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Lichen sclerosis flare up

Posted , 25 users are following.

joyce06724
joyce06724

hi I've had LS for many years and treat it with dermovate as recommended by a dermatologist who has studied the condition extensively. All has been reasonable other than some fusing although sex has been a no go area as my vagina seems to have shrunk since the menopause  and sex would be impossible now.  Recently I have had a lot of discomfort intermittent pain in my clitoris burning and dryness in and around my uretha. I've been using my cream but it seems to be making things worse itchy and uncomfortable. I've noticed that my clitoris has suddenly disappeared!  I'm under my GP who gave me some other steroid/antibiotic cream but this hasn't helped at all. Has my clitoris gone for good or can I retrieve it?  Don't think my GP understands the condition at all

1 like, 47 replies

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  • brenda12750
    brenda12750 joyce06724

    Posted

    I just found out I had this condition yesterday and wanted know how others treat this.
    • sandra54172
      sandra54172 brenda12750

      Posted

      Brenda, I know what you are feeling right now.  I was upset to find out I had something that came out of no where and was not curable.  I was diagnosed about 20 years ago and for the many years I have lived with this now, it has been manageable.  For a time of about two years, I was on a testosterone cream that I applied to that area.  It helped but did cause slight enlargement of the clitoris.  Mine is now hooded and has been for many years.  I can still feel sensation but it is not the same as before and it becomes very emotionally and psychologically frustrating for sure.  I can handle that after a cry but the itching and burning is difficult as I don’t know what triggers a flare up.  I can only surmise that after taking sulphate for a UTI that the symptoms became worse, so much do that I called my GYN today for an appointment.  I am miserable with the itching, especially at night and was told not to give in to it as it makes things worse.  Was told to use hydrocortisone 1% this week until my doctors appt on Friday.  I read not to wash the area with a wash cloth/ just use your hands and a mild soap or nothing.  Pat dry, do not rub.

      I am at the point that I will try everything for relief.  Sometimes , I don’t have strong symptoms at all but the past 4 or 5 days, they are in high gear.  I don’t want to look down there as am scared because everything feels swollen.  I hope I can help you feel better and talking about things does help a lot as it is an embarrassing disease.  Try coconut oil and Vaseline, too.

  • krsana63096
    krsana63096 joyce06724

    Posted

    Hi Joyce.  I also have lichen sclerosis.  I see these posts are 2 years old.  Have you found anymore treatment info?    I find that artificial sweeteners and also peanuts cause flare ups. Would appreciate and suggestions you may have.   Thanks.  
  • classy12170
    classy12170 joyce06724

    Posted

    I've had lsa for about a year. my main area of concern is the rectum.  During my current flare up it is so bad that I have been constipated for 2 weeks and cannot go without intervention of a laxative or suppository.  Is anyone else suffering from this problem?  I'm not positive that the 2 are related, but I have been searching the internet for a correlation and have found a definite correlation with IBS which I also have.

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