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Levothroxine increase to 125mcg but TSH level increased?

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JamieR
JamieR

Hello, thought i'd join this forum as I wanted to gain some extra knowledge on my thyroid condition. I'm a 22 year old male and was diagnosed with an underactive thyroid in August of 2015. Below is a copy of my bloodwork, however due to leaving for uni I lost a few test results inbetween my 50cmg and 100mcg dosage increase. 

19th August 2015 - TSH : 6.6 miu/L - Original diagnosis, no medication.

15th October 2015 - TSH : 3.79 mu/L - 50mcg Daily

18th Febuary 2016 - TSH : 2.84 mu/L - 50mcg Daily

25th October 2016 - TSH : 2.68 mu/L - 100mcg Daily

06th Febuary 2017 - TSH : 2.57 mu/L - 100mcg Daily

04th August 2017 - TSH : 2.34 mu/L - 112.5mcg Daily

14th November 2017 - TSH : 3.71 mu/L - 125mcg DailyWhen I was at 100mcg I still felt tired and fatigued all the time, couldn't sleep well, woke up tired, lost outer third of eye brows etc. As a result I decided to take 112.5mcg daily without a doctors consent, this brought my level down slightly but not enough I didn't feel. I finally went back to the doctors and explained how I was feeling, this was about 7 weeks ago now. He upped it to 125mcg daily as can be seen. Though my concern now is that my TSH level has increased?? I think I feel slightly better however but still room for improvement. Any ideas on whats going on / what to do next? Thanks.

0 likes, 38 replies

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  • JamieR
    JamieR

    Posted

    I forogt to mention I am on Levothyroxine.
    • Ebonyevans
      Ebonyevans JamieR

      Posted

      Levothyroxine is T4

      Liothyronine is T3 for reference to my below post. T4 needs to convert into T3 to be affective in the body. Some people can do this but some need help. You may not be there as yet. 

      Also have you got your antibiodies results? If you carry high antibiodies you have something called  Hashimotos.  To lower your antibiodies you need to adopt a gluten free diet. 90% if hypo sufferers are Hashi. Named after a famous Oriental doctor who discovered the condition. 

    • JamieR
      JamieR Ebonyevans

      Posted

      Im not sure what antibiodies are? I always wondered if i was gluten intolerant as before i was diagnosed i tried a gluten free diet for a few months and swear i had more energy. Though I had a blood test that said i was not gluten intolerant.
    • Ebonyevans
      Ebonyevans JamieR

      Posted

      Ask your Gp for an anti Boodie’s test then post results. 90% of people with thyroid issues are Hashimotos. Basically gluten contains Gleason - which is a protein. It’s thought it triggers autoimmune attacks. If you felt better on gf younprobaly are. Gf will lower your antibiodies considerable. Be careful with cross contamination at home re toasters, chopping boards etc. You don’t need to be gluten sensitive or have Coeliac disease. 
    • JamieR
      JamieR Ebonyevans

      Posted

      Thanks i will do that and post asap. I have a doctors appointment tomorrow morning! Anything else I should ask?
    • Ebonyevans
      Ebonyevans JamieR

      Posted

      Fast tonight. Just water. Take your T4 after your bloods are drawn.

      Are you on supplements and vitamins. Ask why he hasn’t suggested any (Selenium, Vit D, b12,etc)

      Have your ferritin, folate and iron been tested.

      Ask why your TSH has risen. You could ask for a referral to an Endocrinologist. Also if they test for T3. 

  • Ebonyevans
    Ebonyevans JamieR

    Posted

    Do you have your FT3 & FT4 results? Please post. Are you taking supplements. I’d so which and what dose. Have you had your vitamin levels checked? Folate , ferritin, B12, Vit D etc? 

    It could either mean you’re not converting Well and need T3 Liothyronine or your supplements are optimal. The latter is usually the case. They are very important and compliment Levo well. 

    • JamieR
      JamieR Ebonyevans

      Posted

      I did originally back in 2015 get those t3 and t4 checked but never since. I take Biotin (though not for 2 weeks before my blood test), omega 3, Vitamim D, and a multi-vitamin. The multi-vitamin does include 50ug (100% NRV) biotin which i did take the morning before the test. Not sure if that would make a difference? Iv started the past few months to eat a hand full of brazil nuts each morning also as that is suppose to increase the t4 or t3 conversion if i am correct? My diet isnt too bad, i dont typically eat junk food and i go to the gym 4 times a week.
    • Ebonyevans
      Ebonyevans

      Posted

      Also you should at least be on Selenium 200 m/l
    • JamieR
      JamieR Ebonyevans

      Posted

      My understanding is that brazil nuts contain this and my multi-vitamin does also.
  • dave64969
    dave64969 JamieR

    Posted

    Jamie,

    to answer your specific question about your TSH: the fluctuations you’re seeing are probably within the range of day to day ups and downs and depending at what time of day the blood was taken, so I wouldn’t read too much into them. As you are I’m sure aware, your TSH is in the “normal” range’ so getting T3, T4 and antibodies tested would be a very good idea. What was your TSH when you were first diagnosed?

    • JamieR
      JamieR dave64969

      Posted

      im aware that it van flucuate although my my tsh had been coming down nicely until my last test where it jumped back up about 1.5tsh. My original tsh was 6.6 as shown in the first entry i posted. Not massively high compared to some iv seen on the internet although i was very fatiged.
    • Ebonyevans
      Ebonyevans dave64969

      Posted

      Bloods should be taken at the earliest appointment time. Fast the night before. Water if fine. Do not take your T4 dose that morning as it gives a truer picture of how your FT4 is functioning. Take it straight after. 
    • JamieR
      JamieR Ebonyevans

      Posted

      I should mention I take my medication last thing before bed around 11 or 12 pm. I stop eating at 9pm every night.
    • Ebonyevans
      Ebonyevans JamieR

      Posted

      Not an issue to miss a dose every now and then. Once a year is fine. Especially for blood tests. 

      Taking them then might be whyvyou are restless and having issues at night. If you switch to morning. Take first thing with a full glass of water. Then nothing food wise until an hour after. Same with fluids containing caffeine. Supplements three hours after or away from food if at night. Calvin , iron and magnesium 4 hours as they distract absorption.  

    • JamieR
      JamieR Ebonyevans

      Posted

      okay ill bare thia in mind thanks, i dont have a blood test tomorrow. Just a doctors appointment, thought they might put me on 150mcg. My last blood test was 2 days ago and came back at 3.71 tsh. I switched to taking it at night as i read it was better absorbed at night. Since taking it at night i believe i felt better than mornings. Also I have to be up at 8am 4 days a week for uni and need to eat before i go in.
    • Ebonyevans
      Ebonyevans JamieR

      Posted

      Why would you think they’d up your dose? 

      When was it last upped?

      If nights work best for you that’s good. I set my alarm for 5am. Take it and go back to sleep for an hour. 

    • JamieR
      JamieR Ebonyevans

      Posted

      because i still feel unwell, as i understand it idealy tsh should be below 2. It was last upped about 7 weeks ago from 112.5 to 125.
    • cathy35794
      cathy35794 JamieR

      Posted

      Hi Jamie, when I was placed on Levo I was told in the morning by the Doc. It seems like there are a lot of opinions out there!
    • Ebonyevans
      Ebonyevans JamieR

      Posted

      Your T4 should be near the top and FT3 should be mid to top. TSH 1. There are other issues that might be causing you to feel unwell. Vitamins and minerals need to optimal. T4 stable. You then might need T3 but find out if you only need T4 for now. 
    • JamieR
      JamieR Ebonyevans

      Posted

      I have received my results...Plasma Free triiodothyonine level 5.6 pmol/L [4.3 - 6.8]
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