Lichen Sclerosus and Lichen Planus - OMG ITS BACK

It might also be that there is another problem criss crossing.  I would have this throat issue checked out by a doctor, if I were you.  

As for down below - have you considered baking soda baths at all? or baking soda rinses?

 

It sounds like you have acid reflux (GERD) stress can cause that, or some foods.  Do you find you sometimes have a sharp digging pain under your ribs? If so, it is likely acid reflux; the problem is that the tablets you are supposed to take to alleviate this can cause more problems long term.  When I have acid reflux I put 1 tsp of organic apple cider vinegar into a glass with at least 8oz of water, and it gets rid of it.  But, maybe you should visit your doctor to see what he says, it might alleviate your stress if you know for certain what is causing the burning in your throat.   The white discharge is interesting, I have had times when I have had that, it resembles milk.   I'm not sure what it is but I feel it is somehow linked to LS, and then it disappears, but it looks exactly like milk.

hi

Yes I have the same discharge.  It looks like milk!

I think that the LS is definitely linked to food and also to the gut!

So therefore the burning that I get goes from my aesophogus through to my vagina!

Bad day today unfortunately yet again!

 

Apple cider rinses may be of help down below as well.  Brings in the good bacteria.  

Yes apple cider is very useful.  I meant to say be careful if you do take apple cider vinegar, make sure you have diluted it well, as it taken too strong it can damage your esophagus, always take a sip before drinking it.

I dont know to be honest, but honestly its not going to be that much that it will affect you.

Try not to get too paranoid about sugar, as long as you cut out the main culprits you should be fine.  Stress is not good for LS.

Hi

I am a bit obsessed with sugar content as I find, if I only have an apple, or a piece of fruit, I will get a flare up!  So would be terrified to drink the Apple cider.  Why doesn't this illness come with a booklet!!

Every meal that you eat contains some sugar, sugar is in everything, even when you eat a jacket potato, that carbohydrate turns into sugar in your body.  It is getting the right balance and avoiding the obvious stuff like cakes, pudding, sweets etc.   I forgot to mention yesterday,  that when I see a white milky discharge I immediately suspect thrush trying to get a grip, and I take an over the counter thrush tablet, begins with D and ends in N.  I think  people with LS are susceptible to thrush.

Hi

I know that everything you eat turns to sugar, but I try and avoid the obvious things.  I have a feeling the milky discharge could be part of LS as when I have been tested for thrush it always comes back negative.  It doesn't really make sense.  

Could also be that you have to help the bacteria a bit.  My most recent experiment with apple cider vinegar rinses made a sure difference.  Once all was well again I went back to baking soda rinses.  

 Hello

i am taking acidopholus which is the good bacteria.

I will work hard on getting this under  control.

This is a hard lesson.  I will give all my sweets to children around here.

 

Hi Jan

This sugar thing is difficult but once you get into a routine

and get all the sugar out of your house you will not be tempted. My husband has raw sugar for his coffee and a packet of biscuits in the house. Otherwise we have no sugar, eat no packet prepared foods, only organic chicken and fish and steak now and then. He drinks beer and has dairy and cheese but he doesn't have to have restrictions, it's me so I use rice milk and feta cheese. I also use all hypoallergenic soaps, washing powder, cleaning products, shampoos etc. we have fruit but I stick to bananas and avocados with the odd pear or nectarine. I avoid the nightshades too, esp tomatoes and peppers and peanuts. Dried fruit is poison to me, all that concentrated sugar. Yikes.

chocolates and coffee are bad for my LP,I have chamomile. It's very hard but when you are having no symptoms again it will be worth it. You might know all these things already, just tell me to shut up lol ...it's my age!

Thoughts are with you for a better day every day! X

I also take a probiotic heavy duty thing ( and flax seed oil, that's more for the old bowels though.)

Hi

Yesterday was better but I thought it ok to have peanuts.  I had those, and I also thought bread was ok as it didn't seem to effect me.  But I have awoken with burning throughout my body again!  I really do not know what to eat as everything starts it off again!!! 

If I give up wheat and gluten, what can I eat?????

It could be I cant eat wheat or gluten.  So what is a good diet to have.  because this rules out bread, and pasta.  I work outside a lot so always take sandwiches with so now I guess I have to live off salad only????

My God this is impossible to deal with.

Jan, sadly peanuts seem to be bad for mine too and especially LP for some reason. I have been warned by OLP women to avoid the nightshade group entirely for my LP ... That's peanuts tomatoes all peppers and those purple things oh eggplants. 

I eat gluten free bread, it's got linseed and chia in it, makes lovely toast. I also eat bagels that are GF. Any veggies, make lots of soups with kumera and pumpkins. I use a type of dairy free sour cream from the health food shops. Bananas and smoothies with blueberries are my breakfast with chia seeds and herbal nutrients I eat organic chicken and cook my own with stuffing made of gluten free toasted bread, walnuts and an apricot. Lots of fish, including sardines. Small amount organic eye steak from butchers. Hub eats the same but loads up on spuds and makes packet gravy for him.

Snacks are brown rice crackers, feta cheese, bit of fruit, nuts, seeds. Chamomile or peppermint tea. 

I lost weight at first, quite a lot but now even out at 66 kgs I am 5'7   Which is perfectly normal. I was quite overweight before.

you can get free many things you will find if you take that route. We have special GL warehouses here and many are dairy and soy free too . 

Dont forget rice, you can eat that. And cereals without wheat. 

You're getting there Jan.

lall the best

Lynne x

Did you know that peanuts lower your immunity?  I found that out the hard way, already behept with a poor immune system at the time.  Never touched a peanut again after that.  

You can eat vegies to your hearts content.  It solved many a craving for me.  I sometimes just cut up a pepper and munch away. No harm in that.  A handful of almonds (no more) will also help you out.  Sunflower seeds are okay.  

It takes a bit of time to figure out what you can safely eat.  Perhaps look on the net for certain diets and alternatives.  

For my breakfast for instance I use cooked millet.  I cook it for a couple of days at the time, mix in coconut oil when still warm.  I combine five spoonfulls of millet with a handful of sliced almonds, a handful of sunflower seeds and a small amount of flax seed. Then add some cinnemon,  a tablespoon of kefir, top it off with berries, frozen or fresh. There's a safe breakfast.  

For lunch I eat two slices of buckwheat bread, with a few slices of cervelate and some parsley. Another safe meal.  

Supper is the easiest:  small piece of meat,  small amount of potatoes, lots of vegies. ( beware of peas though)  

I drink lots of herbal tea, morning till evening.    

Hi Lynne

I love bagels but they are made of wheat and that could be a trigger.

Hanny

Gosh you have this all sussed.  I have never had millet before.  I normally have cornflakes but obviously they have wheat in them so perhaps a no no.  I don't know what I am allergic to and there doesn't seem to be tests that I can have.  I dont think I  can buy kefir here but I will investigate it.

I will look at gluten free bread first and see if it is gluten that is the culprit.  I will give up nuts.  Gosh, this certainly isn't easy.  Artfair next week, so not sure if I should make sandwiches or salads to take with.  I will be terrified to buy anything out now!  Hungry now as skipped dinner.  But its too late.

I hope I can sleep.  

gLuten free ones that I eat Jan have no wheat. 

Oh oh and Jan, I have started going out for picnics and take boiled eggs and gluten free bagel, I have spread made from olive oil or avocado, veggie sticks like carrots and brown rice crackers with nothing but brown rice, we can buy them here in supermarket. A chicken wing and a piece of pear or banana. 

A big fat piece of surgery cake for the Hubble that I bake him once a weekcos he deserves it,

you sort of have to give up loads at first but reintroduce a food at a time and see how you go.

if you eat porridge, oats shouldn't bother you. It's the gluten in wheat barley and rye which Is the bad stuff. 

 

....that would be sugary cake for the hubby lol ...

Nowadays Jan the supermarkets have a section with gluten free items.  Be careful though, gluten free often doesn't mean sugar free.  It takes a bit of reading on what's all in it.  Gluten free noodles take somehow a bit longer to cook, but not bad if you want a change.  Nuts are okay, not peanuts, almonds are beneficial.  

Perhaps there is a local bakery that makes gluten free bread.  The factory gluten free breads I purchased early on were not nice tasting.

Buckwheat is also a good alternative.  It has an extra bonus - it helps your sugar balance.

Early on I ate a lot of salads, without noodles mind you, and watch the dressing.  Away from home it was for the time being my best choice.

The biggest bonus was weight loss.  Today I'm almost back to what I used to be in my best days.  I even enjoy putting on some nice clothes again.

Don't go hungry. Eat at least something, vegies, a sauer kraut dish is also a good one.    

Hi Lynne

Gluten free bagels are fine.  I just had one with smoked salmon and cucumber.  Kefir's horrid though but I will persevere with it.

 

You mix the kefir in with something.  I mix it in with my breakfast for instance.  Probiotics.

Hanny

Can you mix Kefir in with porridge??

 

I think you can.  I also mix it in with mashed potatoes for instance.  Some put it in smoothies.  Just so you have some probiotics in the system.  Happy intestines make for a better life as well.  Look at the package for the right amount thoug. 

though