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Lichen Sclerosus and Lichen Planus - OMG ITS BACK

Posted , 7 users are following.

powerwoman
powerwoman

Hi

I was just coming out of a terrible flare up for 2 days.  And today I went to the doctors to get some anti depressant pills.  I then had to go to the dentist.  I thought I would have a coffee in costa.  I saw a very small granula bar. I asked if it had sugar in it and they said no. I purchased this.  I had one bite only of this.  I could taste sugar.  It is now 2.30 am.  I have woken up agin to a most terrible flare up.  OMG it is back again!!!

I cannot believe this.  I can't afford to be ill again when next week I am back at an art show.  I have a very large picture on my table to frame.  The framing takes a day but I need to be well to do it. And now this!!!  My life is really awful.  Why did I purchase that granola bar.  I knew it had sugar on one bite and now its back again!!!

I am afraid to eat anything out!  At home I know to avoid sugar completely!  I am praying it will be a short flare up but I can feel the burning throughout my oesophagus right through to my vagina!  This is a terrible sign!!  And this is only with one bite of the bar!!  Imagine how bad I would be if I had eaten the whole thing!!!  I am wondering if my life is worth living anymore because I cannot bear this disease!  It has killed my quality of life completely.  I am constantly ill with this.  And tomorrow I have to go to hygenist and now do not know if I will be up for it!  I am so depressed!!  

1 like, 53 replies

53 Replies

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  • powerwoman
    powerwoman

    Posted

     I will try millet bread. It doesn't contain wheat or gluten!  Yay! I might avoid total starvation!!!
  • powerwoman
    powerwoman

    Posted

    Hello

    I am beginning to think that perhaps I also have coelliac disease!  I am getting a weird burning feeling throughout my body, either diarrhea or constipation.  My feet are inflamed.  I have had this feet problem for some time.  Doctors don't seem to know why I have this.  I am definitely going wheat and gluton free.  I am wondering whether my doctors could test me for this.  I will ask next Monday as I have an appointment there.  Yesterday I had only bread and a few nuts.  And the night was awful.  This is all hard to live with right now.

  • powerwoman
    powerwoman

    Posted

    Hello everyone

    I have just been to supermarket and am armed with gluten and wheat free bagels, bread, crispbread and pasta.  I found gluten free soup too.

    I finally found Kefir.  I just had some and it's pretty horrible, but I will take it like medicine and hope to develop a taste for it.

    I am determined that I am not going to let a man or an illness destroy my life!  I am a survivor and you all must follow suit!

    We must rise to the challenge of this illness and beat it.  Diet is a huge contributor and you must all find what 'flares' you up, like I am doing.

    J

    x

    • powerwoman
      powerwoman hanny32508

      Posted

      thanks Hanny.

      I haven't had burning all day.  Not sure if it is coincidence yet though!  I will update on Sunday.

      J

      x

    • lynne1945
      lynne1945 powerwoman

      Posted

      Bless you Jan, I can just see you buzzing about fetching all your precious victuals! Remember you can make your own soup, I do it all winter using red potatoes, we call them kumera and a quash and carrots and celery. You hardly need anything else just the water to cover them and maybe if you can tolerate a grate of ginger or dash of herbs. When boiled and blitzed and thinned a bit they lovely. I had a non dairy sour cream last year I used to stir through and gluten free croutons. 

      Youll soon be cuddly again 😀

  • powerwoman
    powerwoman

    Posted

    Hi

    Had burning during the night so had to take an anti histamine and put the cream on.  Sigh!  I am not out of the woods yet!

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