Looking for some help and reassurance!

Sorry Fabala especially because you are young. I use Advantan fatty ointment and find that very good as well as Dermeze. You need a specialist even a special clinic that deals entirely,with this. I am very fortunate that I can attend one at the Mercy Hospital in Melbourne. I put no other substances down there except the water spray and I alsp have a bidet that I swear by. I do not use the drying part and it is very soothing and keeps the area clean and comfortable. I do not support the connection to diet although I try to eat well. I am diabetic and have Crohns as well. I manage to keep it all fairly happy and I am 70 years old and feel for you as I never had it at your age. I have had it for about 20 years. Hope you get some better help and support.

Fabala, I was 22 when diagnosed and still had two babies. I'm 63 and was only diagnosed less than two years ago. Dermovate takes a long time to work, months, even a year or more. In our discussions here we've recently heard from one sufferer who used Dermovate too often – little dabs whenever she was itchy or sore. This is not how it's meant to be used. Use it exactly as prescribed – you'll taper off to two applications of a tiny dab only on the active LS area(s).

The bad news for a couple trying to conceive is that sex irritates flared LS, as you have probably figured out. And stress is our worst enemy, so if you're trying to have a baby and worrying that it's not happening, that's hot helping your undercarriage.

Three things definitely make it worse – soap and sugar a lot of sex. If you're watching your ovulation you can probably pinpoint the day.

Do watch Dr. Goldstein's presentation – maybe with your husband, so he can understand.

https://patient.info/forums/discuss/dr-goldstein-lecture-271556

Good news – some women find the hormones of pregnancy put LS into remission.

Also, Fabala, use something like coconut oil or emu oil to moisturize.  When so sore, emu oil can be very soothing.  I apply this after bathroom rinsing every time. 

It breaks my hurt when I learn of someone young developing this disease. On another forum a woman who has traveled world wide for relief uses the gauze and baking soda compresses and says they will heal you. She soaks strips in a baking soda & water mix, puts her legs way up and lays the strips across the affected area for 10 to 15 minutes at a time. I've not tried the baking soda route, although many here say that it is a great help. I use witch hazel in a spray bottle...it stings at first but does heal me up. I also use pure aloe vera gel for the itchiness and it stops it for me. I got the witch hazel idea from when I gave birth. I was given small pads soaked in it to put on my stitches to hasten healing.  I think you could try mixing some of the aloe vera gel and the witch hazel and make yourself some pads and try those...the aloe would probably calm the stinging of the witch hazel down a bit.  Many also use coconut oil for moisturing...there is a component in the coconut oil called berberine which studies have should is good at healing the skin. There is controversy on this site about the role of diet with this disease. A poor diet does not cause it, but going with an anti-inflamatory diet would improve your symptoms.  An alkaline body can fight off disease much more efficiently that an acidic body.  Keep reading these posts as many have different things that help them...and it's not always the same for everyone. Just keep trying things until you find what makes you most comfortable. A good wash for the area is a product called Cetaphil...very mild and non-irritating...I would highly recommend that you use it if you can find it.

Sorry...I'm not sure how heart turned into hurt in the first sentance...and how...do take care.