living with the effects of Lichen Sclerosus
Posted , 12 users are following.
I have been living with this condition for about 3 years. I was diagnosed after a couple of white spots appeared around vulva area. I had a biopsy which cofirmed LS.
At first it was just itchy and uncomfortable. As time went on the whole area around and inside are now affected. This has completly taken over my life. I am unable to participate in any sexual activities as the pain is too great and the area starts bleeding.
I have tried everything from steroid creams, tape containing a pain killing agent to a numbing cream. They helped at first but then became less useful.
One thing that has helped is using aqueous cream to wash the area as soap or shower gels cause irritation. My consultant has also said about wearing cotton knickers as, it cause less irritation.
To date I am having six injections every three months into the affected areas. It helps but only last for six week max. I am given gas and air to help with the pain while having the proceedure.
I also have RA and Fibro
1 like, 24 replies
suzanne00 shazmill
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shazmill
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hanny32508 shazmill
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The main thing for me to combat LS is the use of Globetasol ointment. (Maintenance level is twice a week.) Next to that I'm using a small spray bottle (the kind used by women who just delivered a baby works very well) filled with warm water and three pinches of baking soda. Regular baths in baking soda baths (1/3 of a cup) have been very soothing as well.
Then there is the diet: NO sugar, alcohol and caffeine. I follow an alkaline diet - no gluten, no dairy. Small portions of meat.
Perhaps the above is of some help to you as well.
Forgot to mention: it is best to abstain from any sexual activity. At least till things start to heal and in general look better.
shazmill hanny32508
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hanny32508 shazmill
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shazmill hanny32508
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deb09833 shazmill
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shazmill deb09833
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suedm shazmill
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As Deb said stressful situations and anxiety are THE biggest enemy of "LS-ers" So do try and have fun and it is said that just by smiling a lot the body increases the output of endorphins- the bodies defence against stress
Take care and Good Luck
shazmill suedm
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suedm shazmill
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athena93317 shazmill
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shazmill athena93317
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rosalind84529 shazmill
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shazmill rosalind84529
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