Light-headed, dizzy & spaced out for 2 years, can anyone help?

Hi DizzyDebs. I just joined this site when I saw your post. I have been trying to figure out why I am feeling almost identical to way you described yourself. I did have a sinus infection few months ago, and since then have had this feeling of fogginess. It got so bad I had to stop driving and check into a hotel, and went to a clinic where they gave me antibiotics. I started to feel better, but then the dizziness came back, it comes and goes, more severe at times. I also was diagnosed with Essential Tremors few years back, so having those, and now this is very scary. Simple things like typing, driving, signing my signature, talking are difficult.

I have been traveling since it started 4 months ago, but will finally be home soon, where i plan to start seeing doctors. I know it is gonna be hard to describe what i am feeling, so reading this post has really helped me. And gave me relief that I am not the only one suffering from this. Not that I would wish this upon anyone!!!! Any suggestions you can offer on what to say to doctors will be much appreciated! Hope you have gotten relief!

Hi Dizzy, my name is Ross and I'm a 31 year old male from the US.

I too suffer from a similar problem. Here's my story...

I went to Las Vegas for a friends bachlor party, drank all weekend and flew home on a Sunday, I felt fine, just a bit hungover.

That night I came down with a very high fever and flu.

A few days later I was beginning to feel better, however I felt a bit disoriented and just blew it off thinking it was my body getting over the flu.

Days went by and symptoms got worse. My eyes always feel tired, like I haven't slept in days, my eyes burn and hurt like they are always strained. I'm ALWAYS lightheaded and somewhat dizzy. Fast head movements make me feel sick to my stomach. IT NEVER GOES AWAY. I can no longer fall asleep like I used to, caffeine and other things like alcohol have been cut out of my life for the past 8 months and still no change for the better. I have been to about 10 different specialists and they all write me off and say it will go away, but I know it won't.

I've began to self diagnose and research and I'm beginning to think that my brain chemistry is off causing neurotransmitters to misfire and send incorrect signals. Have you ever been tested for that?

Also, have you looked into chronic fatigue syndrome?

I am in the EXACT same situation. I'm 17 and cannot even get out bed anymore because I am so dizzy, lightheaded and feel just completely s**t. Had every test possible done and have been told "it's just stress." Don't understand how stress could make me bedridden. Hope you find answers really soon!

Moderator comment: I have edited this post due to the swearing. These are open forums so as per the T&Cs please do not use offensive language in posts otherwise they may be deleted.

Hi dizzy I have had the same and I'm getting over it . I spent to much time enjoying the buzz lol. I may be an infection lingering in your body but mine seems to be thick blood . What I do it drink an alcoholic drink to help kill stuff in the blood every now n then but to start with take 2 aspirins before bed then again before work in the morning if you feel better you may have thick blood they never check for that. Anyway if so check the Internet for natural blood thinners like vitamin e . They would be better for you I would think . Good luck!

Hello DizzyDebs,

I feel dizzy 2.I can't imagine right now feeling this way for 2 whole years. I truly sympathize with you or should I say empathize. This feeling is no joke and just like you I had several test such as CAT Scan, MRI, and Echocardiogram done just last week to see why I was feeling so dizzy. All tests including blood came back negative thank God. I might have one or two goods days then right back to this which has been going on for about 3 months now but has gotten worse over time. I thought it was a product I was taking for weight loss but I stopped taking that. I also changed my lifestyle to that of Vegan and thought perhaps it was a detoxing side effect from that. I don't know what to think anymore but I pray that we both get over this condition very soon. By the way, would you happen to have a Saatva mattress? This feeling started right after I started sleeping on mine. Just wondering.

Hello,

for those of you who are dizzy, try plugging your ears with silicone plugs for a week or two (one ear at a time) and avoid every little sound, including the sound of running water, motor sound of fridge, AC/heater, car rides and even talking and see if it makes any difference. I had the dizziness and oscillopsia for 4 years and had multiple tests, MRIs, CT scans and none of the doctors could figure out what was going on. I didnot realize that it was sound (even the sound of the fridge and that too a new one)  could create the dizziness and oscillopsia for me. Please change the plugs before it starts breaking off in your ear. When you plug, make sure the sound doesn't penetrate through, seal it well. If this helps, please notify your neurotologist. Sometimes, it is difficult to diagnose a fistula/dehiscence in the ear.  If this helped, please let me know so that we can help others.

Thanks and good luck!

Wow. I have the exact same. I am on escitalopram too. Been to ENT and MRI and nothing found. So frustrating. I am tired, spaced out,  anti-social from it. Have you found any solutions. Am 39 had since my last baby at 32. So over it. 

does anyone feel visual sensory overload; as if their eyes and brain aren't fully connected and refuse to just take in all the visual stimulus around us? 

Apart of the drugged / drunk feeling and cognitive dysfunction and brain fog, my vision problem is probably the worst thing to deal with! I tend to wear sunglasses which kind of minimizes the stimulus and definitely help with photofobia and fluorescent light ! 

Anyone feeling the same way ? 

Hi ,did you find any answers ? ,I'm exactly the same and have been for 6 years

I had the same problem a few years ago and had actually commented as well..was so bad this feeling and no logical cure ....untill...my dentist took an xray of one tooth and it's filling and discovered there was decay under the filling..so I had to have the tooth redone..cleaned all the decay out and a huge new filling..sore gum etc for a few days but now all dizzyness has gone.. disappeared.vanished..im not walking about like a zombie anymore trying to disguise that I'm not feeling quite right..I never ever would have thought it was something to do with a tooth and filling..

i have this same feeling.. i do all tests and its all normal.. when im in a vehicle i feel normal but when i out for walk i feel the dizzy spell.. pls. any one help us what do we need to do..

feel like fainting, palpitaion,ringing ears, chest and back pain(i think because of strees) pls.. we need help..

Hi Deb,  I am 51 have have been lightheaded for 5 years. Theat same feeling as you unbalanced unable to think fast, eyes blurry,  using a computer is the worst and my phone. Not so bad when I watch TV. Not bad when I sleep.

I have been to 11 doctors and had ever scan but all clear.  I do noticed when I eat certain foods now it gets worse coffee, beer, wine whiskey, foods with lots of sugar. So out is all the fun stuff.  I am thinking of quittin my full time job and doing something that does involve a computer.  Every day I think I hope I die young. This Sucks!