Levothroxine increase to 125mcg but TSH level increased?

Posted , 7 users are following.

Hello, thought i'd join this forum as I wanted to gain some extra knowledge on my thyroid condition. I'm a 22 year old male and was diagnosed with an underactive thyroid in August of 2015. Below is a copy of my bloodwork, however due to leaving for uni I lost a few test results inbetween my 50cmg and 100mcg dosage increase. 

19th August 2015 - TSH : 6.6 miu/L - Original diagnosis, no medication.

15th October 2015 - TSH : 3.79 mu/L - 50mcg Daily

18th Febuary 2016 - TSH : 2.84 mu/L - 50mcg Daily

25th October 2016 - TSH : 2.68 mu/L - 100mcg Daily

06th Febuary 2017 - TSH : 2.57 mu/L - 100mcg Daily

04th August 2017 - TSH : 2.34 mu/L - 112.5mcg Daily

14th November 2017 - TSH : 3.71 mu/L - 125mcg DailyWhen I was at 100mcg I still felt tired and fatigued all the time, couldn't sleep well, woke up tired, lost outer third of eye brows etc. As a result I decided to take 112.5mcg daily without a doctors consent, this brought my level down slightly but not enough I didn't feel. I finally went back to the doctors and explained how I was feeling, this was about 7 weeks ago now. He upped it to 125mcg daily as can be seen. Though my concern now is that my TSH level has increased?? I think I feel slightly better however but still room for improvement. Any ideas on whats going on / what to do next? Thanks.

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  • Posted

    Not an expert by any stretch, but I would ask if you have any other health issues? Do you take any other prescription drugs, over the counter medications or supplements? How is your diet. Just somethings for you to consider 
    • Posted

      No other health issues that im aware of. My diet is pretty good, i go to the gym 4 times a week and my weight is bang on. Im 6'2 and weigh about 83kg, good fat percentage and higher than average muscle. I take Biotin, omega 3, multi-vitamin and Vitamin D.

    • Posted

      Multi bits are useless for hypos even if it states 100+ of your rda. Get rid and get them seperatey and especially if it contains idione. 
    • Posted

      interesting, what do you mean by get them seperate? my miltivit does include iodine, why is that bad?
    • Posted

      The vitamins in your multi vits. After your Gp has told you which you need for your condition but then seperately to benefit you better. Levo will work a lot better. In other words no one takes aspirin when they should be taking a Tramodol. 

      Research iodine and your illness. It’s too long for me to go into. 

  • Posted

    Hi Jaimie, 

    There are a couple of possibilities I can think of.

    1) you have gut and liver problems that are inhibiting conversion of T4 to T3.

    2) there is an allowable variation in meds of +/- 10% of the stated label dosage. This could potentially result in a variation of as much as 20% between lots. 

    3) levothyroxin is synthetic and is known to result in autoimmune disease. Please read the information on the manufacturers site, as this medication also causes and can worsen thyroid disease.

    4) thyroid disease is caused by exposure to chemicals and radiation.  If you do not remove sources of toxicity, your condition will continue to worsen even with meds.

    4) per #3&4, particular diet avoiding foods that trigger the immune system can be helpful.

    5) this medication doesn't work for a lot of people. Your symptoms could be in Paarl due to the medication, though delayed due to the fact that you're young and have a strong immune system.

    Many thyroid patients go down the list of meds. They cause side effects that can be confused with thyroid disease, so it's hard to tell what's what. So they then troubleshoot their diet and every aspect of their life, which eventually leads them to the realization that these meds are not bioidentical, don't work the same as our own body's thyroxin, and result in a ton of problems.

    My best advice is to read through the many posts here to see what other people have found helpful, as there is hope with the right information. Also, people are happy to send you a pm, as many useful posts get deleted in this site.

    The trick for you is to be able to get enough information to skip all the years of trial and error (and consequently, health degradation) and go straight to the solution, so that you can stay healthy.

    • Posted

      Friend , don't ever leave this thread cause you really do know how to cut to the chase and I know it has been so helpful for me. Still thinking about your last pm's you gave me so much to think about.

    • Posted

      Awww,

      Thank you 🤗. It’s so annoying that gps and endows don’t know half their stuff. I understand Endocrinologists specialise in Diabetes  and GPs are general in the basics but the condition is so misunderstood and they’d benefit from listening to people with actual experience. Don’t get me started on the withdrawal of Liothyronine. 

    • Posted

      Thanks for your advice, i want to try and understand this illness as much as possible. In my case my thyroid condition is heretitory, my sister has the same condition along with my grans sister.
    • Posted

      Ebony, keep in India that protocols for treatment are recommended by drug companies, and by health network companies. So unless you go to a private practice doctor, you'll always get standard protocol unless and until you research it yourself and know what to ask for (then maybe you'll get it). 

      Standard protocol is prescribe a standard treatment, try for certain time, try second standard protocol, repeat to third, fourth, fifth, etc. until something works or patient goes away. 

      Patients who are wise and understand the way the system works, how drugs are tested and approved, can make much more educated decisions.

  • Posted

    Hi

    I think most people have offered the most relevant info. I can’t understand why a t4 test isn’t carried out? Every time I have my bloods done, it’s tsh and t4.

    Also if you are eating a handful of Brazil nuts a day, that’s too many. The recommended amount is one nut a day . Any more , especially or a regular basis (as well as getting selenium in your multi vit) could lead to selenium toxicity. 

    Always get your vit / mins rested first before supplementing yourself or you could be overloading your body when you don’t need to.

    I also take my levo at night. What a difference it has made!

    • Posted

      interesting, Ill lower my brazil nut intake then! They have always only done the TSH test for me. I had a doctors appointment today however and they put me down for a FT3, C-Reactive Protein, Full Blood Count, EBV serology, and Thyroid Peroxidase antibody tests. Hopefully have these back by the end of next week! 
    • Posted

      Are your nuts grown in Selenium rich soil or bog standard organic? Re your tests,  it’s about time. 
    • Posted

      i have no idea i buy them from lidl 😂. I will post results when i get them

    • Posted

      😂😂 so  funny! They will probably be bog standard. Just stuck to one just to be one the safe side

    • Posted

      How can you find out how nuts are grown. In many cases on food packaging they name who distributes them not even where they are grown

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