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Light at the end of the tunnel

Posted , 3 users are following.

fussybag
fussybag

Been taking mxt for 2 weeks. Am taking next dose tonight. Was really sick and queezy for the most part of the 2 weeks, but it is beginning to subside now. Will soldier on and see the outcome. It is annoying but I suppose it will get better.

0 likes, 22 replies

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  • mrsmop
    mrsmop fussybag

    Posted

    Hi Fussybag, why are you taking MTX?  What dose are you on?
    • fussybag
      fussybag mrsmop

      Posted

      Hi rhere. I am taking mtx for RA. Started off on 4x2.5mg for 2 weeks then was supposed to go on 6x2.5 for 2 weeks. Unfortunately I was physically sick after the 2nd dose, doc cut me down to 3x2.5. They may take longer to get into my system but if they suit all the better. x
    • mrsmop
      mrsmop fussybag

      Posted

      What time of day do you take it?  I take mine at around 5pm and now take the folic acid at the same time.  I have written this elsewhere but,  after a few months on MTX,  I suddenly started to feel very strange when I took it, as though I was about to pass out.  My Consultant asked me to try taking the MTX & Folic acid at the same time.  It appears to work and I no longer feel so ill.  I know he wants to increase the dose but I can't see that happening in the near future.
    • fussybag
      fussybag mrsmop

      Posted

      Take it just after my tea about 6. Take the folic 2 days later. I am on 8 other tabs for various condition and doc wants me to persevere cause mtx is a buddy tablet. Gets on with all tabs. Going away soon so am hoping I can progress so I wont feel sick on holiday x
    • mrsmop
      mrsmop fussybag

      Posted

      I read, can't remember where, might have been an insert that the Pharmacy gave me, that you should take it on an empty stomach, then have food an hour after taking it.  They seem to have changed the recommendations on when to take it.

      I hope you have a good holiday.

  • connie49452
    connie49452 fussybag

    Posted

    Hi there. I've been reading your conversation and can only offer the following tips?advice. I've been taking Mtx about 2 yrs now, first as a tablet and now as an injection. It does taking a while for your body to get used to it and there are unpleasant times to cope with but it's does usually get better and the benefits to your RA symptoms are worth it. I was told it's best to take at night if possible as you don't notice the nausea etc when you're asleep. Also don't take  folic acid on the same day....interfers with absorption. Hope you're feeling stronger and more like you're old self soon.
    • mrsmop
      mrsmop connie49452

      Posted

      Regarding the folic acid, I was told not to take it on the same day until very recently, when my Consultant told me to take them together because of the adverse reaction I had started to have when I took the MTX
    • connie49452
      connie49452 mrsmop

      Posted

      Then I'd say follow your consultant's advice as they are the experts. Try taking it before bed though to see if that also helps.... worth trying ! 
    • fussybag
      fussybag connie49452

      Posted

      Know what you mean. I suppose any tabs knock you a bit sideways at first. Willpower is needed for most things but it is nice to hear most people say it is worth it. Thanks x
    • mrsmop
      mrsmop fussybag

      Posted

      I am fortuante that I have never suffered from sickness with any of the drugs I take but I do occasionally suffer from feeling as though I am going to black out any minute.

      I was recently referred to the MaxFax people and the receptionist asked me why I was on MTX, she also had RA [I don't] and had been taking MTX for 20 years., with very few problems.

       

    • fussybag
      fussybag mrsmop

      Posted

      So dont mind me asking, what are you on it for. I know you mentioned you had 3 auto immune things x

       

    • mrsmop
      mrsmop fussybag

      Posted

      I take it because I have Cicatricial Pemphigoid, now known as Mucous Membrane Pemphigoid.  It's a skin disease.

      I also have a rare form of Uveitis and recently developed PMR

      I don't mind you asking!!

    • fussybag
      fussybag mrsmop

      Posted

      We ought to write a book!!!!!!! I have diabetes, TIA attacks, High choles. and blood pressure and melasma, and now RA. Aren't our bodies wonderful lol xx
    • mrsmop
      mrsmop fussybag

      Posted

      Absolutely!  I didn't bother saying I have high cholesterol and Blood Pressure too.................but it could be worse!!
    • fussybag
      fussybag mrsmop

      Posted

      Definately. Hubby says to call it Medical Mystery Tours hee hee x
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