Long diagnosis of fibromyalgia

This is what I’ve been told as now my employer has said I can not do the usual moving and handling that’s needed as I may not be at my peak strength which puts the individual at risk and also myself. So far the medication isn’t helping me and it has been going on for 2 years 

I got a diagnosis from both GP and Rheumatologist, but now I’ve had the diagnosis it’s kind of like I’m alone given a load of drugs and left to get on with it, my GP tries her best in the limited time of a appointment 

Its rough after you get the diagnosis as the drugs either work or they dont. Again Im not sure how it works in the UK(Im guessing you are there with the GP comments, sorry if I am wrong) but here we have pain specialists. That might be a way to go as they can offer a wider array of medicines(at least in the US) to help you. I saw one for a while, tried a bunch more meds including Nabilone(synthetic canibinoid commonly used for anti nausea but also sometimes works for Fibro) and that didnt work either, I do miss the mild high though I really hope things go better for you and they figure something out. *hugs*

I was hoping you would say your GP and then I was going to say ask for a referral to a Rheumatologist.  Presumably the Rheumy did loads of tests, bloods, scan, x-rays etc to rule out anything sinister before diagnosing the Fibro.  As well as Fibro I do have RA and Osteo arthritis and I've had quite a lot of steroid injections in various points, back, hips, knees, shoulders etc.  They helped a bit, but don't last very long.  I've tried all kinds of meds, unfortunately I seem to be allergic to most of them and tramadol caused me to see huge spiders and things crawling up the walls      I do however have open access to phone the Rheumatology team, when things are really bad.  

There are a lot of people on here who suffer with this terrible illness so hopefully you will hear from some of them with more helpful advice.  Hang on in there x

Yes here in the uk we also have pain specialists but the waiting list is 6 months so it will be a while until I see one now, yes I’m quite high off all the drugs which isn’t any good for me not only does it not take the pain away, I have 2 children one aged 2 and one 8 so I need to be able to function to a certain degree and there’s no way I can take them at work as I need to be on top form especially when administering medication myself, but I think because I’m not consistent with my painkillers that might be why I have so much pain as there’s no storage already in my body. So now I’m at my worst it’s taking a while for them to work, and I’m due on in work tomorrow until Sunday night what a killer 

I’ve been referred to all the right people but long waiting lists to be seen, I’ve had blood tests, X-rays etc that’s why it seems to of took so long to get my diagnosis. I find it hard because in my job I see bad cases of this pass me by, mainly I work with learning disabilities though so not often x

You dont have to take pain killers daily for it to work. Thats not good for you and many can cause stomach issues or worse if you do that. When I first got sick I have a 1 and 4 yr old, I was in bed most of the time and could barely walk. Im now 42 and I had another child 4 years ago so I know how rough it is with the kids. 

I just looked up your meds, Ive never taken tramadol but it doesnt look like a good one at all, Im shocked they have you on 50mg amitriptylin! I find it hard to function after taking more than 10 to sleep well and tylenol has never worked for me, ibuprofin works the best but again can cause stomach issues which I had so I had to stop taking as much. None of the meds you are on are for fibro. Have you doctors tried those? They didnt work for me but Ive heard good things about them for others. Im talking Pregabalin (Lyrica), Duloxetine (Cymbalta) or Milnacipran (Savella). 

They mentioned Pregabalin as the next thing I see her next week so hopefully she’ll try those and they work x

That’s the same for me I don’t get rest , the only time I am away from my kids is when I’m at work which is far from relaxing. I hope my GP gives me different medication and it works because I’m not sure how much longer I can cope with it I struggle to move

You need to try and relax when u can knowing what u have will help changing ur process of thought also help being positive has a massive help thinking down and negative effects will only make it worse and trust me I know how hard it is to think positively cause it seems there is no light does your partner help with things

My partner works from 7 am til 7pm so he’s not around much. My family live quite away from me so they can’t help. 

That’s very kind thank you but I don’t have Facebook