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LET'S HAV SOME FUN !!!! JOIN ME....

Posted , 10 users are following.

hope4cure
hope4cure

TOP TEN WORST SUGGESTIONS or COMMENTS GIVEN TO SOMEONE WITH CHRONIC ILLNESS..

1)  biggrinarrowAre you sure it's not in your head?

4 likes, 48 replies

48 Replies

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  • sunwyn66141
    sunwyn66141 hope4cure

    Posted

    Hi!

    About two months ago I got a home visit from a nurse who works for the insurance company.  She was running late and in a hurry so that may explain her refusal to listen to what I was trying to tell her, but it does not excuse it.

    She took all the vitals and such, and then when she got to stregnth, she just said "You look strong to me" and went right on even though I was lying on the bed trying to tell her that I was extremely WEAK and could not even stand or sit for more than a few minutes without support.

    Argh!  She sent a copy of her "report" to the clinic and the doctor just said that it was useless, it had no relationship to reality.

    So here is the person who is going to tell the insurance company, which is paying for all these tests, that she just GLANCED at me and I "looked strong."  If it is possible for a nurse to tell what problems I have with a glance why have I been going through all these tests for the last three years?

    ECG, EMG, MRI, X-Ray, CAT scan, ultrasounds and dozens of blood tests, and she wasn't interested in anything except that I "looked strong."

    I figure that in the next 6 to 12 months I will have to move to a nursing home or get a motorized wheelchair.  It's going to be tough enough without having to fight the insurance company because their nurse wouldn't LISTEN to me.

    Good luck!

    Sunny

     

    • hope4cure
      hope4cure sunwyn66141

      Posted

      Sorry Sunny...

      i just oust don't get their obstinance and  either. . The UR supposed to follow protocol not turn a deaf ea on their patience. Clearly she's in the wrong profession. I hope u get the proper care soon.. Just done five up. Sometimes your voice needs to be heard. A letter to the administrator will be a good start.

      hoe u feel better soon. This betting well is such a struggle. Stay strong. 

      There will be a day in a few months when pain will only be a memory. 

  • helen70967
    helen70967 hope4cure

    Posted

    One that really gets on my nerves is when I'm clearly struggling more than usual and one of my friends turns round and asks me if I'm 'aching a bit today'. No I'm not aching a bit its called pain and it doesn't get down to an ache at all.

    Rant over.

    Helen.

    xxx

    • hope4cure
      hope4cure helen70967

      Posted

      Excellent rant! And I'll be happy to join you!redface

      Sometimes it's not what they say it the tone and judgemental attitude they say the stupid things.  Sometimes ya just gotta laugh... What goes round comes round! biggrin

  • sunwyn66141
    sunwyn66141 hope4cure

    Posted

    Hi Helen, 

    Maybe you should say what I told the doctor at the pain clinic today: "I wake up every morning feeling like I've been beaten with sticks, only lately they've been using bigger sticks."

    Good luck!

    Sunny

    • hope4cure
      hope4cure sunwyn66141

      Posted

      My sticks are bigger than urs! Lol

      i hope u feel better soon. Sometimes I wake up so sore I'll take a couple of Tylenol then rest a bit more . Then after 20 min most of the time I'm not quite as stiff and sore. It really makes a difference. Then off for am coffee with a smile on my face instead of the grump face. Isn't it funny how our faces give us away. I could still be smiling / hurting and my partner will say. U look a little stiff this morning.... UGG,rolleyes

       

    • debbie02705
      debbie02705 hope4cure

      Posted

      never read any of these before , they do bring a smile to my face , im NOT alone ,saw a gp with my OA , about 6 months ago he told me that i was a long long way away from treatment , this is all in your head go home and do some exercise and sort it out . 6 months on and im 4 weeks post opp ,from my 2nd TKR , the consultant saw my mri report and said they need doing ,i was in his opperating room 2 and a half weeks later and again 4 weeks ago ,then to top it i lost my esa 5 weeks ago because i was fit for work , has any one seen the questions you are asked ?
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