Leave our Forum alone!

Posted , 16 users are following.

It really gets up my nose when people want to change our forum.  There are loads of sites where they can get professional advice/help.

We have become 'friends' on this forum.  We don't only talk about our woes all the time.  We listen, help/advise our fellow sufferers.  We smile with them, we sometimes cry with them, we are 'there' for each other.  It's great that we side-track occasionally.  Why talk about our illnesses all the time?  We have 'fun', too.

Hope you're all having a pain free, happy weekend.

Greetings from C. 💐

11 likes, 43 replies

43 Replies

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  • Posted

    Constance,

    I don't know what this discussion is about.

    I am a recent correspondent, as I found the site in trying to understand my newly diagnosed PMR and early indications of onset of GCA.  I am under the great care of a rheumatologist for the successful treatment of my mild-onset RA which I have had for the last 5 years, so the onset of these inflamatory conditions relates to the autoimmune conditions. 

    There have been some helpful insights gained through reading everyone's correspondences here, although I must admit that I usually have to quickly scan their multitudinous influx as I am still gainfully employed at 65 and stay very busy both with my work and my after-work pursuits of gardening, working with animals, outside activities,  and community development projects. 

    I look to the example of my 96 year-old father who continues a very vigorous lifestyle being a devotee of healthful physical lifestyle and growing his own vegetables year-roound.  I am the only one in our family  (4 siblings all in good health) who has had to deal with health problems like this. Our mother was diagnosed with bi-polar disorder in mid-life and lived until she was 87 in a dependent state at home, under the care of my father and visiting nurses, so the only genetically linked issue in our family that I fear the most has been the mental one (her family history had suspicious cases of suicides and other mental diagnoses in earlier generations).  The education of understanding this condition has given me a lot of insight about keeping aware of the association of brain health.  Dealing with a younger daughter who suffers with anxiety and depression gives me enough to stay on top of, without dwelling too much on my own pains, etc.  I guess I am trying to say that I try to put mind over matter by keeping busy in life, as much as my condition will allow. 

    I realize that not everyone is as fortunate in their physical limitations.  For kicks, I am attaching here a picture of me on my older, but spirited Friesian/Arab mare, who has tossed me off one time too much.  She is enjoying her semi-retirement on a nearby farm with several geriatric pasture mates.  Yes, I have decided that it is not healthful for me to continue with that lifelong pursuit of equestrian achievement!!

     

    • Posted

      That's it,  You've just joined the 'club'.  You've side-tracked (last paragraph). 👏🏻👏🏻
    • Posted

      Lots of us like this sort of distraction - but some don't. It takes all sorts and there are all sorts here.

      She's lovely - but what's her name?

    • Posted

      Daffodil!  Born in February 2000 when my daughter, whose favorite garden flower is this harbinger of spring, found the mare had delivered under a cedar tree in our pasture.  I had not suspected her breeding had been successful and it was a wonderful daffodil-time surprise.

       

  • Posted

    I was not aware that anything was going to be changed, what have  I missed?
    • Posted

      It's not going to be changed, we hope.  There were just a few comments that got my back up.  All sorted now and we have a new member in our 'club'.
  • Posted

    Hello constance, with you 100per+This forum has seen me from being none mobile & 15mg of pred down to ZEROpred, touch wood.with out it i would have been in stuck.I  can live with Gavison add on the side.as the old saying goes;; if it aint broke dont fix it;:Thanks to you mainly Girls i have spent a super day out with the family. a couple of pints of Real cider. Hence the gobldy gook.Thanks to one and all and stay well Dave
    • Posted

      Cheers - because that is what life with PMR should be about: enjoying what we have rather than worrying about what we have no longer got. 
    • Posted

      Happy Fathers Day David, how wonderful to spend the day with family and be feeling well.  Going to a BBQ at daughters this afternoon and think I'll go pick up some cider to enjoy on the sunshine☀️😎🍻.

      You're a great inspiration.

      hugs, Diana🌸

    • Posted

      I take methotrexate and plaquenil for my RA, in addition to the recent addition of low dose Rayos (pred 2%) for the new arrival of PMR symptoms on top.  My Rheumatologist advised me not to drink but I occasionally may sneak a glass of wine when in a social situation and it amounts to maybe a glass of wine or a margharita once or twice a month.  I suppose she was covering the bases in case I should have a tendency to overdue--which I don't.  Comments???

       

    • Posted

      Here's to your "sneaking".  🍷🍸.   A lot of us imbibe a little (I said "a little").

      Cheers!

      C.  💐

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