lichen sclerosis

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Hi I have recently been dyagnozed with Lichen Sclerosis, and have been advised to wair only cotton underwear. I'm having trouble finding briefs that don't hurt my crotch. Someone suggested I try the Sloggy brand, and have done this. Although they fit in every other way, when it comes to the crotch area, I find they are very tight, and become very painful! I've even tried a bigger size, but to no avail! Can someone please help?  Sory to be so personal, but i'm at my wits end, and hardly go out because of this.  Thank you in anticipation.  Val.

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  • Posted

    Had that same problem a few years ago. Found some at WalMart but they don't have that kind anymore. My Lichen Schlerosus cleared up eventually in that area, so hang in there. It will become less painful in time. Hope this helps.

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    • Posted

      Hi Selena! Thanks, but apparently i've had it for a few years and didn't know. When I saw the gyney on Tuesday, she told me I could have this for life, and it was she who told me about wearing loose cotton underwear.  Val.
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    • Posted

      Yes, I read up on that too (about loose clothing, no spandex etc) My LS flares every now and again. I have to catch it on the first of it with Clobetasol. My worst case is that I have LS all over my abdomen, groin and underarms, even breasts and the itch is unbearable from time to time. Got it controlled somewhat by an ointment that my dermatologist recommended. I was a composite of three different ingredients and it'w working great....but it's not for the vaginal area. I went undiagnosed for years too. So I have been suffering for 15 to 16 years since diagnosis. It's a horrible disease and it robs us of pleasures of life. Good luck.

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    • Posted

      I am so sorry to read about how much you have been suffering with for so long.  I wish I had caught mine sooner but it's not like I ever heard anything about anything like this before  until I started reading forums or I still might not have gone to a Dermotologist.  Thank goodness I did but I still found what is working for me on my own with the help of  these type of forums. Everyone contributes and we learn. 
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    • Posted

      Yes, I have it in the middle of my back too. Sometimes it is unbearably itchy, but right now it's not. This is a horrible disease!!!
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    • Posted

      Yes, the same is true for me. I have learned a great deal on here and even if I did not, it is comforting to know that others will share with us and that helps!

      Doctors know very little about this disease.

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    • Posted

      Hi Selena, and all!  I found this forum by accident, and have found everyone so nice and helpful.  Its so good to know your not the only one who suffers from this horrible disease. I sometimes get things which are like blisters and are very sor round my bekini and top of inside legs near crotch which are very sore itchie and red.  Val.
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    • Posted

      Yep. I get them too. Had a biopsy just a couple of months ago. No cancer though. Sometimes the rase gets irratated with clothing or even after hair removal. Then blisters form. Happy that you found us on here.

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    • Posted

      Hi Selina, I get a very itchy back too.  I always have a good scratch with my back scratcher, which is a rough sponge-type contraption on a stick!!  Whenever I complain about it to my doctor, I am told to moisturise my back!!  This doesn't make any difference by the way and I don't have anyone to put on the cream for me, as my husband works abroad!  Good luck anyway!
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    • Posted

      Yep, I use the back scratcher too. smile Moisturize as well. I am doing well now after a few weeks on prednisone. I had a nasty skin rash and blistering, so the doctors put me on that to clear it up and it did. Now I have leg pain. I don't know if that is a side effect of the drug or not. Can't win!

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    • Posted

      When hubby not available to assist I put the moisturiser on the door frame (previously cleaned) and rub my back on that.  Be careful though.  I must have the cleanest door frames He He!!!!
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  • Posted

    It depends where you are. In Australa, there is no shortage of cotton underwear. There are cheap brands and also Bonds. Boxer shorts are another option. Wear none around the house if you are wearing a dress. Or with a nightie for bed you do not need panties. 
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    • Posted

      I have to wear pants as otherwise the coconut oil seaps through everything!  Am I the only person who has this problem?  I have just had to order, as recommended by someone on this forum, some short-legged pants.  My husband said the bloomer-type ones would be "a bit over the top" so I got the next best thing.  They are German and I got them from Amazon!
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