Leave our Forum alone!

And on that note, hubby and I have just spent a lovely afternoon at our local National Trust, listening to trad jazz on the lawns. The sun was shining too. This was preceded by a nice lunch at a local pub. Lovely day! :-)

Cheers to you Eilleen & the rest of the T/Shirt brigade,i have just been out in my small garden making the most of the longest day.with the info taken from this and the two other Forums i hope i have cacked it.So please keep up the good work. Best Wishes to One and All, Dave

Sorry folk i have put my foot in it again computer say no.just to say thanks to Eilleen&Co. Dave

The usual etiquette on forums is to make responses that pertain to the subject header. If someone wants to chat about peripheral or other matters, a new topic should be started which clearly states this. The reason for this boundary is because, when an unwell person is searching for an important topic on google (or other search engine), ratings are extremely important in finding pertinent information. Rare symptoms, diagnoses and medications are difficult enough to find and having found a link to their search topic, the seeker wants information and contact about that topic. If they find chat (which is fine in its place) when they are wanting something more focussed, they will go elsewhere, such as to google groups for instance. Who says whose forum this is anyway? The forum should be available for anyone who wishes to use it if they have either one or the other illness, without discrimination. However, the topic at the top of the page should be adhered to out of courtesy for people who are seeking information about what could be a painful, disabling and potentially life threatening illness. If information seekers are needing to read thousands of words which dilute the topic, Patient Co Uk will very quickly lose users of the forum.

Evening misdiagnose, I dont think folk set out to confuse the post, but i think a lot of people are not computer savvy + pmr & pred brain can make us a little bit ???. It just takes a little bit of patience & we get a result.today this post is about fellow sufferers having a chat, can not be all bad in my book.Take Care. Dave

A question for Constance6632: Where are all these sites where professional advice/help can be received?

Anyone seeing this headline will not wish to join the forum. Many people are trying very hard to increase awareness and knowledge of PMR and the rarer and more serious condition of Giant Cell Arteritis. This site is the highest rated on google so the first that new sufferers with these conditions will look at.