Leg and feet pain

Thanks Bron. I'll try that

my wife says that about me to or sometimes calls me john wayne and it does make me laugh but i hate falling over and the pain i suffer afterwards is horrible i cant really handle it and i end up crying in pain and i have had more bruises thean i have ever had to but good advice try that and try anything else you can think of as im sure you will eventually find something that works for you pam81968 good luck and how are you feeling janet x

Hi Derek. How are you today. I went to the GP this morning and she has stopped my statin again. Told me I need to go back and see her in a month, to let her know how I am feeling, need to leave it this long to make sure the statin is out of my system. If I'm no better then she will refer me back to the hospital. All good fun. Take care and have a good weekend.

im not to good i cant cope with the pain i over did for 1 day and im in so much pain and feel very low at the moment and cant handle it at the moment i was going to go out wive my wife this weekend for a drive so i can see something different then apart from the same 4 walls but im going to have to wait till next weekend as im in to much pain and im exhausted and very run down my body feels like i have been hit by a truck and theres no way i will be over doing it again x

Hi Derek. Sorry to hear your struggling so much. We all have problems with over doing things, it's easy to say don't do too much than it is to do it. I always try to do to much then I can't do anything for days after. I did the shopping today and that was me finished for the day. You may feel better in the morning and be able to go out with your wife. Take care and gentle hugs

im awake now in the worst pain ive ever felt and cant handle it dont think i will be getting out this weekend will be bed bound as usual i feel useless and very low at the moment im not feeling sorry for myself but i just cant cope to good with it if i do something for an hour then im in bed for days even just getting up to go to the loo is a struggle and most of the time i cant make it due to falling over and fatigue and end up wetting myself its going to take time to get use to this but coping with it will take a long time im trying to be possitive but when something good comes up fibro finds a way to turn things into negatives i just cant win and dont know how to deal with this its all to much to deal with plus im getting chest pains and been told it could be costocondritis and its scary as i thought earlier that i was going to die as i thought i was having a heart attack but was told its possibly costocondritis and its commen with people who have fibro its making me depressed i have tried everything to help ease the symptoms but im getting nowhere i just dont know what to do anymore x 

Hi Janet, am just catching up on some of the inputs, and noted that you have had to "stop taking your statin" for awhile.....what is happening that you can't take the statin?....I know that some have problems, as it decreases our energy levels, and also interferes with absorption/digestion of some important nutrients/cell activiity....this I found was relieved by taking an enzyme called CoQ10....research/literature tells us that we should take same with any statin, to countearct the effects of a Statin....does this sound like you/something completely different...I know it has an issue with balance, but this, too, can be aided with the CoQ10 enzyme.....when I had a break from the enzyme (ran out)...I found my dizzy spells came back with a vengence, so am back taking the CoQ10 again, and feel it's settling down.......Bron

Hello Derek;  I've just been trying to catch up with latest inputs, and have just read your last....but cannot find any earlier of your's?   You say that you are "finding it ALL too much, ...not getting anywhere...don't know what to do"....can I be a pain and ask what treatments/medications that you take (if any), and how you are responding/how long you have been on them?   As you may find, as have others, that when we go through what we are doing/taking, we can come across others' Success stories....do you feel like telling me what is going on for you, and see if I can add something for you to trial?   Even a debriefing may help, as you Really sound like you are at the end of your tolerance...................Bron

Hi Derek. I'm sorry that you are in so much pain. Cruel to be kind, You cannot give into fibromyalgia. It is a fight every day but you need too keep going, think of your wife and child. If you are concerned about your heart don't let anybody fob you off. Ask them to send you for an ECG, this is a tracing of your heart and can help to rule out whether it is a heart attack. Speak to your GP who should be able to refer you for one of those. If he can't you can always turn up at a&e. I think that we all get fobbed of a bit and everything we get is put down to the fibromyalgia. I never plan any outings it is take each day as it comes. Are you taking anti depressants, if not you may need to speak to your GP about taking some. Mine told me that occasionally everybody in chronic pain needs a little help. Take care and gentle hugs x

Hi Bronwyn. The statins make me extremely sore. My GP says that the simvastatin I was taking in January has loosened the muscles around my hips, this was after it was increased to 40mg by the practice nurse. I have been on and off atorvastatib since March. I take the CoQ10 a vitamin B complex and magnesium that I purchase myself. Now off statin again for a month, then go back to GP. Take care and gentle hugs

im in less pain now but have lost most of the day its more likely to be costocondritis thats causing the chest pain plus its commen in people with fibromyalgia its not easy to deal with the pain i was in it scared the hell out of me and i will get my doctor to run tests for costocondritis and have an ecg just to be onn the safe side and the only reason i have been asleep for so long is the pain rendered me unconcious its upsetting to cause it scared my wife and that hurts me more seeing her upsert and that makes it harder for me to handle it

i have had this since i was a child but was only diagnosed a short while ago i am on amitriptyline and have been on that for over a year now and the pain has become much more progressive its even in my chest now which is new and i have been told it may be costocondritis as it commen in people who suffer from fibro i had the chest pains really bad yesterday and its like it mimics a heart attack but its inflamation of the costo bone at the front of the ribcage and the ribs as well but im still in pain but its in my back and arms and legs at the moment but seems to be slightly easing and i did over do things the other day and it seems to happen if i over do things so i need to slow down but its easily done forgetting im not who i once was and thinking i can do things still when i cant i am going to see a psychologist to help come to turms with things and to help slow my self down and the treatment is just being disgussed by my doctor and rheumatologist but thats the only meds im taking at the moment i was so scared yesterday but my wife just thought i was asleep and did not witness i was in that kind of pain otherwise she would have called an ambulance to be on the safe side you see she was in the bath and i called her name but could not get a response cause it was like a wisper so she did not hear me and i passed out and woke up not to long ago i am just resting up over the weekend now and just making sure i keep my panik alarm with me so if it happens again i can pull it so my wife knows i need help if shes in another room

Morning Derek; yes, I think seeing a Psychologist is a good idea....it is "hard" accepting any change in our health....and we have all had to do this....I, too, spoke with a psychologist, mainly to ensure it was Real, and not in my head, quite a few years ago, and have also seen same last year, when i felt myself "getting over-loaded" again.  As to your pain-management, although you are taking Amitriptytilline, what dosage, as most only start on 10mgs, but as the pain increases, we have to keep increasing our doses (upto 75mgm, normally with a drs advice/guidance)....as you have probably read, most of us, also take other meds, too....for me it's Gabapentin....others use Cymbalta, Lyrica....and valium for muscle spasms...and then we have Natural vitamins, like Magnesium (if you can find Bio-magnesium..it has other vitamins added which are also beneficial)....Yes, too, we Do need to learn to Pace, as for me, all it takes is to drive to get my prescriptions filled, and I'm back to square one...even what I could do 2 months ago, is not possible today....there are days that I think" stop B you are just lazy", but I know this is not the case....it is just not posssible....would you believe me if I told you that I cannot even have a conversation, without having Severe Pain in my facial muscles, that I require Endone....no..I don't think anyone does....but it is true....and this has been only in the last 6 months of my journey from nearly 20 years ago.....what I am trying to emphasize is that "the more Stressed we let ourselves become, another part of our body goes"...this result came from moving house, as we thought that by "down-sizing", I would cope better with the household chores.....well we havn't achieved anything....so speak with your pshychologist, talk to your GP and Rhuemy and find ways to manage your pain....also make a Lot of use of a Good Physio who understands Fibro....it is also a necessity for me.....good luck....Bron

Derek;  I think it's time to start realizing that Most of us have ALL the symptoms that you are experiencing....my Osteo-condrites started in the 70's....and after a while you will learn how to cope/what works for your pain....try Hot Packs on your chest with some menthol rub (I use a form of Dencorub that has an Aspirin-like additive" that is Very good for all pain/muscles....there really arn't ANY tests for Fibro..just Ruling out of other conditions..and if you have had your heart checked, and came back negative, try hotpacks/rubs.....you alone, are the only one who can manage your pain....it is part of being "self responsible for ourselves", which is relevant to all areas of life (including any work site)....please listen to others as we are all here to help each other, not to be lectured....Bron

morning Janet; am wondering how your Cholesterol reacts to having to have a break?   I actually don't really worry too much, as for me, my cholesterol is the least of my worries......just know that my sister was not allowed to keep her driver's licence if not taking her's...she had been trialling Natural remedies..but her GP "cracked a tantrum"  (that's what I called it)...but don't let him hear that).....I've had no trouble taking mine, so just add it to the list.....my family has hereditary LDH....so don't think it's going to make a Big difference anyway???? yes also take all the others that you mentioned....they say that the statins decrease our energy levels in the cells. (just another decrease in Energy.to add to the list ....)...so hence the extra CoQ10 too.....my husband says "I own the chemist"....probably do....can't wait tfor the day that I can be elligible for a Health-care Card....I think hubby works to keep the chemist open.......hoping your weather patterns are better than ours'....we are getting wind blasts from the Artic......b...cold.......Bron

i know and you are right but its just been hard to deal with and i used to be active but i have lost my mother in law and have not grieved yet so grieving for the person i once was kind of got in the way of that i have had nothing but bad news for weeks and it would be nice to hear some good news for once plus i do need help and the only people who can help is my doctor and you guys have you guys have a better knowledge than i do at the moment so dont think for 1 minute i think im worse off cause im not we are all in it together and as you all have a better knowledge then i do any advice you all can give is well appreciated and i thank you for those tips however i have tried and heat does not seem to work but im going to see a psychiatrist to help with ways i might be able train my mind to help cope with it and to help with depression

how have you coped with it for that long cause its not nice and believe me i do care about others and i would love to know how it affects you and for me its been hard due to loosing my mother in law so please bare with me as i have not started grieving yet due to fibro getting in the way but your advice is spot on and most appreciated and seeing the psychiatrist will help me learn to live with it and to start grieving over my mother in law plus my mobility is not good as my left leg is to week to be able to walk i keep falling over im interested to see what other people have to go through and how it affects them and what they do to get by ect as i find its helped me a lot today 

Morning Bronwyn. Like you I have familial history of raised cholesterol. When I am off them it bounces back to pre treatment levels. Practice nurse told me off at diabetic review for messing about with my statins, GP on Friday when I told her said to tell the nurse to come and shout at her instead of me. Hope you have a good day. Take care and gentle hugs

Morning Derek. I'm sorry if you took yesterday as me having a go and lacking in sympathy. I wasn't. I think it is a good idea for you to have a really long talk when you see the psychiatrist he may give you some antidepressants, if he does don't expect miracles from them straight away they can take up to a month to get into your system. Hope today is better than yesterday. Take care and gentle hugs

its ok its just been so hard to deal with it the past few days the pain has been at its worst it was unbearable and made me very tearfull plus not being able to grieve over my mother in law has made things worse i know you was not having a go but remember this i do care about others to and know im not the only 1 we are in it together but we are also individuals and handle things differently and for me its like going into the unknown and i dont know much about it and even though i have had it for years but recently been diagnosed im pretty much in the dark about it i have researched about it but only for a short time as my hands hurt like hell so what info could you share with me if you would not mind sharing

Hi Derek. I think that when you see the psychiatrist or physcologist please be brutally honest with them, it does help in the short term.

I haven't really found a lot of info. Most of the info I have found on the internet is from America. It appears that we all suffer with different symptoms and we can start with one or two and it progresses. We can get flare ups which work similar to arthritis in that respect, then it can go into a type of dormant phase, but will still leave us in pain, but at a level which we can learn to cope with. My former rheumatologist told me if I had come to them in 10 years thay would have known exactly how to treat fibro. That means we only have 7 years in August to wait. I was dignosed with fibro in 2012, but the rheumatologist decided in January 2013 that I had been mis-diagnosed in 2008 and that instead of serum negative inflammatory arthritis it had been fibro all along, so I have had it now for 7 years and I am still learning about fibro. It is so hard to cope especially if you are in pain all the time.

Do you take anything other than amitriptyline You may need some strong pain killers.

Your rheumatologist should be able to prescribe something for you or can send a letter to your GP suggesting something for you.

I hope you feel better tomorrow.

Take care and gentle hugs  

my doctor is not really very supportive and does not really understand so im trying to move to another surgery cause he just does not like giving out pain killers but i do need stronger 1s and im in  constant pain and its unbearable and makes me ratty most of the time but i dont take things out on others though and i have put up a comment on my discussion about my past so it will explain a lot but my doctor is useless and does not have all my medical records and has not looked at them at all so i feel like he just dont care plus the rheumatologist wont prescribe me anything he said thats down to my doctor so im not getting much help from them at all i will be better later hopefully cause i have had plenty of rest how ever i over did things a few days ago and ive been in bed for days thats how bad it effects me so i should have listened to people who told me to slow down but im an idiot to my self i did not listen so i paid the price but thats just 1 of lifes mistakes wand i have learned my lesson anyway im off to bed now to get more sleep as only had just over 3 hours sleep catch you later my friend and hope you are feeling ok to just like i hope everyone else is x

evening Derek;.....am wondering if you may get more help from a Psychologist than a Psychiatrist.....I have tried both.....the psychiatrist was too "above my head"....told me It was all in my head....such pain didn;t exist....etc, which of course made me Angry, and thought "bugger, I'm hopping back on theRoller=coaster again"..so got off, and made an appointment with a Psychologist, who specialised in Fibro....this was a Much better move.....she understood/validated my feelings/experiences/causes etc......they cannot prescribe a wide range of meds....but what I feel that you may gain, also, is learning CBT...a process of helping your mind to Cope wth the Pain...it doesn't "tell you that you don't have pain....just means/ways of coping....I have also noted that you don't feel comfortable with your GP/Rhuemy....it maybe different in the UK re what the Rhuemy does re prescribing pain relief....but here in  Aussie, it is my Rhuemy that does the prescribing, originally, and then lets the GP know what they have prescribed, and then followed on by GP ......any forms of medication, as it is the Rhuematologist who studies/knows (or should know) what ALL  the latest medications/treatments are.......MY medications include Amitriptylline 35 mgs per day (can increase upto 75 if needed..but have never had that much); Gabapentin 400mgms twice daily, Osteopanadol 2 x 3times per day, valium 5mgs when required, and Oxycontin 20mgsms twice daily....the Amitriptylline works as an anti-depressant and pain relief for the Fibro.....others find Cymbalta has the same result (but for me it just made me Cry more, for No reason), and Lyrica is sometihing that  can be used initially...however; it too, did not help me.  I also rely very much on my Physiotherapy for muscle relaxation  (the Knotted muscles is one of the reasons that we suffer from Muscle Spasms, and Back pain)....so a good old workout by the physio/massuer is also very helpful....hoping this gives you something to work on.......others who are worse off than myself, have included the use of house-hold aids....as others have mentioned....the walking stick has come in handy for me as do the hot packs with a rub in of a Linament/Dencorub (one that has an aspirin-like additive)....also if you start to take Magnesium Tabs (Bio-Magnesium has other essential vitamins....such as Vitamin D, E and C)...and use of Epsom Salts (Magnesium) baths help to loosen the muscles....For the crampy legs, I wear TED stockings to bed, which increase the circulation..although we are not told re the circulation, I have found this has solved my Numbness/Tingling of extremities....also TUBIGRIP can be used for same....arms if they bother you....both can be bought from the Chemist/Physio.........there added more than I thought....let me know how you go.........................Bron

im seeing a psychologist as from next week and have spoken on the phone and i went into detail about my childhood and he said theres nothing wrong there and said i wqs strong back then and he will help me bring some of that stength out so i can use it against fibro im looking forward to it and corse i will keep you posted how are you today x

Hi Derek. I'm glad you have your appointment. It will so help you if they can find you some coping strategies to deal with the pain.

Take care and gentle hugs

thanks that means a lot and same to you x

Morning; sounds very positive.....will hear from you soon....Bron

hope your ok im not to bad as been resting all day still have a lot of pain but its slightly bearable how are you x