lack of vitamind

Thanks for your reply eileen so you think i should stay on the low dose. Do the side effects subside

Here where I live in northern Italy - where you would imagine sun provided a fair bit of vit D - it is estimated that about 80% of the population is vit D deficient! Our local vit D guru says to take 2000 IU/day all winter at least, preferably all year. I have taken 800IU for the lst 8 years - but I know my vit D is high enough.

However - what I'm really saying is to carry on with AT LEAST the 800 IU and if the symptoms don't improve in a month or so check what tests they did - most GPs wouldn't do a lot of the tests required for diagnosing autoimmune disorders. Don't be fobbed off.

i do have a good doctor i am phoning her tomorrow its just these effects are killing me i cant do anything at all  what is autoimmune

Autoimmune disorders are illnesses where something has gone wrong with your immune system. It normally attacks invading germs or other sunbstances that are not good for us - like pollen in hayfever for example - but for some reason it goes haywire and starts attacking the tissues in your body and causes inflammation and a lot of other effects. 

There are all sorts of autoimmune disorders involving all sorts of parts of the body. Examples include Type 1 diabetes (not Type 2, that is different), rheumatoid arthritis, lupus, vasculitis (inflamed blood vessels), some sorts of asthma and multiple sclerosis - and a whole lot more. Low vit D has been found to be associated with autoimmune disorders but they don't know if it is cause or effect. Fatigue is also very common in these sort of illnesses and so is joint and muscle pain. 

It may not be anything really nasty - but it needs investigating properly by the experts. Usually you start with a rheumatologist.

Thanks for your reply eileen never heard of that will speak to my doctor x

Thanks for replying ruthie just found out today that i cant take vitamins oraly only been on 800iu for 7 days and the reaction has been the same as 20,000iu. Pain was horrendous was makingeverything worse could hardly walk again back in bed again. Doctor putting another plan toether will hear from her tommorow,do have a great doctor.The reason the doctor put me on a low dose was to see my reaction that is how she found out that it was the vitamins i was sensitive to. I hope your sister feels better soon xxx

 

Hi Ranger,

I am in the same situation as you as my vitamin d levels were at 13. My symptoms were pretty bad, I became homebound and at times bedridden. I couldn't take vitamin d3 either, it gave me bad side effects. I only can tolerate 600iu. Plus I take magnesium with it.

I had countless testing done from so many specialist but all test came back negative. So I blamed my symptoms on vitamin d deficiency but my doctors weren't so positive that vitamin d deficiency was the cause.

I suffered for 8 months then a doctor tested my vitamin b6. It turns out I have vitamin b6 toxicity. Just from taking a multivitamin with only 25mg of b6. I stopped my multivitamin and my symptoms have improved.

Please have your b6 levels tested to be safe.

Take care

Yes - I can't emphasise enough that if you have such problems the doctors MUST look at all sides. And if the first one won't listen - try another, and another...

Thank god i dont take anything at all i hate taking any kind of drug of any shape or form do you take anything else what about dietry. I know there are not a lot of foods with vitamin d in them but if you do could you let me know thanks. Waiting on doctor getting back to me thanks for your reply x

 

My doctor is listening eileen thank god for that xxx

Some peopkle dont realise that they are taking these vitamins and they are doing more harm than good shoukld always go through a doctor xxx

 

Oh I see now why, have they mentioned anything about injections to you I was told By a friend that someone they knew received Vit D injections!?

Thank you, I hope you get yourself sorted soon, it's no joke having this problem people don't realise how painful it can be.

I have heard of the injections but it would be the same ingredients in it as tablet form doctor will let me know thanks ruthie x

 

Not necessarily. Tablets are mede using what are called fillers and they vary from one company to another. Some people are fine with one, not with another. Injections don't have the same stuff in them. It may make a difference.

What a nitemare 😟

So basically you have an intolerance to something in the Vit D which is causing an autoimmune response in the body, do you have any food allergies by any chance?

Can I ask what symptoms you had before they diagnosed Vit D deficiency?

It's definitely a tricky one for the doctors to solve in your case, it will be interested to hear how you get on!

tierdness pains in shoulders neck back arms hips legs and feet. dont have any food allergies.

thanks eileen thats made me feel a bit better maybe thats what the doctor will do. dont know anything about all this.

Well you definitely had the horrible symptoms, the injection maybe an option specially if it has a different make up and sometimes a different method of receiving meds can make a huge difference to how your body response to it.

I have also heard people say on this site that there are 2 types of Vit D - D2 & D3, I think my sister is on D2 but I am not sure what the difference is.

I hope they get this sorted soon for you, sounds like you've got a good doctor who wants to investigate and solve the problem which is half the battle sometimes!

Ruth 🙂

will keep you all updated x

HOw is your sistergetting on hope she is feeling better i have had a horremdous time depending on the sun coming out and eating my foods, I have a question did your sister have a burning feeling in her arms and legs x

 

Hi Ranger,

Sadly not very good over these last 2 wks, she went down hill again and we think she got a virus and it's kicked everything off, to the point of having paramedics out because of the pain in upper torso joints, she did go into A&E where they said inflammation and infection markers were raised which indicated a virus but not dangerously, that night they wanted to keep her in but she refused as the care last time was not very good and they blamed everything on flu and that she just needs to get up and move!

We have notice her symptoms change a bit, her joints - elbows, hands, shoulder, neck & knees, are burning hot and flushing red but only on the joints so we mentioned this to her local GP and he has done some arthritis blood tests also as we had said she improved on the high dose of Vit D and has now gone down hill badly he has put her on 20,000iu 1 a week for 8wks to see if that can give her any extra relief.

So back to square one for us!

Ruth 🙄

What a shame i do feel for her i dont get my first blood test done until September as i am only depending on the sun and foods my doctor took another load of blood test this morning she is checking my liver kidneys sodiums levels and another fulll blood count its just the burning feeling so sore oh and checking for in flamation i still think it is all down to lck of vitamin d. i hope so anyway my body cant take much more thanks for your reply hope your sister feels better soon.x.

Yeah we think like you, it's got to be the Vit D apparently it can make the inside of your bone soft and thats the pain you get, my sister said if it was just the legs and arms she could cope but as it's chest area it's a nitemare, the pain and muscle spasms/weakness feels like and looks like she's having a heart attack, she did get her levels rechecked 4wks ago and her levels were 44.

At least they are checking other things in your blood now, it's seems the journey for recovery is a long one for this!

Ruth🙁

I think it wil take a long time doctor cant give me a time limit but at least i knowfor every half hour i get in the sun i get 20,000iu so thats good even with the cloud covering the sun although i think it does need to be at least 15 degrees thats when i feel it on my body no point in staying out longer as it stops producing start again the next day, i know a lot now been studying up on it lol i dont get that feeling in the chest area god i really feel sorry for your sister give her a cuddlle from me. i cry a lot it helps with the pressure i feel building up inside of me. x

 

Hi Ranger,

I was wondering if your symptoms have improved since getting your vitamin d from the sun? As I am trying to do the same as you the natural way. I go out 30 minutes two times a day and won't test my level until beginning September.

It's been 3 months going in the sun and my symptoms are a little better but no big improvements yet. The fatigue has not lifted yet. I know it's probably going to take a year or more for the body to rebalance itself.

Hang in there

i atill feel the same sometimes the pain is worse thats the vitamin starting to get into the body its only been 5 weeks though wont get blood tested until september, I wish i could take vitamins but  itake a severe reaction to them wil uou keep me posted on hw you are doing as you are further ahead than me what was your level at mine was 18

Thank you, I will though I think a cuddle make break her lol.

I know the feeling about research, Iv read nearly every article and forum there is on Vit D lol!

As for the sun my sister does have a widow so she makes sure she gets exposure to it but as we can't get her outside we cant relay on only that, though she has got a tan on one side of he legs so she most be getting some of the good stuff!

We are just hoping and praying the main cause is the Vit D and it's done more damage than expected then with the added infection its just a case of too much, as her improvement on the high dose was amazing so that's got to be a good sign!

Hope you start improving more soon!

Ruth 🙂

I was at 13 ng/ml at the end of November. 20 ng/ml in February. I just might get it tested again this month as vitamin d from the sun stays in our body longer and is utilized more efficiently.

BTW I downloaded D-minder app on my phone to tell me how much vitamin d I'm making and estimates my levels for me. It's a good app, how accurate it is I'm not sure but will see when I get tested.

Yes the bone pain and joint pain is still there but much milder. It will get better.

I will keep you posted.

keep me posted ruth x

thats good to know cant wait to see what your level are now xx

taro did you feel sick at anytime

I have this constant unwell feeling everyday. i dont have the energy i used to. Poor concentration and memory. Headpressure, fuzzy, lightheaded/dizzy. Legs get a weak asleep sensation and arms. Fingers get numb at night.

Body aches, bone and joint pain. Random high blood pressure spikes is so much better now but still dealing with the high heart rate in the mornings.

overall its ups and downs and it plateaus. I havent had great improvements yet.

yes got all them its just that i am taking a cod liver oil capsule was thinking it was maybe that what is making me feel sick going to stop it for a few days see what happens x

did you go and get your vitamin levels checked yet please let me know if you have x

I was supposed to go get my levels checked two days ago but that day I had severe left abdominal pain and ended in the ER. They diagnosed me with kidney stone, which was a red flag to get my parathyroid checked. I will go next week.

After researching I learned that it is very important to know why your vitamin is low. Either you're not getting enough sun or you have a parathyroid issue. Doctors focus on thyroid and often ignore or overkook the parathyroid because it is rare.

I will get my storage and active vitamin d levels checked to see the whole picture of whats going on. I will keep you posted.

I know mine is lack of sun hate being in it if i knew what would happen to me with lack of vitamin d woule have made sure i was getting enough. Hope you are feeling better soon with your kidney stones i know its a painful experience and good luck with your vitamin d levels.

How is your sister doing now Ruthie hopefully better I wanted to ask a question hope you don't mind does your sister get any burning feeling in parts of her body. x