Loneliness

Posted , 17 users are following.

This discussion has been locked due to a period of inactivity.

How do you all cope with the loneliness this illness forces on you?  I feel very isolated. I have a partner but he is backing off from me as my illness progresses. I've suffered with social anxiety for a long time which has never really gone down well with my other half. I feel he's blaming me for stoping him having a life. Not that I stop him doing anything. I don't think I've ever felt so lonely in my life. I've been through tough times. Times I never thought I'd get through but this is hard x 

7 likes, 101 replies

101 Replies

Prev
  • Posted

    Oh so sad reading a lot of these posts. I know it all srarted with loneliness, but what came thro for me was how unsupportive other halves and particularly children were.

    My partner and children are great, I feel blessed. I do make a huge effort to talk to them, keep them informed and do things for them too, when I can.

    take care Anne x

    • Posted

      you are in deed lucky ,iv tried  talking to my lot so many times and they just switch of ,or they make an effort for a while ,then go back to there old ways , like they say you can lead a horse to water but you cant make it drink .
    • Posted

      certainley is what can you do if you try to explain and no one listens .

               tian .in yorkshire

    • Posted

      Hi Tina

      I know how u feel! I get really stressed with my husband.  He doesnt understand and he is selfish.  If I spend time with my kids he says u go around ur kids when u feel good and I get the worst of u.  I dont feel good around my kids either, but I deal with it.  When I am home I lay around a lot cause I m in pain and tired.  We have had separate rooms for 6 years.  It used to bother me cause I wanted the affection, but I dont care anymore.  I feel better in my own room.  He cant sleep with me cause I grind my teeth, have sleep apnea, and insomnia.  I usually watch tv or play on my ipad.  I get depressed sometimes but I think about my grandchildren, they r my life.

    • Posted

      you sound like me you feel your no longer a woman because your health has let you down, because you have problems pardon this expression and your husband cant throw his leg over when he wants ,

      he treats you like its your fault, instead of trying to find ways you could do sexaul relationship like massage first and being more gentle he cant be bothered ,i no this because its a mirror image of my life,

      i used to try and explain that i still wanted a sexual relationship but i need differant things along with it ,but he just used to say if your not happy you no where the door is , how can you move on with that kind of remark, i felt like a dried up prune and no good for nothing , my life was a drudge

      i sleep alone and grind my teeth not surprizing really.

      i v made a male friend thru you tube and its nice when someone says nice things to you ,like morning sweetheart , it will proberly remain just a friendship but its made all the differance to how i feel about my self .

      and that i can still be attractive to men . myself estem has gone up a fair bit since talking to him. 

      and now my husband is trying to impress me taking me out more and not moaning about it, doing more for me without mentioning it all the time, all because of some guy thats chatting me up by text , that i havnt even met and unlikely to .

      suddenly he now sees me and not my illness first . but its to late his hurt me so much with his uncaring mannor and remarks ,i dont think we will continue for much longer but we will see what happens . . try to make the best of your self do something for you each day , find a friendship site. i dont me dating site and chat with others .in your age group . sorry i cant do anything but understand .

      you take care . tian x north yorkshire xxx

    • Posted

      HI tina

      Tanks for the understanding.  We have been together 20 yrs.  Kinda a bad habit u cant break.  We havent had sex since my Mother died 6 yrs ago and bf that 1 or 2 times in 4 yrs.  He says if u want sex u know what to do. He doesn't understand that I want to b held and caressed.  I used to cry in my bed cause I wanted to b held.  Its not let like I couldn't have sex with one of my coworkers where I was working.  Not what I , needed!  

      Financially its hard to live alone.  Especially on disability income.  We have alwYs had our finances separate.  We share the bills and he owns the house.  Already pd!  I just deal with it. He is very tight with money!. 

    • Posted

      20 yrs is a long time , i havnt had sex for 3yrs ,and like you i miss the contact  hugs and caresres , and the kissing. it makes you feel even worse and rejected . it sounds like if you dont mind me saying a bit of a control freak like my first husband ,

      my second is just selfish emotionly . so iv done well havnt i . two husbands two disaters .

      i would be a lot happier on my own ,but like you i feel trapped by fianaces , and circumstances theres not much help out there and council probertys are hard to come by

      , we cant sell and even if we did there wouldnt be a lot left being a seond marriage and taking out a mortgage in our late 30s .

      so is it your husband who dosent want sex ,or have you just driffted apart . any how shattered . so will say goodnight .hope you feel a bit more positive tomorrow . i know its not easy i really do .

      if we could afford to go our seperate ways we would have years ago .so we are trapped in bad marriage with no way out . just because its not violant dosent me its not cruel . tian x

    • Posted

      Actually we aren't married but we have been together 20 years.  Like u I had a couple of bad relationships.  I don't know wht us women like these bad boys.

      My guy never mentions having sex, so I never mention it to him.  I think he would rather take care of himself.  No contact involved.  

      My kids would love it if I left him.  They have developed a real good relationship with him.  He never had kids so he was jealous of my kids.  I put my kids first bf anyone.  They really want me to b happy.

      My grandchildren really make me happy.  Eventhough they wear me down they keep me younger.  Because of them I get up in the morning.  Otherwise I would stay in bed.   

    • Posted

      thats even worse you have very few rights if your not married ,even after such a long time , i dont have and proberly wont have any grandkids, my eldest has rhemotid athritus ,shes 31 in feb and dosent keep in touch ,iv tried but shes just not bothered unless she has a problem.

      my middle daughter is 27 and has no intension of having kids , and my son has aspergers so it will never happen ,i have nothing to look forward to except death .

      i have my two dogs  thats about it. my husband is pretty much the same DIY as long as his ok .. you sound so unhappy just like me except for you r grandkids . have you thought of leaving or is it to much to compreend . regards tian x

    • Posted

      Hi Tina..

      hoping things are getting better. I went on some anti depression meds and I feel so much better, mentally and physically. Even my partner has changed his attitude. 

      Keep in touch . Always thinking about you. (( hugs)) HOPE biggrin

  • Posted

    Hi I've benn diagnosed 14 years ,30 years with arthritis  ,other things as well .I believe I've had fibromuch longer . I agree the lonliness is hard .I go out with my husand sometimes never alone ,never with people,never for lunches ,coffees (I panic),never to groups .It's very isolating with this .the pain and the fatig ue .  What meds do any diagnosed people take ?Liz
  • Posted

    Hi All,

          Been out of reach for a while as my internet's been down! Sorry. Had an appointment with occ health again earlier in the week and have been floored since. Hope you're feeling ok, Have to see DWP doctor soon as they want to finish me by the end of the month!!!!!!!!!! Not much i can do as it's impossible for me to return to work(a pillow and quilt on the desk?) To go from having a good wage to no wage will be fun!!!!!!!!! Oh well just something more to worry about.

    • Posted

      life can be a drag hun .hope you can keep positive and not get dragged down further,

      iv just found a nutritionist in my local area that does consultations on the gaps diet .so i shall book an appointment and get some info and understanding on it .

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.