levothyroxine and proximal muscle problems

Hi there!  I realize this is an old post but I am wondering if you ever got any info?? I am suffering with the exact same symtoms right now! Hip pain....actually makes it difficult to walk sometimes....shoulder rotator cuff problems...etc.

i would sooo appreciate any advice you have

Oh and yes  I have been on synthroid 200mcg for 10 years but all this came on about a year ago....on and off. I have  Graves' disease....radioactive iodine treate many years ago!

I have had these same symptoms. Total thyroidectomy 18 mos ago. Please tell me how you are and what helped

Hi

I had a TT back in Aug. 2011, 2 weeks later the feet pain started, 6 months after around March 2012 the hip pain and lower back pain started. Dealing with all this types of pain was making me miserable. The feet pain lasted around 8 months, but the hip pain,middle back and sometimes lower back still going on now. My Endo told me is not thyroid medicine related so many times. Finally 3 months ago she changed my prescription from generic levothyroxine to synthroid. I was feeling much much better around 80-90% better, I was able to sleep over my left side and laid down flat with no pain, BUT two weeks later the pain came back. Im pretty sure is related to the medicine in my case. Im a 36 years old male who never experinced anything like this ever before. Everything started after the TT. Im still dealing with this pain(forgot to write everythig

Hi, I am one of the old posters on this old post.

My Problem:  genetic tendency to loose ligaments (who knew?) with hormonal change from change in medication causing (1) tight muscles, (2) loose ligaments and then (3) grating bones where the sacrum (back) meet the iliac (pelvis)       [Problem started when Levoxyl was recalled, and I tried Tirosint]

What happened to resolve:  Tried a third brand of medication (Sandoz) that suits me better. 

When the hormone levels return to where they should be, the ligaments tighten back up, and the pain improves

What to do until then: 

Remember that the pain is your friend.  If it hurts don’t do it.                     

Wear a girdle.  Ice what hurts.  Take small steps.  Keep knees together especially in and out of cars and bed. Sit with both feet on the floor.  Avoid sitting and standing for long periods.  Avoid stairs.  Go upstairs leading with your less painful side and downstairs with the more painful one.    Sit down to get dressed. Avoid pushing and pulling.  Avoid vacuuming.  If you have to rake or vacuum see if one direction hurts less than the other.  Avoid bending and twisting. Don’t carry toddlers on your hip.   Avoid carrying any one sided loads. Carry in front or on your back.

Remember the less it hurts the sooner it heals.

What I did to rehab when the pain eased:

I used a Sunny Air Walk Trainer machine with the abdomen and hand parts removed (because they cause my back to twist) and pumping my arms a little like running.  I started with small steps for just a few minutes.  .  It gently stretches, and it feels like I weigh half as much.  Now I keep it near the TV for commercial break exercise.  It’s tiny and kinda fun.

I gained weight while less active, so I started taking my thyroid pill at night with no snacking after 6:00 p.m. Less weight is easier on the joints

I added vitamin D supplements because I now live in the North and I am older.

What I will do in the future;

I will listen to my body, and be aware that I may get a ligament problem in any joint at any time.

I will massage the muscles when they first start to get tight. Gentle stretches.  Warm bath.

For joint pain I will use rest, ice, support and compression (Ace bandage, girdle, brace, tape, whatever it takes). Easier to prevent problems than cure them.

And I will try to avoid doing things that hurt, or to find ways of doing them that don’t hurt.

My Sympathy to all who are now in pain, Hope you heal soon.  Regards.  Dominie

I have had very similar problems and i hope we can communicate about them. Ive been on levo for two years and have had muscle pain and twitching and muscle chills for about a year.

I have been diagonis with lymphedema and my muscles are frozen from waist down.

Hi

What was the diagnosis in the end ? I have exactly the same symptoms. Hope you can help

Yes, since I have had my levothyroxine dosage increased, I've been experiencing pain in upper thighs, hip, and inner thigh area. I have lab work scheduled and seeing physician next week. 

I have been taking levothyroixine for about a year.  And recently started to get stitches in the right side below ribs when I bend down or sit down and sit in the wrong position, also getting discomfort along below ribs.  I have had so many different problems since taking levothyroxine!  I also have a lot of spots in my mouth, like tiny pimples.  If I say anything to the doctor/nurse about any new symptoms they seem to think HERE WE GO AGAIN, A HYPOCHONDRIAC and waive it aside.  YET before the levothyroixine I didnt have all these problems and did not bother them!  Why would someone suddenly become a hypochondriac when they are 58 and never were before?  I have also had a rash, I had a few weeks were I felt very cold like a block of ice,  had a lot of pains in my face and head etc. If you say anything it is always oh dear here we go again. Yet I felt far better before I took this medicine.  I now have high blood pressure, I never had that before either. They want to put me in statins but they give you other problems and side effects - I would prefer to go on plant sterols if I must take something, it is natural and gives no side effects. But I now wonder why I am taking the  thyroxine at all if it makes me worse. Have you tried the natural one or iodine instead?

Hi I just recently was put on this med and since starting it I've noticed bad pain in my right thigh and hip. It hurts so much that going up and down stairs it's very painful. I hadn't really thought it could be a side effect of the drug but it was suggested to me that I check online. Now reading here, it sounds like it may very well be. Strangely, it is only in my right side. I suppose this is something I should talk to my doctor about.