Lightheadedness.....
Posted , 9 users are following.
Hi I'm Steve, 32.I'm not sure I'm posting in the right area but I'm really hoping some one may have a inkling as to what's going on... Mid December I was driving down the road and all of a sudden I got tingles down my arms and legs and my heart rate shot through the roof. I managed to drive myself to the hospital thinking I was having heart attack. I had all the usual routine checks and was told it was a panic attack.... Went to see a Dr the day after as I still felt awfully lightheaded with pains everywhere. Again I was told it was a panic attack, take some proponolol and it will all go away... After taking them for a few days I was rushed back to hospital as they had made me look like a zombie... I was in bed for 6 weeks due to this horrible lightheadedness, I kept going to the Dr's to be told I'm stressed, depressed, and its anxiety. I'm not stressed, nor am I depressed, nor am I an anxious person. I went to see a mental health nurse who said that I wasn't depressed or anxious in any way and to go back to my Dr. After 6 weeks in bed I was still lightheaded with pains all over..... We are now 4 months on... I'm still lightheaded, mostly feeling like I'm going to pass out ( although I never have actually passed out) Im getting alot of headaches, pains in and around my ears and have qiuet bad tinnitus from it all. Loud noises all of a sudden make my ears crackle. I've now been off work 4 months as I drive children for a living and don't like the idea of driving while lightheaded. Dr's are taking no interest at all, I've paid to go private for a brain and auditory mri scan next week ( which I'm 99% certain is going to come back all clear but it's another thing I can tick off the possibilities) I also have a cardiologist appointment ( which I had to really push for through the NHS in 3 weeks) My blood & oxygen pressures have been fine. I was given sertraline, that just made things worse, they then told me to try duloxetine, that has stopped some of the chest pains I was having but done nothing else.
I was prepared for any outcome of this even if it was a depression I didn't know I was having or anxiety. But 4 months on and I'm still not right.
Does any 1 have any sort of info on this or has had any of the same symptoms? Please do get in touch. Every little helps. Thanks all.
0 likes, 37 replies
MILAO steve03579
Edited
Hey,
Sorry to hear you're going through a hard time. I can relate with a similar story to yours. I am 23 years old and healthy, had bouts of "anxiety" in my life but nothing major.
Back in June of last year I woke up one morning feeling a little "off". I jumped out of bed to then experience tingling down one side of my body, slurred speech and extreme panic and anxiety. My heart was pounding so fast I nearly fainted. An ambulance was called and I was rushed to Hospital. I was discharged as having panic and anxiety the same day. The following day I had an even more extreme "episode" - again with tingling, slurred speech, throat constricting, heart beating, blood pressure sky rocketing, and very unsteady on my feet and I could barely stand let alone walk. I could not even understand sentences! An ambulance was called and I was admitted into the Stroke Unit. After an insane amount of testing, multiple brain MRI scans, CT scans and a whole load of NHS funded and private specialist neurology appointments it was confirmed MANY times that I did NOT have stroke, mini stroke or any event similar. After this happened to me my life fell apart, I could not accept the diagnosis of Panic Attack induced Migraine and became utterly convinced I was sick & I would suffer some kind of catastrophic brain event any moment. I became a nervous wreck, did not eat, sleep, work, leave my bedroom, see family or friends for 4 months, I had panic attacks 3-4 times daily and at least two in the night during sleep. I developed a whole host of new issues such as muscle pain, extreme muscle twitching, headaches, dizziness, blurred vision, heart palpatations, vision distortion in one eye on and off, gastro issues, the list could go on and ON! Eventually i began to accept I was not about to die and that even during all this stress I am still alive! As my anxiety and stress lessened so did these symptoms. When we go through a scary or traumatic experience (which I did!) our brain tends to process pain differently. My advice to you would be to push for more testing and rule out a medical issue. Going private really helped reassure me. If everything is ruled out then you need to work on lessening your stress & anxiety and accepting your diagnosis. Sometimes you might think you are not "anxious or stressed" but even if your mind is thinking about your physical symptoms throughout the day this is enough to provoke a stress response. I hope this helped a little, rest assured it does get easier. It has been 10 months for me and I am much better now but it took roughly 7 - 8 months to get better.
MILAO
Posted
I forgot to mention. I had EXTREME tinnitus when I was going through this. It was always worse of a night.
christina_22008 MILAO
Posted
i get this with my anxiety drives me mad the noise in my ears and mine is always worse at night too
steve03579 MILAO
Posted
Hiya. Thanks for this reply. All these symptoms sound very familiar, apart from I've never had another attack since this happened. The only real issue that's bothering me is the constant light headedness. I can live with everything else. I am a big stress head so my Mrs says which definitely could be playing part of this. Every time i stress over something or shout ( at the kids 🤣) I get all the strange feelings running up the back of my head ect.
Italia06 steve03579
Posted
Steve this sounds quite a bit like anxiety. Not sure what your lifestyle has been these past few years, but your story of tingling and feeling as if you wanted to faint along with severe lightheadedness is all too familiar to me. Rewind 5 yrs and I was working two jobs with maybe 2 days off a month and thought nothing of it. It felt like a grind but completely manageable mentally, or so I thought. Then I noticed I couldn't relax at all as if I was always amped or had this mindset that something always needed to be done. Then the severe dizziness and off-balance symptoms started to set it. Also, ringing or swooshing sound in one of my ears was constant. Then one morning I began to have tingling sensations in my hands, arms and feet. Eventually I began to have body-wide muscle twitching as I was constantly worried about my symptoms. I still have these symptoms today but to a lesser degree. The off-balance feeling is nowhere near what it once was; it was so severe I would have to hold on to things just to get my balance. There are days that I don't notice symptoms at all.
At the time of all this I didn't feel depressed or anxious at all and carried out a lot of my interests like bike riding and fishing, etc... Now I am guilty of chronic worrying, but not to the point where I'm flustered or my heart rate goes up or I'm scared all the time. It's as if it's just a thought with no emotional reaction. Yet, I'd do it constantly.
Several years prior I'd gone in for hearing and balance tests as well and checked out fine. At one point I'd worried about Meniere's disease with the balance issues and maybe it's an after thought even to this day, but for the most part I haven't had any severe symptoms with regard to balance or lightheadedness for a good while. I'll admit, denial likely took it's toll on me as well; believing I wasn't depressed or anxious. But, with a lot of introspection I realized that many of my symptoms and lifestyle habits matched up.
Anyway, feel free to message me direct.
steve03579 Italia06
Posted
Thanks very much for this reply. It all sounds very familiar. Im quite a secret stress head which to be honest could of been. A big part in this. I'm just struggling with the light headed side of it all as its a constant feeling of passing out from the moment I wake until I go to bed again. On the occasional night I get into bed and also feel a little dizzy.
I will keep you updated. My mri is tommorow for brain and auditory.
Not looking to forward to that but it's another ticked off the list of possibilities 😃
k08610 steve03579
Edited
Have you ever seen" Brain on fire " it's a true story of a girl who started having bizarre symptoms: hearing noises, lightheaded, confusion, manic episodes etc. All her tests came back negative, her doctors wanted to put her in a Psychiatric hospital. To make a long story short, her parents knew something else was wrong, one of the doctors believed them and got a new doctor to look at her with fresh eyes , after a few days examining her he figured out what she had. It wasn't in her head and she actually had "anti- NMDA receptor enciphillatis ". She was the 217th person ever diagnosed with this illness but since she wrote her book thousands more have been diagnosed. Moral of story::: If your 100% sure you dont have anxiety find a doctor, a Functional doctor who will listen to you.. In the meantime cut out sugar, caffeine, refined carbs, and all processed foods.
bbdanielle steve03579
Posted
your first panic attack story happened EXACTLY how mine happened! I was even in the car. i will say this, once i had my first panic attack thats when the fear of them came and ive been suffering from anxiety ever since. i too sometimes feel like im lightheaded or going to pass out. also its possible you may be experiencing some kind of derealization.
steve03579 bbdanielle
Posted
Hiya. The thing is I only ever had that 1 attack and it's left me very ill. If they had carried on after as a regular thing then I would of understood and accepted that its panic disorder.
ccosta steve03579
Posted
I have the same issue. I had a weird reaction to a preworkout (strong caffiene) back in August 2019. my heart was racing and I felt I was going to die. Ever since that day, I have mini attacks (heart racing) like you mentioned and constant lighthead, dizzy, rocking sensation feeling. Some days are better than others. Heart tests come out good. I was diagnosed with anxiety even though im not stressed. I didn't even know what panic and anxiety was before that reaction. At this point, I feel like is a vestibular disorder. I finally got my Doc to agree for a referral. Does it mess with your vision? I feel like mines off for some reason.
steve03579 ccosta
Posted
Hiya. Yes my eyes have felt off since the day it happened. I've been and had them retested and they was worse. They have upped my contact strength but it's definitely still affecting my eyes. I've thought all along it's something vestibular but the Dr's having none of it.
elisha12885 ccosta
Posted
hey! i was just reading this thread and I get the awful light headed and rocking motion every day it petrifies me as to what could be the cause. can i ask you what heart tests did you have? x
ccosta elisha12885
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I did a 48 hour holter and and 14-day holter, which both came back normal. The 14-day gave me some solid reassurance, but this vestibular stuff is not getting better.
steve03579 elisha12885
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Can i ask is the rocking moshion more of a heartbeat feel in the back of the head?
steve03579
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*motion
elisha12885 ccosta
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I started to feel this 3 months ago and its not getting better! The best way to discribe it is like an elevator when it stops its like a bobbing up and down motion, is yours similar? ive had daily panic attacks over it. I had a CT scan of my head and all was clear! i have no idea where this is coming from and i know it sounds strange but its really noticeable when i tap my foot or move my lower body!
ccosta elisha12885
Posted
Yup, I get the same motion feeling. Some days are better than others. My doctor said the extreme stress (anxiety and panic) can cause inflammation in the inner ear. I don't panic over it but i still worry and worry just makes Anxiety worse. Sometimes it feels like a quick drop or like im on a boat. I havent fell over or got extremely dizzy, but I worry I will.