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Loneliness

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Tired_teddy
Tired_teddy

How do you all cope with the loneliness this illness forces on you?  I feel very isolated. I have a partner but he is backing off from me as my illness progresses. I've suffered with social anxiety for a long time which has never really gone down well with my other half. I feel he's blaming me for stoping him having a life. Not that I stop him doing anything. I don't think I've ever felt so lonely in my life. I've been through tough times. Times I never thought I'd get through but this is hard x 

7 likes, 101 replies

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  • michelle17282
    michelle17282 Tired_teddy

    Posted

    Hi,

      Sorry to hear you've got the same issues with work! Seem to keep hearing the same thread here that everyone seems to fight on alone. Don't know what i'm doing with this site! (not very good with technology) I could be writting to the world!!!!!! Using a new laptop too which dosen't help. I'm in my fifties and have two grown up children and am Welsh (just for a little background info). 

       Have you been diagnosed for a while? I sometimes go days without using the laptop so appologise in advance if i seem to drop off the group for a while every now and again.

      With the work issue i've got a brill manager which is a plus.

    • Tired_teddy
      Tired_teddy michelle17282

      Posted

      I'm the same with technology - haven't a clue what I'm doing :-) my doctor says it's fibro but not seeing a consultant until oct when I hope to get a proper diagnosis and some treatment. I've been suffering for a few years but it's always been put down to my anxiety and depression. It's only this last six months as my symptoms have gotten a lot worse that I've been referred. I'm 41 and have a 19yr old son by the way.  I hope your manager continues to be supportive. Unfortunately mine are not.  Good luck with the new laptop :-) 
  • michelle17282
    michelle17282 Tired_teddy

    Posted

    I was told it could take 6 months for an app. with a consultant so i payed private even though it goes against the grain.(about to have my pay cut).  I knew i was on the radar with personel at work and had a meeting lined up with HR My doctor implied it was fibromyalgia and after the meeting with the consultant he confirmed it .I have tortured my doctor for years as i new i was suffering with something. As i'm on medication for epilepsy every doctor i saw insisted it was the epilepsy meds that were causing the exhaustion. I had surgery in June to remove plates and pins and have hit an all time low. I suffer with all the aches and pains but it's the exhaustion thats the worse thing to put up with. I don't know if that's just me or the way it affects others. I seem to be able to manage the pain with meds even though i always have pain i have a high threshold. It''s the exhaustion that gets to me ,but i couldn't throw myself off a bridge as i havent got the energy to climb on the parapit. LOL
    • Tired_teddy
      Tired_teddy michelle17282

      Posted

      I don't blame you at all for going private all the waiting around is so stressful and everything just seems like a battle. I agree about the exhaustion it's unbearable and so difficult to explain to others. I'm expecting contact from my employers soon so I'll let you know how it goes. Let us know how you go on too xx 
    • Tigs
      Tigs michelle17282

      Posted

      Ha, that's how I feel! And that's how it affects me too. I have always said I can cope with the pain in one way or another like a swim giving some (if temporary) relief, but when the swim wipes me out I feel pretty helpless. I wonder if other people find it gets worse with age? I suppose that's natural. I had a general anaesthetic earlier in the year and have found it really hard to have any times without feeling exhausted whereas I used to get a reprieve from time to time.

      Tigs (in Kent)

  • gloria15237
    gloria15237 Tired_teddy

    Posted

    I thought once i had my hips replaced i would have much less pain; but no, i haven't gotten better; my whole body inflammes with pain; i am trying to track it to see if there is some rhyme or reason...it seems there is a time of month that it gets worse...i had my uterus out but still have my ovaries so maybe it somehow related to hormonal disorders
    • Tired_teddy
      Tired_teddy gloria15237

      Posted

      My friend had a hip replacement a few months ago so I know how difficult that is without fibro as well! Maybe you should ask your doctor for a blood test to check your hormones? I have regular blood tests as I have low B12 & Folic acid ( in fact I just remembered I need to book one!) x 
  • michelle17282
    michelle17282 Tired_teddy

    Posted

    Hi had my work meeting yesterday. Seemed to go well (fingers crossed) Looking to sleep for a week now as i'm shattered. Suprising how exhausting an hour or so out of the house can make you.
    • gloria15237
      gloria15237 michelle17282

      Posted

      thats funny you say that...i rarely go out but i finally had enough energy yesterday to get my hair professionally cut; i hadn't done it in several years...sitting in that chair too long with him blowdrying my hair it seemed like forever and the heat of the blowdryer making me sick...i feel very sick-pain and fatigue today
    • michelle17282
      michelle17282 gloria15237

      Posted

      Hope you recover soon! I went out yesterday but i'm paying for it today!!!!! Have hardly done more than breathe today I have got to face the dishes as i've run out of plates!!!!!!!!!!!.Never mind things can only get better. I'm desperate for a haircut but can't be bothered at the moment. Maybe next week.
    • tiswas24537
      tiswas24537 michelle17282

      Posted

      iv been in all summer because its just been to hot for to go out, the last couple of weeks iv been out for 3days in a row and its taken me 3 days to recover along with 4 cans of pepsi, this is the scond week and day one of recover , iv been a sleep most of the day and even now i am still shattered but i am defo going to do my best to try and keep it up ,

      fed up with feeling like a prisoner, but its hard feeling so tired all the time.

      one thing thou iv  giving my vit b12 a rest for a couple of weeks to see if they make a differance, could be coincidence  but could also be a reason  why i am so tired . il get some more anyway.

                    tian ,north yorkshire

    • tiswas24537
      tiswas24537 gloria15237

      Posted

      i had to cancel my hairdressers 3 times thru the summer because the heat was to much for me to go out, i to have an appoinment next week fingers crossed i make it this time ,

      will have to rest as much as i can before hand, because like you its no longer a treat for me to go to hairdressers its more like torture, i have to have mine dyed cant stand the grey ,i iam just counting the minutes before i can leave,

      they used to brush dry it for me but its agony so i get her to finger dry it , the worst for me is having it washed of having my neck back ,but leaning forward is not an option either because i feel dizzy that way .

      honestly if people really understood this illness our lives might not be so lonely i stay away from family dos and outings because i cant keep up or get comfortable and i am sick of trying to explain. iv got my pain under control .now iv got on full on fatigue and dizziness now . I AM SO SICK OF BEING SICK. tian in yorkshire

    • gloria15237
      gloria15237 tiswas24537

      Posted

      positive thoughts your way that you can make it to the hairdresser... you are right about it no longer being a treat but more like torture... <3>
    • Tired_teddy
      Tired_teddy michelle17282

      Posted

      Hi. Glad your meeting went well. It must have been very stressful so no wonder your shattered. It's amazing how much stress can affect you. Did they give any suggestions on returning to work etc? Xx
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