, i feel weak, cannot sleep properly, i feel i am very scared and nervous my body is very afriad tingling something like that. then i got to doctor and they cannot recognized my situation he just give me anti acid medicne and doesnt cure at all, i become very skinny because of lost apetite but my weight seems to be same. until march 2010 and i did not go to any doctor i said to my self i feel dying i already told my wife and my kids that i dont know how long streght will last so i do all things to comfort them i feel not sick but i feel this symthoms i mention earlier. then suddenly to many happy ocassions and happenings i enjoy a lot then i recognized from march to may 2010 all back to normal can eat again lots of food, sleep no more shortness of breath everything gone, then i apply job for saudi arabia got medical and all things are normal. i become active on sports playing basketball jogging tennis etc i feel young again comfortable again 1 year of working in saudi.

    now this is my problem.

    June 12, to 16 2014  

    i am matured enough to search my sickness now on internet so i mention the anxiety nausea etc.

    Most of the time from may to june i eat 2 kinds of foods broasted and kabsa a rice with food coloring and its very delicouis. then all started june 12 after eating lunch 12pm then on 3pm i feel like vomiting and i cannot swallow food until dinner but i just ignore it, then june 16 continue eating kabsa again now i feel like hard to breath and my left nose is like im having runny nose( its already 2 weeks the runny nose) still ignoring then dinner time again kabsa, then june 17 eat only burger 12pm lunch time after 30 min i feel of shortness of breath, dizzy, and my both ears are burning and turn red, i feel of going to hospital, but then a few hours backing to normal then ignoring again. then days continue still eating chicken and kabsa then on june 21 eating kabsa dinner time 7pm after 2 to 3 hours i feel scratchy both arm and feet feel dizzy and hard to breath same June 17 i want to go hospital again but already evening nobody will take me. June 22 i start searching my sickness then i go to doctor afternoon and blood test blood is normal and they found out i have allergy and 1 desease on my left nose he gave me Prednisolone and Avamys nasal spray for the nose he said i have no asthma. days past for 1 week i feel little comfortable with my left nose, allergy seems to be curing little by little but still there every time i scartch on my bot arms. my hard to breath i think little cure also but still there somtimes.

    now again i feel that my old deasease is coming back maybe because of my fears(phobia maybe) anxiety, nausea, Labyrinthitis or maybe because of my allergy i dont know. ikeep on searching my sickness and reading whole day. 

    this is my sympthoms.

    when i wake up in the morning i feel hard to breath, loosing of fatigue, is like im going to collapse but if i walk i feel normal than staying in one place (should i walk everytime?), redness of ears right or left sometimes both on certain times, some scartchy allergy still appears, vertigo or dizzy, i feel moddy and afraid on certain things cannot explain well this, and in office whole day not comfortable i think a lot of this, i feel somthing strange on my throat liquid or plems and in my left nose but dont have cold at all.

    if there is anyone who would like to talk with me please add my email _____

    other background info

    not playing any kind of sports for the last 2 years only office and house other and indoor games. very rare of exersise.

    Patient Moderator Note: I have removed an e-mail address from this reply as it is the policy of patient.info to not publish these within the forums. If any user is interested in this removed information they should contact the author via the Private Messaging system requesting such. Thank you for your cooperation.

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    • Posted

      Jam.

      try BPPV exercise. .Helps. 

      it's on you tube. 

      Stopped my spinning immediately.

      whiplash injuries aren't the main reason but the treatment for whiplash helps.

      Lorraine

      San Francisco. 

  • Posted

    Hi fellow sufferer.

    I have been dealing with the same symptoms. 

    I find the BPPV exercise helps..

    You tube is good for looking up this problem too.

    I was told it came from whiplash. 

    Mostly because I was having trouble lying back.

    the spinning was scary.

    I now take xanax for the fear. It's helping. 

    I thought it was a sinus infection WRONG. 

    I find walking reduces stress.

    Your friend in San Francisco. 

  • Posted

    Have you tried BPPV exercise. 

    There are a few for whiplash injuries. 

    Stop s the general spinning. 

    You tube. 

    Lorraine

    San Francisco. 

  • Posted

    Hello, being sick is not nice, especially when you have nausea and vomiting, I read about medicines that gives some relief, but with negative side effects, I have had episodes of dizziness and the only thing that has helped me is my mind, when I start with an episode of dizziness, mentally and with all my strength, I place before the feeling of being well in the place of discomfort, I've noticed that with some effort I learned to do this with less effort, the results have been satisfactory to the point of being able to remove the symptoms of dizziness and stomach, remember that the pharmaceutical industry uses the placebo factor to test the efficacy of new drugs, scientists know the power of mental interaction, use your faith for the benefit of your health! With all your heart and with all your mind keeps the feel-good against discomfort. God bless you!
  • Posted

    I have had the same symptoms for the last 3 weeks along with the anxiety just wondering if you have found out anything ?
  • Posted

    Hi there. This is my first time posting. I was diagnosis with VN back in May. My first attack started though back in October of 2013.  My doctor did some tests and said it was labrythitis. She said that will take about 8-10 weeks for symptoms to subside. So during that time I couldn't  even think about driving. It was hard enough just to get up and walk anywhere in my house without the sensation of falling over. My vision was on and off fuzzy, but that cleared up thank goodness after about a month. My concentration was terrible. I was exhausted all the time.I felt totally messed up. But then about December it felt like this laybrithitis was going away. I was feeling very good. So I decided to go back to work in January. I lasted 2 weeks and then it all came back, not as bad but still not enough to continue with working. At this point I could manage going to get groceries and doing chores around the house. Although I was limited too. I was still very tired. I went back to my doctors where she then thought let's get a MRI done. That came back clear. So finally after 8 long months of this annoying dizziness and all the other horrible symptoms that go along with this disorder she sent me to an ENT. There I was told in one hour what was wrong with me, vestibular neuritis. He sent me to a vestibular physio therapist. She gave me exercises that, yes are weird, but they do work. 

    Now it's July and I am 3 weeks into work. Not working finacial was stressing me out and that does not help with the healing process. I know anxiety plays a big role in VN. Like I said I'm 3 weeks into it and am having difficulties with my balance again. I work in the kitchen where everything is time sensitive. I can somewhat keep up, but am having difficulties. I am just wondering if anyone has gone back to work and has any problems or symptoms that have occurred again. If so does it eventually subsided or go away all together or is this something you learn to live with?

    • Posted

      Hi I ve been living with labythrinitus for 6yrs, I started to feel loads better for a few months but was knocked back in march,I just woke up one morning and could not  walk or sit up for two days the first doctor Said it was vertigo the second doctor said was a lab attack, so I m kind of back to square one,I feel like I'd just climbed a mountain only to be pushed back down to the bottom.i was given exercises to do and they do seem to be helping but I m starting to think I m going to have to used to living like this for the rest of my life.i still have anxiety,i get tired,and have a few other symptoms and life is a struggle but I take life day by day now,it has helped that I found a doctor who understood and believed my symptoms I ve spent years trying to find a doctor who would listen to me,it's not a life threatening condition but its an extremely hard one to live with as no one understands how you feel x
  • Posted

    Hi.I too have been suffering with dizziness/vertigo for 6 months now and have been diagnosed by my GP with vestibular neuritis.I have had good days and even good weeks where I am dizzy but can cope with everyday things.The past 3 days have been hell to be honest and I have spent a lot of time when I can sit up long enough looking for help on the net.I am seeking help and thinking of going to a private hospital for a second opinion and maybe seek treatment.Thing is many long term sufferers I have spoken with on the net say that exercises and treatment are a waste of time and money.This is because they say the inner ear is damaged and will not repair itself.They do say that keeping busy and moving about on a good day in time will train the brain and opposite ear to conpensate and become stronger making the condition better and easier to live with over time.

    I hope your condition has gone away or at least got a lot better for you and life is good.

    Jason.

    • Posted

      I would recommend you get properly tested by a qualified neurotologist or ENT that specializes in dizziness to first find out WHAT is making you dizzy. No GP should be able to accurately diagnose you with vestibular neuritis.

      GPs are quite useful for common ailments like respiratory illnesses and minor infections, but if you have a complicated condition that lasts for weeks without abating, see a specialist.

  • Posted

    Hi all

    I have just come across this and i have had Vertigo since the beginning of January, I have an appointment this coming week the ENT , Ihave never ever felt sick but then i am never ever sick at anything,  I havesuffered the anxiety attacks and wanted to get out the supermarket and sit in the car and cry.  This is so unlike me i feel that i dont want to be out for long whereas i used to love browsing and shopping thrughout shops.  When i first got it i didnt realise it was  vertigo until i went to the docs where i was given some tablets to stop the dizziness and the doc said oh we have a lot of people with vertigo at the moment ( great help )  I went back again and had the Eply manoevre done twice which boy oh boy , was the weirdest feeling ever, well 7/8 months on i still have it, oh i did see a consultant at the local hospital who did a hearing test and said it was normal he held my fingers and pulled and also said it was normal.  I feel fine and normal when sitting and forget i have this condition till i get up to move like when i am at work and go to the loo then i feel like its the top and back of my head wobbling, i feel if i could hold my head and walk everything would be normal, i get annoyed and it does upset me and i just want to be back to normal.  Well just taking some noted from the above answers as to what to ask for at the hospital on Wednesday, i will be going to the Derby Royal hope i get some answers as it does get me down and have stopped going walking like we used to at weekends as i feel i cannot do it i feel so uncomfortable.   any more advice and help please  

    • Posted

      Hi,I m so sorry that you are feeling so bad, I have the same symptomsi loved shopping and walking everywhere, but six yrs ago for no reason I started to feel really dizzy to the point of feeling like I was going to pass out.that was the start of my nightmare!!! I ve had every test possible all came back fine, about 4 yrs ago the anxiety kicked in and I am now almost housebound at the age of 45 I can t go to supermarkets,I feel Ill in the car,I to feel weird sitting on the loo,the floor feels like its moving,I could go on but the list is to long.i have been diagnosed with labythrinitis,I am doing exercises that are helping a bit but I feel I have two battles to fight,the condition and the anxiety.inside I m a mess but people can t see that because on the outside I perfectly normal.i know I havn t been much help,but I m finding that talking to people with similar conditions help me feel I m not alone.good luck on Wednesday I hope you get some answers x
    • Posted

      Fudgeybear, I can relate to you and for a while I became a bit of a recluse myself. I didn't go out and made every excuse not to go anywhere. I had all the anxiety stuff too but I realised this was a secondary problem. The trouble with anxiety it will aggravate the vertigo and it hampers the recovery. 

      As time as gone on I have noticed that if I am not stressed, on edge, anxious and not dwelling on if's, but's and maybe's, I am less dizzy !!

      You're the same age as me and you really don't want to be stuck in doors. Try and get out to the cinema or restaurant (any place where you can sit) Baby steps and all that and I reckon some of anxiety will dissapate. Try and have some fun.

      You say you feel weird sat on the loo, spare a thought for us men who have to stand, hold, balance and point......hahaha

      Get well soon !!

    • Posted

      thanks for the replies guys it helps knowing how other people arr trying to cope , yes i felt like i didnt want to go anywhere or if i am out a short while i just want to get back home.  I just want to be back to normal.  I see people mention Stress i have plenty of that ,  have just began a new business and it wasnt going well to begin with due to certain issues but am hoping it starts to become profitable,  also i moved in with my new partner who i have foudn out is up to his neck with debt!!!  yes all i need at this time of my life !!!!!!  i still go out once a month with my best friends for a wild night out and dancing but they remain close to me as i remember the first time i felt like i was going to fall but i so so needed to get out.  Well i am not holding out much hope for wednesday.  Do any of you still manage to hold a normal job down or are you on Sick ? 
    • Posted

      Haha I never looked at the loo situation like that before,that made me laugh.i agree I have noticed at times I do feel a lot better, I take the dog for short walks which is helping me a lot as I get nervous when I m out and about on my own as there have been many times when I ve felt so poorly.i do go to friends houses and the pub now and again. To be honest the anxiety has been worse to get over than the dizziness,I have no idea why it  appeared,but you re right there is no point wondering why,you have to focus on getting yourself out of this nightmare. I am a lot more focused now and I try and laugh at the dizziness. I m quite a shy person and I have always hated causing a scene in front of people,but I m learning that it's ok to be a little different.Thanks for replying its nice to know there is someone who understands.i hope you are well 😃
    • Posted

      haha  see you got a sense of humour Darren guess we need to have with this vertigo. like you say the anxiety aggrevates it.  Yes like you say you need to get out if only its sitting down and yes i cannot walk quick i feel i have to walk slow everywhere, i joke about having a zimmer , it really gets to me as i loved walking in the countryside  and now i cant .

      well darren i hope you dont fall over when you go to the loo wouldnt want you making a mess lol.

      Thanks again for replying

      Sue

       

    • Posted

      Hi just reading your post I had this a couple of years age to be honest I don't think it ever went I feel 90% better now but whether it be pychological or perhaps mentally scaring it still feels like it's in the background more a surreal faint blurry feeling than the full on p**sed like dizziness it was but I also agree with other posts of anxiety and feeling home bound when I was first diagnosed with labrinthitis I battled with the good days followed by bad days I tried exercises reduced spending time on computer as I felt the backlight on screen and my phone used to start me off my real breakthrough was I decided to take each day as it came and try to reduce my stress so to be perfectly honest I just went to work (driver) and did as little as I could get away with and came home and basically cabbaged on sofa for last 18 months like I say I'm not 100%  but im a damn site better I tried to push my self to early and it didn't work its a slow process which can't be rushed I'm afraid for me driving used to take my mind off my labrinthitis it really helped me concentrate on other things hope this helps j fletcher

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