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Lichen Planus - Treatments, Cures, Aids

Posted , 42 users are following.

ElephantMan
ElephantMan

I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.

I've been prescribed Dapsone, Alegra and Advantan - no improvement after 14 days

I've read that Ultra Violet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.

EM

2 likes, 98 replies

98 Replies

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  • BobTheBear
    BobTheBear ElephantMan

    Posted

    Some very good information on this thread, learning a little every day.  Will start a new thread about my issues.
  • kerrygcmom
    kerrygcmom ElephantMan

    Posted

    I am with Frodo - vitamin D at the onset of a flare up - I have also noticed flare ups start for me with seasonal allergy season - itchy mouth leads to active mouth. And use of prescribed meds - steroids, anti-biotics etc.. I believe led to this disease. I've had 2 flare ups of OLP - one a year ago April which was severe and cleared completely on a trip to Costa Rica. The second was this April with allergies starting again, stress, had spicy food, pineapple, allergies all in same week and felt it starting. I decided to fast for 24 hours on liquids and take vitamin D - stopped it in its tracks and it cleared a couple days later. Then saw an allergist who got the seasonal allergies under control and at his recommendation will starts shots in a couple months to alter my immunity. I'm anxious to see how next April goes!! 

    Clearly diet plays an important role and as soon as I stopped putting food in my mouth, it felt a great deal better by that night. I still eat spicy foods, drink alcohol and so far so good again. But I rarely take any medication unless I have to.  

    Good luck LP'ers. There is hope!! 

  • no_not_this
    no_not_this ElephantMan

    Posted

    Hi

    Have you or anyone else tried anything that has worked for you pleas? .  My Husband was very ill earlier this year and was in Hospital for many weeks and moved to several wards.  About a month after he came home he was very itchy and diagnosed with scabies ugh!.   He was told to apply Permithrin cream twice one week apart,   I had to do it as well.   it was awful especially as I have very sensitive skin.  After ten weeks of my skin burning then itchy.  I was diagnosed with Linchen Planus,  which I can only describe as a living hell!    I have been given Dermavate lotion for my scalp plus Fexofenadine and centirizine tablets.  I cannot use make up as it makes me itch more.  Worse still i can no longer dye my grey hair as my scalp feels too tender and itchy.  Please sombody give me some hope.

    • no_not_this
      no_not_this

      Posted

      WELL!    I am just replying to myself.  it is obvious to anyone that I am an old fogey! ( well 71 )  Not too experianced with my way around forums.  As there is lots of information on here.  if i had only taken the trouble to read all your posts first.  I Will give the immune boosting paleo diet a go.  Many thanks.
    • ElephantMan
      ElephantMan no_not_this

      Posted

      Diet is my best suggestion because the treatment can be worse than the problem and there is no cure. One person posting here has had success with huge doses of vitamin D so it can't hurt to try that. All that info is in this thread I believe.

      EM

    • Frodo5254
      Frodo5254 no_not_this

      Posted

      I really feel for you, no not this!  First, I'd get a 2nd opinion for you and your husband.  My sister was diagnosed with scabies earlier this year by a dermitologist and it turned out to be something completely different.  Second, Elephant Man is right about diet -- leave out some things like juices or anything acidic, keep a log and add in vitamins.  I'm the one that found that 4,000 IU of Vitamin D3 with breakfast and again at night with dinner completely cured my oral erosive lychen planus.  Third, I would try Blue Emu anti-itch cream for the itchiness.  That helped my sister and me, but we had eczema so I'm not sure if it will help you or not.  Good luck and don't give up experimenting with different foods and diets.  Unfortunately, we have to be our own advocates when it comes to Lychen Planus because the doctors don't know a lot about it.  I hope this helped.

       

  • charlie95110
    charlie95110 ElephantMan

    Posted

    I have heard the sea with all it's minerals is good for the skin, so I will be getting a wet suit and getting in to try.

    • ElephantMan
      ElephantMan charlie95110

      Posted

      Heard that too but I don't think you need to swim to benefit. I think you can buy the minerals and salts and get the same benefit whatever it may be.

    • ElephantMan
      ElephantMan charlie95110

      Posted

      I would verify before spending time sitting in the sea! Exactly what benefits do you expect apart from getting a chill or being eaten by a man-eating predator?
    • charlie95110
      charlie95110 ElephantMan

      Posted

      Ha Ha very good! I am actually going down all the natural routes to help.

       

    • ElephantMan
      ElephantMan charlie95110

      Posted

      When my palms erupted with what looks like smallpox and I had big flat purple welts on the backs of my hands, it was a serious psychological shock. I didn't want to shake hands with anyone but I covered my welts with a cosmetic foundation creme that assumes whatever skin color you have and eventually all symptoms disappeared.

      That was several years ago and I've pretty much stopped looking for treatment. Even though I still have Lichen Planus, it hasn't erupted since. The other treatments and 'cures' can be more dangerous than the ailment. So if I have to look like a leper for 60 days every five years, I'll put up with it. It doesn't do anything else, so there's no damage, pain, or fatigue, etc - it just looks horrible.

      I think the best chance we have is to try and restore the immune system, that's going to mean changing our diet such that we're only eating food that hasn't been processed. I ate steamed veg (only!) for two weeks and I lost 18 lbs! If you eat raw veg for 30 days you can reverse diabetes! 

      For me, diet is the answer but it's not easy and I'm a heavy smoker and drinker as well. Best of luck sitting in the sea (I hope it's not too pollluted where you are) if you don't get devoured by lobsters, report back!

      EM

    • dimple77068
      dimple77068 ElephantMan

      Posted

      Hi

      You mentioned that you used a foundation creme which assumes the colour of the skin.

      can you share with me the name of that foundation please.

      Thanks a lot.

    • Turista1
      Turista1 ElephantMan

      Posted

      Charlie95110 - interesting that a cosmetic foundation reveresed your LP. What brand was it and does it still continue to give relief from the purple wlts you mention. Thanks
  • abbey05154
    abbey05154 ElephantMan

    Posted

    I had success taking 2 rounds of prednisone, 10000u of vit D a day, and I also have been taking Dr. Wilsons adrenal rebuilder supplements
    • lynn21457
      lynn21457 abbey05154

      Posted

      Hi Abbey. I have recently been diagnosed with LP, I have if on my skin and in my mouth. The skin lesions that are most prevalent are on my pantyline as well as my bra line - they never see the sun and would have constant friction. Spots that surface that do get a lot of sun amount to nothing and fade to a small white spot. I have spoke to my dermatologist about this, he this it's all coincidental, I disagree. I have recently stared taking 10,000iu of vitamin D3 a day with hopes of dealing with oral LP, I also use a topical cream which helps immensely. I do believe diet plays a huge role, and although my diet consists of mostly vegetables, I am a wine lover and have not yet given up my evening glass yet.

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