Light-headed, dizzy & spaced out for 2 years, can anyone help?

Hi Debs,

I have searched high and low for someone who feels the same as me!! 

I am 29 and had this feeling for 2.5 years.

I'm really struggling because it is also affecting my life! Especially work

Did you get any further with your diagnosis? Do you feel any better? 

All the best,

Frannie 

Hi,well ive been suffering with this dizzy rubbish for 7 years and have found a forum on facebook very helpful indeed, its labyrinthitis support page, I am know trying to self help with VRT ,im at a really low point the past few days ,really dizzy my dr has said its labyrinthitis again, but to find out why it keeps coming back is the main issue,im on dizzy tablets which are helping but just masking it, if the inner ear has been damaged due to a virus then im thinking it will keep coming back with viruses or vigorous head movement ,theres a really good site VEDA really helped me to understand more and not feel alone 

all the best

 

Hi, I've had this dizziness for about 4 years now, it started when i was about 18. its really hard to cope with sometimes, but im trying to hang on! i hope you did get better.

Hi there,

I am still experiencing same symptoms but with less intensity. I strongly believe that mine is stress related. Recently met a person that had exactly the same symptoms and said that his went away when doctor prescribed antidepressants. Velafax and later Amyzol (European brands). He claims he's fine now.

I am very reluctant in going on AD but this makes me more convinced that all this sh** that I've been going through for almost a year is stress and anxiety related and that I have to make some drastic changes in my lifestyle and way of thinking.

I strongly believe that my nervous system is overworked (stressed) to the point that it affect the nerves in the balance system.

Hi everyone,

I have just come across your discussion yesterday, it saddens me that so many people are going through this. But also a relief to know im not alone. I have been experiencing the same things for about 4 years since the passing of my mum. I am only 32 now and this has affected my life greatly the last few years and stop me from doing things. I have tried many treatments and doctors don't seem to give any notice. I am currently undergoing treatment via a chiropractor advanced biostructural correction ABC have you heard of this? It is helping but the dizziness hasn't gone. Is there anything anyone else can recommend?

Thanks in advance :-)

Hi Deb! I see this post is 3 years old how you feeling now? I am going through the exact same thing (since feb 2015) from the time I wake up till I go to sleep. I’ve had every test under the sun and all negative. To make things worse I been having strange chest pain too in random areas (just above the pecs all across middle of chest and down the left side) Again, all cardio tests negative. My quality of life is being affected I’m scared all the time. Don’t know what else to do. My specialist is out of options.

Hi Deb,

I hope you still get notifications for replies to this post you made 3 years ago! My name is Steve, and I have the exact same symptoms that you described in your post. I had vestibular neuritis 2 years ago now, and have recovered to a point that sounds like how you detailed. I have to say that I can go for a stretch of maybe 5 weeks or so feeling great, with few symptoms, and I think that maybe I put it all behind me, and then for some reason the symptoms return.. mildly, but enough to make going to a supermarket, a noisy busy social event, or just unfamiliar close surroundings very challenging. 

Given that you posted this 3 years ago, I'm really interested, and hopeful, that you've improved. Would you mind taking a minute to let me know how you're doing?

Thank you, and all the best.

Steve

 

Hi - I just stumbled upon this post trying to figure out whats wrong with me.  I started feeling a bit off awhile back. I'm an athlete so I just thought I was tired and took some time off.  It got worse so I had some blood work done.  Everything was fine except my BP was a little low, my Iron was a little low & my Progesterone & Estrogen had dropped?!  My Doc put me on some Iron tablets & lifted my hormones.  Its been a month now and I'm just getting worse...I've gone into depression, I feel like I'm on some kind of drug in La La Land.  I don't know If I would say I'm dizzy, just way off-super lightheaded.  Noises bother me and I don't trust myself in grocery stores or where there is a lot of people/commotion going on.  I actually chewed someone out the other day - not like me at all.  My eyesight is blurry - just like I'm drugged up.  There is also a ringing in my ears that I've never had before & it doesn't stop.  Weirdly, I make myself go out and walk - it seems like the unbalanced/lightheadness that I feel when I'm just standing/sitting/doing normal stuff feels normal when I'm in a state of moving, like walking.  So far, I've had colonoscopy- she thought I might be loosing blood there - clean as a whistle, endoscopic - yes, there is some GERD but no blood lose, Vitamin D/Bs tested-fine, Eco on my heart-strong as ever...now she wants to send me to have a Pap Smear - Cancer? She even mentioned Chronic Fatigue - no disrespect, but 'Syndromes' are just another phrase for 'I don't know what the heck is wrong w/you/'.  Has anyone come across any concrete evidence to these symptoms - as they are so similar to the people in this thread.  It is becoming debilitating as I'm not doing anything now but hanging out in my house...I'll be honest, if this is my lot, I don't want to stay here.............

I was really interested in this post - thank you very much for sharing.   At age 32 I was diagnosed with MS which manifested with a lot of eyeproblems - Nystagmus, loss of colour vision, double vision.   I also had a relapse where I had strange muscle spasms in my neck. Also Tinnutus.  Lots of other stuff has gone on but the most debilitating one is very similar constant feelings similar to DizzyDebs. i.e. feeling very confused and strange vision effects on going out - having to search the shelves in shops becomes impossible after just a few minutes.., Supermarkets being almost unbearable.  Unable to think clearly to the point of having to abort any trip and go home. Even time with my Grandchildren is very limited.   This has been happening for many years and each time I try to explain to Docs/Neurologists I get the same response "Anxiety" and am sent for CBT or other courses to do with stress reduction - none of them make any difference at all to the problem.   I am not at all anxious to go out - I do not feel stressed - BUT once I am out Then I do feel anxious because of the disorientation I am experiencing.

I teach Yoga and do understand how the mind/body interacts and how thoughts affect the physical body.

I do all the positive mind talk when I'm out but that doesn't work either. To me it feels a very physical - not mental problem.   I am now 70 and feel my whole life since MS diagnosis has been dumbed down by this problem.   I know I could be in a much worse physical condition if the MS had affected my mobility - but this brain fog etc. is extremely debilitating and I just want to find a way to help myself as much as I can.   Being labelled as 'anxious' has followed me from Doctor to Doctor and each one just seems to go along with the written history- I've had enough!   Can anyone throw any further light on this please?   Thank you for staying with this long request..

I know this is an old discussion but you described exactly what I have been experiencing for 6 months with no answer. It’s a faint feeling. Not dizziness. Did you find out the cause?