Lichen Sclerosus: an alternative approach
Posted , 8 users are following.
Breaking free from toxins and eliminating those accumulated is one of the objectives of a protocol that seems to be working.
The methodology is described in a work book on its way through the publishing process which it would be great if we could follow along together. i'm interested in how people are managing to avoid toxins and in your ideas inorder to enhance the experience.
what are your weaknesses? mine is taking supplements....but i now realise it has to be done. how do you feel about supplementation?
do you have any tips to improve the 'job' of taking supplements? skilled techniques welcome!!
1 like, 57 replies
joy47826 marey
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I had a breakthrough today, I think....I Hope....I've followed the blood type book years ago and being a Type B, it tells me to avoid chicken....I did for a long while and concentrated on turkey which is good for me and also bison and lamb, but fell off the wagon and was eating too much chicken in the last year I think.....all clean chicken products but chicken.
There is a lectin in foods that causes havoc for many and in my case it's lectin in the muscle of chicken.And my joints have been getting worse and worse and I have stopped acupuncture but NOW will stop chicken.....Just came home with a lovely pound of NZ ground lamb and making a special soup.
I don't know if this makes sense to you but I'm sure it does.
I guess my weakness is supplements but I like this about me, open to alternative healing.
marey joy47826
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getting back yo you......thanks for this xxxxxxxxxx
marey joy47826
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LAB ROT !! ?
Lichen Sclerosus is an inflammation of the labia of the external female genitalia. It is often signalled by an extreme itch but can be silent accompanied by stenosis of the introitus. With progression the labia minora are often absorbed. Other chages can occur.
joy47826 marey
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I just read a report: The Lowdown on Lectins.
joy47826 marey
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wilmatm marey
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How do we know if any of this helps or not?
Wilma
Ps looking forward to trying though. Sick of feeling so lousy. Cant wait till i can buy Gillys book.
marey wilmatm
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ok i'll come back to you on this ...lots of recommendations but got to rush out...meanwhile check out liver flushes/liver cleanses and we'll talk again xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
kellie42169 marey
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Wiltmatm
I agree with Marey you should look into liver/kidney flushes and detoxes you could probably benefit greatly from these. I can send you an inbox with examples and instructions if you wish or alternatively you can goole Hulda Clarke liver flush.
wilmatm kellie42169
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If its not too hard could you inbox me the directions? I will forget otherwise her name and i am in bed. Had heel injected tonight and am pretty sore.
Thanks for you advice. Will make hubby do it with me again. He is going to love it.
Wilma
marey wilmatm
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Sure he'll love it...oh gosh I'm not good at these things either. I follow paleo with respect to the principles of whole foods inclusive of supplements.
I am so distressed that you parted with your gall bladder wilma. I was in attendance to a gatric band op...but wasn't too comfortable about it. I felt for the guy as he was leaving the hospital...he seemed so alone.
Can the bands be removed? I 'm no longing practising as retired so out of touch ...you may know more about such a possibility?
No gall bladder ...no problem...ok well lets look into that. Have found one wonderful resource. Don't be afraid of stones...pay attention to them and address their cause ...but the body is being effective in shifting pre-sh*t !!!!!
listen i do much gentler de-tox stuff but if you and kellie (hi kellie) are minded to do the clarke flush...i'll have a go too with you....gulp...tremble...plus with your hubbie that will make 4. Good round number....eek oh no what am i saying..........!! Enema anyone?
marey kellie42169
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Entirely agree with you...but this is like a kind of insurance policy to shift LS. You may not like Ginny's protocol....which would make me sad...supps are a big part...but I do hope you'll follow it and hold my hand!!...and I'll hold yours...you can substitute in foods ...eg I take brazil nuts between 2 and 4 a day max 12 per week for my selenium since that's the foulest of supps....but I really need it..plus my iodine balancing act..waiting to be iodine tested and Ig too, for antibodies I hope, will also be carried out ...re: maybe hashimotos. eek! But I reckon the protocol will fix the lot.
kellie42169 marey
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kellie42169 wilmatm
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joy47826 marey
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wilmatm joy47826
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Wilma.
wilmatm marey
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I think if i remember right the liver detox involves drinking a large amount of oil which concerns me a fair bit. Coconut oil and hemp oil sends me running nearly instantly.
I guess one bad night is not too hard to get around any way. Will let you both know when i can get the stuff for it.
Thanks Marey
joy47826 wilmatm
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On coffee enemas, a good friend of mine who taught me a LOT about alternative medicine has been doing CE's for many many years...she's told me many times if I did the CE's I could get rid of a lot of pain. I got as far as buying the enema bag and just never did them...during a colonic many years ago I had the therapist use some coffee in the colonic. I've had a 1/2 dozen colonics in the my life but not in a lot of years. I've tried so much in the alternative world and now finding higher doses of magnesium keep me pretty cleaned out.
I thought of taking brazil nuts for Hashi support but easier for me to take 200-400 mcg selenium daily in caps.
wilmatm joy47826
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wilmatm joy47826
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marey wilmatm
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Isn't it great to have Joy on board too!!?
I think we owe her an explanation of what LS is....and very much hope she will stick around. Such an experienced voice from the alt med movement.
I'm going to the end of this thread to offer an explic that's short and sweet !! Hope you others will chime in to help explain. It'll be interesting to see how we all sum it up. Thanks for being here Joy xxxxxx
marey
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(If ok with all I may ask Alan to move things around a little ...in case someone new coming in thinks they're in the wrong place!!!!)
Just to explain Joy. This condition is supposed to be incurable...for which read....it doesn't interest the medics....and pharm drugs won't do it. But you, me and all of us on here know otherwise are entirely confident about our own capacities to heal AND we now have a blue print to follow since one of our number has healed herself....is in the process of publishing a book ...and we're going to follow along together. We would all be honoured by your interest and support in following along with us I am sure. You are so encouraging and knowledgeable.
Anyway its been very helpful to try to outline my purpose in this thread.
It just seems to me that its a good idea to talk generally amongst ourselves in preparation for the protocol....so we're not firehosed by it all at once and can get to know and to trust each other for the year a head. Its a year long protocol...so this thing is fixed for good.
I hope this is helpful to everyone xxxxxxxxxxx
Emis_Moderator marey
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I can't move things around. The post you talk about at the top is https://patient.info/forums/discuss/lichen-sclerosus-an-alternative-approach-297775?page=0#733922 so users coming in here can use this link to get to it. I'm not sure what you are after but you can just add the same post at the bottom of the thread or within the sub-discussions by replying again?
Alan
marey Emis_Moderator
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kellie42169 wilmatm
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wilmatm kellie42169
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marey wilmatm
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I think Kellie might make up her own ....isn't she a star?!
Chances of a recipe Kellie?
Lula1 wilmatm
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Your doctors were correct in their worry your bile duct could be blocked as a result of a liver flush. I personally tried to do a liver flush and nothing happened. Apparently was because I was so low in magnesium due to gut infections, I absorbed it all. This was before I knew how dangerous they are. Anyone following Dr Hulda's protocols needs to know she had no qualifications. She ultimately died of cancer so her strange idea that liver flukes cause cancer is completely wrong. She did have a few points re getting chemicals out of your life. We use far too many harsh toxic cleaners and cosmetics. Deodorants are quite toxic to the lymphatic system also. NB anyone who thinks they can cure themselves with a zapper is wasting their money. The concept is interesting but unfortunately the man who came up with it is no longer alive and there is no evidence of his machines. This might seem harsh, I just want people to sort the chaff from the wheat before they get ripped off. Another thing I don't believe in is the blood type diet. There is no true science behind it. People clean up their diets to eat healthy food and that's why the diet does work for many people. I would be reducing GMO foods where possible (more sprays etc), all sugar, most refined carbs. Low salicylite and oxalate diets have some basis for some people.
I have spent years studying alternative medicine to find this stuff out. It made me very unpopular in college. It was more about finding the truth for me that just accepting everything I was told or what my collegues believed in
wilmatm Lula1
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marey Lula1
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Likewise i'm trying to keep an open mind to everything in the interest of encouraging people to come forward . We never know what might work for someone else.
whats a zapper?
Where did you study?
How is your LS...do you take any meds?
Just to clarify the purpose of this thread is to prepare for following somebody else's protocol. It will likely be easy to criticise. But I'm really hopeful we can support each other in pursuing the book when it comes out which is imminently I understand. Given the author was able to heal herself. Do you think you will be comfortable with that?
I haven't tried the hulda protocol....and was going to say wilma and kellie...do you think we could try something less challenging? I don't think I could cope with that much oil!! Also my understanding is that cancer patients in addition to keeping an alkaline body also need to avoid all oils except flaxseed....as well as keeping away from refined sugar.
Apparently pressing the juice of half a lemon each morning is very effective and the go gentle approach just as beneficial. That ok with all of us?
Lula do you have any other recommendations for Ca patients? I do know of someone currently looking for advice so any tips or web site suggestions (just in google format) would be very welcome. Thanks x
wilmatm marey
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I also found that i cant take citrus as its what burns me down below. Its since i was a child this has happered. Occasionally i break out and have some but i usually get blisters on my hands and feet from it. Even vitamin c is dicey for me.
There are some really good books out there for cancer patients which my husband has many. If you want to know more i will inbox you the titles.
Wilma
marey wilmatm
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Oh so sorry about your citrus allergy well thats that...what else is good instead or other approach I wonder?
Thank you so much for the kind offer of some book titles for this gent....I will pass them on. He will be very grateful. Did you have Ca concerns in the family? Thanks again wilma....so lovely to know you xxxxxxxxxx
kellie42169 marey
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kellie42169 Lula1
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wilmatm marey
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My sister has Lupus and she cannot tolerate citrus either or she breaks out with the same blisters too.
wilmatm marey
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Lula1 marey
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Very interesting research being done on vit C in NZ for shrinking tumour growth. Massive amounts but lemons are great anyway.
Instead of talking about the authors who aren't so great I can recommend some who are. The godfather of natural medicine is Joseph Pizzorno. He is one of the few people who has an understanding of genetics and diet. Sandra Cabot's Liver Cleansing diet is a sensible one to follow. I've met Sandra and she was bothered by a very long list of people wanting to thank her. It must drive her nuts. These doctors are also very well qualified. People who claim to heal themselves from things and then sell what worked for them is something I take with suspicion. If I had a cure for LS I would be telling everyone what it is for free.
I dont take any meds at the moment, but in the UK I would be recieving intravenous immunoglobulin for the CVID. I am developing the complications that usually happen with it being untreated. I am not sure how hormonal issues are connected. X
Lula1 wilmatm
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Lula1 kellie42169
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marey wilmatm
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no lemon or vit c..ok...what do you do for an anti-oxidant? are you ok with shell fish? will pass on recommendation if you tolerate that.
marey kellie42169
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actually would you consider putting it up as a separate title? we are builing up quite a good resource list which can be seen at a glance from the title of each thread. deodrant....toothpaste - excited about that...anyone tried it yet?..and others. we are fab!!
wilmatm marey
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What about the drugs that were handle on rounds?
For me as well i became allergic to the self care products i had to use in my patients and clients not to mention the chemicals i had to use in the name of keeping their house rooms ect clean.
I have heard a few hear say they are nurses and my sisters all three of them are were and have auto immune diseases.
Could be wrong but i rekon there is a link for sure.
marey wilmatm
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So glad to see vital reading resources are being allowed. Cancer Killers by Sayer Ji....is the one I wanted to tell you about. xxxxxxxx
Dreaming wilmatm
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I too am a former nurse that worked giving chemo to my brother in law in his home for the treatment of cancer back in 1983.
I didn't know the precautions necessary, and did not even wear gloves.
Today, I have autoimmune and lung disease.
Chemo has extended many lives, but it's a toxic drug. Only the strong survive.
wilmatm Dreaming
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Dreaming wilmatm
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I never thought about that.
I have had some interesting private duty cases that had similar symptoms as I am having now.
We really don't know what we receive from others.
I am careful who I am around.
If they are sickly, I stay home :-)
wilmatm Dreaming
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wilmatm marey
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Thanks.
marey wilmatm
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