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Loneliness

Posted , 17 users are following.

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Tired_teddy
Tired_teddy

How do you all cope with the loneliness this illness forces on you?  I feel very isolated. I have a partner but he is backing off from me as my illness progresses. I've suffered with social anxiety for a long time which has never really gone down well with my other half. I feel he's blaming me for stoping him having a life. Not that I stop him doing anything. I don't think I've ever felt so lonely in my life. I've been through tough times. Times I never thought I'd get through but this is hard x 

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  • Tired_teddy
    Tired_teddy

    Posted

    I've not been on for a few days so just catching up with posts. I really don't know what to say to be honest. I too am a natural born worrier. I too have been in an emotionally abusive relationship. I do often think - have we not been through enough without having to deal with this dreadful illness on top. I know there are people a lot worse of than us but crikey we could all do with some good luck xx 
    • tiswas24537
      tiswas24537 Tired_teddy

      Posted

      being emotionly vunable to attracting bad relationships , is what brings about conditions like we have ,you dont see people in happy go lucky relationships with conditions like this, maybe we should all try and find away to like ourselves so the rigth people will like us back then we all wouldnt suffer so much with this condition
    • Tired_teddy
      Tired_teddy tiswas24537

      Posted

      I have read that fibro can be caused by emotional trauma and I've certainly had plenty of that over the last few years x 
    • tiswas24537
      tiswas24537 Tired_teddy

      Posted

      me to right from child hood and rotten parents and bulling at school,

      if it wasnt for having fantastic grandparents i would proberly be a druggie or a drunk , they loved me and made me feel i was worth something , but although it certainly helped , keep me from vices it wasnt enough for me to be confident in myself . so i just picked all the wrong ones .and compounded my belief that i wasnt good enough to be loved .

      my logical brain knows its not true but the emotional one dosent . thats the problem.

    • tiswas24537
      tiswas24537 Tired_teddy

      Posted

      love comes from the heart , but you have to be able to let the right people in.
  • Tigs
    Tigs Tired_teddy

    Posted

    Maybe we should say where we are when we write (I am in Kent) - it could be that some of us could support each other face to face - it's not always possible to join a support group. I can identify with what you are saying. I don't talk about how rough I am feeling because my husband really doesn't want to hear it, but when I get rather uncommunicative because it has been dragging on and I feel so wiped out, I get comments like 'What's the matter with you then? 'in an accusing tone. I think a lot of us find that loneliness doesn't only strike when you are alone.
    • tiswas24537
      tiswas24537 Tigs

      Posted

      thats a nice idea tigs, i am north yorkshire .

        tian

    • Tired_teddy
      Tired_teddy Tigs

      Posted

      Hi Tigs and All. Sorry it's taken so long to reply I had a bad week last week, not much better this week.  Yes I get the same - what's up with you. I tend to say oh I'm ok just the pain.  When I want to scream I'm in fecking agony what do you think. My sleep pattern is shot and the nightmare/vivid dreams are really bad at the mo. Does anyone else have this? Hope your all have a good rather than bad week x 
    • Tigs
      Tigs Tired_teddy

      Posted

      Glad this week is a bit better for you. Yes I always wake up and find it hard to go back to sleep. Getting up and eating sometimes helps! I do have vivid dreams and sometimes nightmares but I put the dreaming down to Pregabalin. Not sure about that though.
    • Tired_teddy
      Tired_teddy Tigs

      Posted

      My dreams are so vivid they leave me shaking x 
  • michelle17282
    michelle17282 Tired_teddy

    Posted

    Hi, 

      I've only just joined the group but i.m begining to feel glad i live on my own!!!! I don't think i could cope with having someone else too look after. I do get lonely sometimes but do what i want when i want.It is boring when you don't feel like going out or dressing for days on end but are still exhausted as if you'd run a marathon. Just going through the joy of sickness interviews with work as i've been off sick since June due to surgery and won't be going back! I've worked all my life i've never been sacked before!!!!!!! Only just had a diagnosis although my gp stated it was Fibromyalgia before i saw a consultant. I've suffered with it for years but doctors kept putting the pain and exhaustion down to everything and anything. I keep hoping things can only get better - who knows ?

    • Tired_teddy
      Tired_teddy michelle17282

      Posted

      Hi Michelle and welcome to the group. I've not been a member long either but I find it so helpful and everyone is very supportive. I love my partner but yes it can be hard when he wants to do things and I can't. Guess there's pros and cons to both single life and being a couple :-) I'm also on the point of losing my Job so I know how you feel - it's so hard, wanting to work but not being able too. I hope your getting support through the process xx 
  • anne90395
    anne90395 Tired_teddy

    Posted

    Hello, I have been on my own, and had a partner in recent years. It's sometimes easier without someone else to consider. I must say that my present partner does his best, but it's still quite hard. Luckily I have lots of family around - we all need some support - so do'nt have to rely on partner. Sad that it's this way, but what can you do?

    Take care, Anne

     

    • Tired_teddy
      Tired_teddy anne90395

      Posted

      There's not much you can do Anne. I struggle to ask for help. That's something I need to learn to do xx 
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