Lichen Sclerosus Treatment

Thank you very much!

Also Carolina, the stem cell treatment only works for about 18 months, then it needs re injecting, this is why Nathan Newman works out cheaper long term. If you do use protopic, use it sparingly, start with o.o3%, and gradually add in a little 0.1%, do this over a few weeks until you use all 0.1%. if you use 0.1% straight away, it is painful, especially on broken skin. Protopic works, and after the first few weeks you only need to use it once a week or so. I cant say if you could still have sex with protopic. The good thing about stem cell treatment is there are no creams or ointments involved, so better for you.

Thank you very much Mary hopefully things will go the way you say =)

Thank you very much for this information...sadly for me I cant use tacrolimus because I have HPV and that would activate the virus and the condylomas..honestly I dont even know which disease is worst...I found in my country a dermatologist that is very nice but has never treated the disease honestly I know more than him.. he was prescribing steroids he did not know that it will activate the hpv virus. I am trying to contact some doctor from another country but is not like I can have a telephone consultation..I dont know what I would do until I raise the money to go to another country is just sad the situation in third world countries like mine

I appreciate the support, take care =)

Caroline, is hpv papiloma virus? I can understand that, because tacrolimus or as its also called protopic, repels antibodies from the skin surface, so if you have infection also it would make it worse. Very sad that you are in a 3rd world country, but God has ways of helping us, keep praying xxx

Terrible to be so young with this disease. So very sad for you. I do control mine quite well without the use of steroids. Yes, the coconut oil is good for moisturizing...I do use that sometimes. However, what works best for me is to put witch hazel in a small spray bottle...it is an astringent and skin conditioner. It can sting a little but that goes away quickly and it helps you heal. I use this several times per day after toileting and then for the itching I apply a small about of 99% pure or higher organic aloe vera gel. It also improves the skin after you have used it for awhile. I haven't tried this yet, but just ordered a jar of manuka honey. Another LS sufferer has said she applies a pearl size bit and rubs it in well every night at bedtime. She has kept her LS healed for 3 years. Manuka honey has great healing properties which is also supported by the medical field. It is quite expensive ($30 to $40 for a small jar)...but it lasts a long time...and not nearly the cost of the stem cell or other treatments. These are natural things to try and may very well help you. Keep in touch on these LS forums...lots of information...lots of us looking for answers. 

Rennee wouldnt it be wonderful if there was a natual cure, live in hope x

Hi, Carolina,

Best thing to get rid of HPV is black cuman oil. One month and it's gone. But..you have to buy good one from Egypt or Saudi Arabia.

I am going to try it soon to cure LS.

Good luck to you, dear!

If the witch hazel stings too much then go to two pinches of bicarbonate of soda in an 8 oz. spray bottle and try that. Many have good results also with this solution after toileting. It is important to keep very clean. Also for washing try using only a pure coconut oil or olive oil soap without any added perfumes.

They say there is a cure for everything in nature...the trouble is finding it. I keep researching and trying different things. I do not do anything that I believe would be harmful and do keep regular doctor appointments. My doctor lets me do the things I'm doing as I'm having about the same results as those that have gone the steroid route. This disease is much more prevalent than has been reported as it has been misdiagnosed so much.  One report I read says that as many as 1 in 70 women will develop it sometime in their lifetime. Definitely the scientists and medical field need to sit up and take more notice.

I know, dont they just! Its an awful illness, if it was 1 in 70 men there would be a cure, take it from me, same as if men had babies we would all be extinct lol. I think some doctors see it all as part of a womans life, like the menopause, your a woman, get on with it! You know Renee before they find a cure they have to find a cause, should be interesting. I used to go on forums, trying desperately to see if any progress had been made, I have shed buckets of tears over LS, we all have, its just a devastating disease. I find it is worse when I have acid stomach, anyone else notice this?

Do you ingest it or apply it? 

You made me smile!  and chuckle!  I've been suspicious of the hormones in birth control pills and in the prescribed hormone creams as they come from an animal and not human or plant source source.  I had my first serious flare after using the hormone creams. Aids came from chimpanzees and some veneral diseases came from cattle and sheep...so who knows.  I've read alot about gerd (acid stomach) and the lichen also...and I have mild gerd...so it's possible there is a connection.

You made me curious so I investigate black cumin oil.  If applying it topically they say to mix it 50/50 with jojoba oil so as not to cause skin irritation.  I would think hexane free castor oil would also be a good choice.

Hello Renee,

You know I come from England, I think you are from the USA. We are a small island here, with well over 60 million people, and our water is cleaned with silicates every time it is released for use. Tests have shown that our tap water contains so much female hormone from the pill it has made male fertility fall by , well 10 years ago it was 25%, so it must be more now. Also chemicals are added to clean the water, and disinfect it, and aluminium, aluminum to you, is also added. It is a well known fact that aluminium causes alzhiemers and dementia. Look this up, about 20 years ago at the water works in Camelford, in the South West of England, an employee accidentally put a thousand times the prescribed dose of aluminium in the water, this went undetected for a few days, and was of course drunk by the inhabitants. Camelford has an epidemic of dementia and alzhiemers, that is a known fact here in the Uk. I am not sure if it is in Devon or Cornwall.

Also Renee, I have read things over the years, and on here, where its said LS may be a sexually transmitted disease, or the result of gnat bites, which well it might. To throw a spanner in the works, why is there a high instance of LS amongst Downs Syndrome sufferers? Many have LS from childhood. But that does not rule out the two other theories! X

Ingest! 1 tea spoon in the morning and 1 in the evening during one month. Arabic doctors cure brest cancer and other cancers with black cuman seeds and its oil. It adjusts and stimulate immune system killing viruses and cancer cells. LS is autoimmune disorder i know..though reumatism and diabetes 1 type as well...but they cure these diseases with black cuman, so i think it would work good for LS too! I haven't started to take it yet, waiting until my cousin will deliver it to me from Kiev (I live in Ukraine). Oil is bought in Egypt by my friend who lives in Sharm el Sheikh )) sorry for the long story. By the way black cuman seeds (and oil made of them) are antiparasitic, so i am sure it helps to clean the body from any possible parasites i have including trichomonas which i think are the reason of LS in the end of all...

Cumin.. sorry for my mistype

Yes, I'm from the USA. I have visited your amazing country...so beautiful and so lush with history. We have problems with tap water as well. We were told for years to flush our old medications...so now it shows up in our water...and yes, aluminum is a very nasty, nasty substance to ingest. I use water filters to help remove toxins to make my water more safe. But you can't avoid all the toxins...in your clothing, in your vehicle, in the air...so eating right becomes all the more important for us with LS. So sad for the families affected by the aluminum disaster in the UK.

Thank you for the information. I had not heard of the black cumin seed oil before.  Olive leaf extract is another amazing substance used in other countries for breast & uterine cancer and many other illnesses. It is a natural antibiotic, anti-fungal, antibacterial. I may try it again. You can have a die off effect...which I had an extreme case of that was very unpleasant...but did prove that there was something definitely not nice going on in my body.  Currently I am doing a parasite cleanse with black walnut hull extract ( a liquid), wormwood and non-irradiated cloves in capsule form.  You do it for 18 days following a schedule that gradually increases the dose so that you can reduce any die-off effect.  I will definitely do more investigation on the black cumin oil.  Please tell us how you do with it.  You may also want to try the application of manuka honey that another contributor to this site has said that a pearl size amount rubbed into the affected area nightly has kept her LS away for 3 years. I am anxiously awaiting my first jar so that I can try this.

Thank you very much I will take note of this!

Thank you very much I will take notes!

Take care=)

i've heard of black cumin seeds helping to control parasites which get through as a result of a damaged gut. Thanks for this...love the sharing.

hi imo

i've just attempted to write an explanatory piece about this....acid reflux (is actually due to low stomach acid...but acid is regugitated as the bolus of food turned out into the jejunum is sent back to the stomach for proper acidification...the stomach has reduced acidity often because hpylori has got hold....because of the low stomach acid...the normal high acidity would usually keep it in check. Thus the stomach pushes the food back too...so you get reflux. The body is trying to say no to junk foods and to reject the crap...but we don't listen...ha!). It was in reply to suedm. Its on my thread called.... 'i'm a failure'....just to inspire you with confidence!! x