lichen sclorosis and Lyme Disease

Thanks Hanny. There really appears to be a connection between Lyme and lichen from googling..I am so not certain of anything right now..Your right Lyme is just horrible..and lichen does not seem to be half the problem once thought it..not to minimise it nor all our experiences with it but this other disease is shocking..

That is weird.  I always used always towels too as they did not leak.  My sister is a midwife and she said she notices that women who use their towels have a certain smell about their private parts.  She can tell which of her patients use always towels.  She won't use them for that reason.  I hope this is not contentious just stating facts.  Anyone else use them?

Chrissy, I recall an LS site a few years back, and always towels were a topic then, I only started getting LS after I began using them, the itch used to be unbearable. Then you find out that the absorbent powder is more or less cat litter! It took a while to realise it was always which caused the ithching, but rhe damage was done. I do feel that as with any other product, always and similar products should display the ingredients/components on the pack.

You are so right there.

Testing is the problem here. Testing for Lyme is horribly flawed. Once bitten or infected there is a very small window of time before the virus leaves the blood and takes up residence elsewhere within the body, Plus the tests are proven to be inaccurate to a fairly high percentage. However, Lyme can re-enter the blood at a later stage be perhaps diagnosed. Most testing is now done at Porton Down,,I shall say no more on that,,hmmm. Lyme mirrors fibromyalgia and Polymialgia as well as a few others. In other words the symptoms are the same across the board. None of these disease have a pin point bloodtest which is very scary when you start developing symptoms and there is no easy diagnosis. As Lyme is treated with antibiotic and the rest treated with steriods it vital to be cautious as steriods make Lyme dynamic. The last few weeks have been an education I could do without. Right now it appears two camps are forming in the scientific world..one says this is can be a sexually transmitted disease, the other lot says it is not. My consultant leant towards the yes camp. What truly infuriated me was a US study I read showed Lyme bacteria appeared to be found in vaginal secretions and semen. This did not make sense as if you cannot find it easily in the blood why so easily in vaginal fluid and why don't they adopt this method of testing? I think that particular study was an attempt to bring back the days of the AIDS virus and the fear factor..this whole field is a minefield and there is polorised thought every where

Sky I took on board everything you said, you explain wonderfully. Yes, if it is found in vaginal fluids, it would be a simple swab test, rather than so many blood tests.

I remember going to my gp saying I thought I had fibromyalgia because I had so many symptoms, he was not very nice, made a few snyde remarks, in the end I went to see an endocrynologist who diagnosed me with auto immune disease, a type that is undifferentiated, meaning it can be all symptoms, they cant define which one. I wish you well Sky, and hope a cure is found soon.

Thanks for the wishes.appreciated. Now is my time to fight on this thing..I appear to be leaving no stone un turned trying to wake professionals up to this thing and the misery it is causing..hmm..when dealing with snide remarks from people in power I think it is always best to try to get them to say what they mean..'I did not quite understand your last sentence, sorry, can you rephrase it? and smile...thus often causes throat clearing or the shuffle of a bottom on the seat..Not certain about a blanket diagnosis of auto immune...because how do you treat such a huge disorder...keep a diary for a bit..mark your good and bad days and list your symptoms as they appear..see what is re-occurring and how many days are wellness days.

..I wish you the best. I hope you stay in touch|