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LET'S HAV SOME FUN !!!! JOIN ME....

Posted , 10 users are following.

hope4cure
hope4cure

TOP TEN WORST SUGGESTIONS or COMMENTS GIVEN TO SOMEONE WITH CHRONIC ILLNESS..

1)  biggrinarrowAre you sure it's not in your head?

4 likes, 48 replies

48 Replies

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  • alialialiali
    alialialiali hope4cure

    Posted

    "it's normal to feel like that on a Sunday"

    was a personal highlight for me.

    • hope4cure
      hope4cure alialialiali

      Posted

      I thought it was Monday thru Friday...u get 5 giggles...for that one...

      that one made me LOL. cheesygrincheesygrincheesygrincheesygrincheesygrin

      THANKX FOR THE GIGGLE...

  • sunwyn66141
    sunwyn66141 hope4cure

    Posted

    How about "you need to get more exercise"?

    Not only have I gotten that I read just recently on another forum a comment from a woman who said that doctors said that to her husband.  

    He has been going to a famous clinic for FOUR YEARS with weakness, pain, etc.  Guess what the real problem was?  Prostate cancer, which has spread to his bones.  All the time he was going to this clinic he had cancer growing and spreading.  Now it is too late to do anything about it.  

    It seems that when the body targets cancer it can get confused and attack normal cells, such as muscle cells, as well.  THAT is what was causing his weakness and pain, not lack of exercise.  

    Obviously I don't have prostate cancer but I am really going to ask by doctor to check me over next time I go in.

    Good luck! 

    • hope4cure
      hope4cure sunwyn66141

      Posted

      Sun, cheesygrin

      Luved UR story.. THANKX.. It really hit the head on the nail.. Let's not be so judgemental & make snap decisions. This proves not all symptoms are alike...  Whoever happened to gathering information . Blood tests urine tests the whole 9 yards go for it..a yearly deal and lesson for us all....!

  • chonny
    chonny hope4cure

    Posted

    Maybe you should do some exercise!
    • hope4cure
      hope4cure chonny

      Posted

      I'd respond u want a join a gym? U can go for me every week. biggrin
  • rachh
    rachh hope4cure

    Posted

    We all get tired, you need to just get a good night sleep..

    From my dad who also says..

    You need to get out more, get some exercise and start being more positive. 

    • hope4cure
      hope4cure rachh

      Posted

      rach.

      Well then I should be cured by now. question

  • sunshinemb
    sunshinemb hope4cure

    Posted

    Quote..."Now listen, nobody and I mean nobody gives a sh*t, so get your lazy

    ar*e out of bed..NOW!!!... My now ex husband...bless him!!frown

  • JulieBadger
    JulieBadger hope4cure

    Posted

    Can't you just ignore it?

    Are you sure?  You don't look ill.

    smile

    • hope4cure
      hope4cure JulieBadger

      Posted

      Julie,

      Alrighty then it's just that simple.. And to think I've spent a fortune on prescriptions! And a facelift too!  eek

  • JulieBadger
    JulieBadger hope4cure

    Posted

    2) There's no such thing as ME/CFS.

    3) We all get tired!

    Personally, I've been thinking that CFS could be renamed to CES (Cronic Exhausion Syndrome). I hate the word 'fatigue' it doesn't sound anything like how bad we feel. I tend to always use ME because it sounds so much more disabling than fatigue and opens up the idea to all the other symptoms we suffer.

    • hope4cure
      hope4cure JulieBadger

      Posted

      Julie,

      To bad there's such a thing as "A Know it All".. I think I've met them all. YEA  like there was no such thing as FM ten years ago now it's a ligit illness and my Rhumy specializes in treating it.. La La La La- aaa! 

      I know we could call it TB.... Tired Bum syndrome...cause I'm really tired off sittin round and sick & tired of being sick all the time..I would luv to travel! Who wouldn't ? biggrin

       

    • JulieBadger
      JulieBadger hope4cure

      Posted

      Just come back from holiday. Travelled 1.5 hours by car each way (extreme pain after 1hr - have Fibromyalgia too). Out of the 7 day holiday I managed 3 of the days going out with the family travelling max 40mins each way.  Wonder how long it would take me to see the world? rolleyes  
    • hope4cure
      hope4cure JulieBadger

      Posted

      Hi Julie..

      Don't drive...travel on a cruise ship.. It has a bed / rest and lots of spas for massages... cheesygrin

    • JulieBadger
      JulieBadger hope4cure

      Posted

      If only I didn't get sea sick (even when it's calm) that's my Functional Movement Syndrome for you.  That's of course another thing that's all in my head for you (thing is they're right).

      Think I'm stuffed really until ... I get better, I get over it, I work my way through it, just get on with it or forget about itlol

    • hope4cure
      hope4cure JulieBadger

      Posted

      Hi Julie,

      me too! I get motion sickness and practically fall over from watching a 3-D movie.. It's from to much swimming younger.

      everyone says oh it's just swimmers ear. I had that when I was younger. Well that makes it all OK since she had it and it's gone....cry

    • JulieBadger
      JulieBadger hope4cure

      Posted

      You could try looking up Functional Movement Syndrome? I have a set of other symtoms due to it but I have just been offically diagnosed.  The specialist said that it isn't uncommon with ME/CFS suffers. However, the specialist ME/CFS department didn't recognise it as part of ME/CFS. In my case it's nothing to do with lots of swimming (although I did alot of it). It's another situation of the nervous system being miss-wired.  Which then shows itself when I'm over tired & over stressed.  neutral  So if I could get rid of the ME I'd be alot better offexclaim
    • hope4cure
      hope4cure JulieBadger

      Posted

      Julie..biggrin

      Ok I will. THANKX..I will look on line FMS.

      It's a another good one like u still got?... It's almost like saying...Hey we want to live in miserable pain..yep we stll got it &'it just moved in & won't leave. Like we have any control over a cure...rolleyes

      In today's society it's so easy to become over tired and over stressed. 

      It doesn't seem to take much for me any more. The ring of the phone..or the dogs bark, really startles me and hurts.  Do u have any pets?

      Some people r sensitive and more vulnerable . Im a creative type said to be overly sensitive.

      Lost track of the number on the top ten list.

      #?)So next time someone says ..."Ah UR just being overly sensitive".exclaim

    • JulieBadger
      JulieBadger hope4cure

      Posted

      A couple of cats who love to test me on my catching skills of mice and birds.  A couple of children who love to stress me out - even though they really are good kids. A husband who is very supportive although does need to work full time so can only do so much.  Also I'm self employed (creative one) and don't know how to stop working.  So yeh, I'm one of those stressed out sensitive ones who can find anything and everything to stress about.  I'm controlling and have an opinion about everything, then stress about what others think of my opinions.  One of these days I might even work out how to do that pacing thing.  Failing so farcheesygrin!
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