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Lichen Planus - Treatments, Cures, Aids

Posted , 42 users are following.

ElephantMan
ElephantMan

I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.

I've been prescribed Dapsone, Alegra and Advantan - no improvement after 14 days

I've read that Ultra Violet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.

EM

2 likes, 98 replies

98 Replies

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  • dimple77068
    dimple77068 ElephantMan

    Posted

    Request pls forward the study of UV B rays helping in the same.

    Can you also tell us what was your exact problem and now how it got cured.

    I am not a lichen planus patient but EDP patient. Severe pigmentation on my face n neck and hands.

    Can anyone help me

    • ElephantMan
      ElephantMan dimple77068

      Posted

      Not sure what study you are referring to. Lichen planus has no known cause and no known cure so no one has been cured.

      There are several theories one of them is that it is related to stress another says that the immune system is weak.

      One person on this forum has had success with vitamin D in huge quantities for oral lichen planus. I took a number of medicines that eventually made the outbreak go away but it would have probably gone away in that time anyway so I cant say it was a cure. The medicines can be more dangerous than the disease. What is the name of your condition perhaps you are in the wrong forum.

  • margaret29034
    margaret29034 ElephantMan

    Posted

    Yes, my Dermatologist said the same thing, the sun helps some but makes others worse, so not too helpful!  Also, there is the skin cancer thing to consider.  
    • gordeen
      gordeen margaret29034

      Posted

      I had many weeks of "sun tan booths" per dermatologist, made me much worse!!

  • julia96551
    julia96551 ElephantMan

    Posted

    Had erosive OLP since 2013. Have had LP nails all my life. Had cutaneous LP symptoms (rash on back of scalp and toenails lifting off since 2009).

    What helped OLP: Prednisone, but had side effects (developed steroid induced cataracts but had been on and off pred for years for other conditions). However,OLP would come back every time I got down to less than 20mg/day. Prednisone plus Hydroxychloroquine (Plaquinel).  Think the last combo of these 2 got rid of about 80% of the open ulcers (even when I stopped taking them), but still had very bad check plaques. Dexamethasone mouthwash/ointment only gave me about 50% improvement.

    Recently have been on drug called Colchicine for autoimmune heart problem.  Wow, it cured all the remaining thick, irregular, rough-feeling plaques in my cheeks.  Will update after I go off this Rx--probably in a month--to see if they come back. These plaques were so bad 3 months ago that the Rheumatologist wanted me to get the inside of my cheeks biopsied fearing they had become cancerous by their appearance. Colchicine is an anti-inflammatory used for other auto-immune/auto-inflammatory diseases like gout, Bechet's disease (also causing severe mouth ulcers) and severe cases of apthous mouth ulcers. I have tolerated it very well, some do not. Must get regular blood work while on it, but far fewer side effects than the pred.

    Non-Rx: What helped open ulcers/erosions in my mouth the pred/plaquinel combo did not cure was mouthwash with 7% (some has 7.5%) cetylpridium chloride. There are lots of brands on the market, but it can stain your teeth. I now have medium brown stains between my teeth. Per the web, your dentist is supposed to be able to remove them.  We will see (haven't been able to get teeth cleaned yet due to heart issues).

    The scalp rash LP and toenails popping off went away with the Pred, but came back after I stopped the drug. However, I have been able to get rid of the scalp rash with psoriasis coal tar gels and shampoos. Still dealing with the nails coming loose.

    I take Vitamin D since I seem to be constantly deficient per blood tests, but I'm not sure that helps. Try to eat a decent diet of good food also. Just have autoimmune issues.

    Really was bummed about the OLP and mouth being painful all the time and why can't this be cured until the heart problem started. Not being sarcastic, but I'll take the OLP as bad as it was again over the heart problem any day. Was never in the hospital 5 times in 4 months for OLP.

    • sally31549
      sally31549 julia96551

      Posted

      I too have had good luck with plaquinal but just recently am having a bad outbreak with a large ulcer. I glad you mention the colchine I will check with my dermatologist.
    • Noni9
      Noni9 julia96551

      Posted

      Dear Julia,

      So sorry about your debilitating health conditions. Praying you find some relief.

      Thank you for the information you provided.

      This should prove very helpful.

      I'm going to share with my doctor. I've talked to a dentist, primary care physician, and another doctor. None of them have a clue about OLP. I've asked for a referral to an Ear, Nose, Throat specialist. Again, thank you.

    • gordeen
      gordeen Noni9

      Posted

      I ended up doctoring with the Dermatology Dept ai the University of Michigan hospital. Tried all those meds with some help but too many  Side effects. I now am off all meds and try to maintain oral and skin lichen planus with the AIP diet....Google it.
    • ckitefly
      ckitefly julia96551

      Posted

      Hi. I too hav OLP and so sick of the sores in my mouth/cheeks.  My Eat Nose and Throat doc did give me a mouth wash that is a mixture of stuff but it's to make me comfortable only.  It's great but it numbs my throat too which can get annoying.  I saw you mentoned the medicine given to you called Colchicine.  How has that been because I am interested in anything at this point.Ive had it since 2008 and I just now got a doc to confirm that it's OLP and the scar tissue in my mouth is so bad, it's hard to open my mouth without the sores in the back feeling or ripping open.  Thanks  

  • Turista1
    Turista1 ElephantMan

    Posted

    Hi EM:

    After 20+ years of my skin condition I was told it was NOT psorasis but Lichen Planus. My body is covered over 80%. I've tried Stelara; Enbrel; and other popular treatments with zero results. Please send me your e-mail. My new derm doctor wants me to undergo UV Light Tx but I was hesistant b/c I tried it over 10 yrs ago but must admit half heartedly. Currently using a moisturizer. Any feedback is welcome and thank you.

    Art G.

    • Noni9
      Noni9 Turista1

      Posted

      So sorry to hear of your affliction.

      Have you heard anything bad about the UV light?

      It might be worth trying.

    • gordeen
      gordeen Noni9

      Posted

      It made my backside LP much worse...😫

    • Turista1
      Turista1 Noni9

      Posted

      Hi Noni9

      I have not heard of UV Light Tx ever being bad or having an adverse effect on anybody. The only thing that comes to mind is if you stay too long under the light.

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