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I would like some opinions/ideas on this one....
Diagnosed with emphysema beginning of April this year, classified as ''moderate'', following coughing up a lot of blood.
Advised by hospital doctor to ignore the biopsy because without a doubt I had cancer and ''by now it will have spread to all parts of your body'', sent for abdominal and brain CT scans and also a bone scan..... Results of these scans completely negative and no lesions to be seen anywhere else.
Referred to surgeon who was not happy because he did not know what he was supposed to be operating on and then referred for a PET scan from neck to mid thigh.
Result of PET scan was that I had a solitary pulmonary node 2.5cms across (i.e.smaller that the original CT scan), plus possibly cancerous polyps in the colon, and some activity in the lymph nodes near the ''mass'' which could be due to the mass IF it was cancer, or an infection. The PET scan suggested that they should do a biopsy on the solitary pulmonary node (again in other words).
Another CT guided biopsy done and again it did not show cancer.
The doctor is calling these biopsies ''non-diagnostic'' because it did not diagnose cancer. In other words he still thinks I have cancer even though they have not found a single cancer cell yet.
Six months after the original CT scan another CT scan which found the mass was now 2.7cms across, smaller than at first but the doctor says this was probably because it was inflamed on the first CT scan, and that it is a slow growing tumour which must be removed.
So far they have no evidence to say it is a malignant tumour, but the solution according to the surgeon is a lobectomy to remove the unknown mass and the lower lobe of the left lung.
To me this is rather like saying that ''we will remove the foot because the patient has an in-growing toenail''.
How can break this deadlock with the hospital as I have made it quite clear to them that a lobectomy is out of the question because of the COPD and the risks involved which would more than likely make my breathing worse, and yet they are unwilling to do a simple laparoscopy to do a proper biospy with a sensible amount of material.
Any opinions on whether the idea of a lobectomy when I already have breathing problems is really a good idea??
Any practical experience of this anybody?
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