Low to mid grade fever 3 months in

Posted , 7 users are following.

Hi all,

I was diagnosed with mono on 1/12, but I am fairly certain I started exhibiting symptoms in Nov. 2017.

I am in yet another wave of having a fever - it’s been 99.9-100.4 for a few days now. Everything I read online says the fever should only last 10 days with mono, but I feel like it’s hit over 100 at least 8-10 times in the last 3 mos.

I have an appt with an infectious disease specialist on Tuesday but I’m on “vacation” (mono is making it more like forced torture) now and am terrified I’m going  to drop dead. Anyone have any similar experience with these waves of fevers? Thanks!!!

1 like, 19 replies

Report / Delete

19 Replies

Next
  • Posted

    Hi Bjams,

    My daughter fought these fevers from November through August last year, they would come and go. I had the opposite my temp was 97.5 the entire time I had mono almost one year, It now runs 98.1, it used to be 98.6 all the time. This virus just seems to attack everything. Hang in there you will recover, it just takes forever.

    Report / Delete Reply
    • Posted

      Nov to aug! I’m so sorry to hear it.  It’s so unsettling with the fevers - I imagine the lowered temp is too! I’m so tempted to run to see a doctor everytime it happens 😣 I know that isn’t practical though.

      Report / Delete Reply
    • Posted

      Hi Bjams,

      I know, I ended up in the ER twice and the doctors office three times, many tests and only mono/Epstein Barr ugh, I never really went to the doctor much before this. I have recovered though and honestly I thought I was going to feel that way forever.

       

      I am sorry you have to go through this, know you will feel better as hard as it is to believe right now.

      Report / Delete Reply
    • Posted

      It is so mind blowing to me to hear others like you talk about this experience being so long.... my primary care physician acts like I’m losing my marbles. She also, at one point, said not all my symptoms sound like mono, but what I hear on this forum is that there are tons of other people with similar experiences. Why isn’t there more awareness of it if this can wreak such havoc on otherwise healthy individuals?
      Report / Delete Reply
    • Posted

      Hi Bjams,

      I wonder the same thing, only Caroline has a doctor who said 1 year to 18 months. I think that the virus has become stronger or maybe it is immune response,

      Report / Delete Reply
    • Posted

      I would love to have a doctor acknowledge that sort of timeline! I just got back from seeing an infectious disease specialist who said that because the symptoms are lasting so long, they are going to retest me for mono to see if it was a false positive and is instead something else! She seemed so convinced that mono couldn’t last this long, it’s really unsettling now to think it could be something way more serious.
      Report / Delete Reply
    • Posted

      sorry to hear that...Mine is exactly like yours 99.2-100.2. Started in January, 2018 and on and off I have this low grade fever which is not considered a fever according to my doctor. I know this is not my usual temperature, I generally run low temp around 36.2C all my life. I'm scared this can be something else because I have so many symptoms going on for a year. The symptoms match with EBV virus but I don't have any exact diagnosis yet. Do you have any other symptoms? what your doctor says about it?

      Thanks for replying

      Report / Delete Reply
    • Posted

      No problem. I’m sorry to hear that you are going through this. The not knowing and then what ifs are really hard to deal with. 

      I completely agree with the fever being concerning - my doctor doesn’t recognize this as a fever but I also have ran low my entire life. Even as a child, I would hit max mid 99 with strep throat or the flu. 

      My symptoms have ranged over the last six or so months, from reocurring body pains, including chest and left flank pain, GI symptoms such as heart burn and stomach cramping, breathlessness, cold symptoms, dizziness, extreme exhaustion, blurry vision/eyes not wanting to focus.... I’m probably honestly forgetting things because my body really truly has just thrown such weird things my way, with some days/weeks better than others. I’ve lost about 20 pounds and  having to pretty consistently take a range of OTC meds and supplements to feel semi normal.

      My doctor has me seeing an infectious disease specialist, who now is really focusing on my heart. I don’t honestly know why, but she says there’s no way EBV/mono can last this long, so  she wants to rule out there being something going on there. It’s scary, but I have read a lot of similar stories on this forum, so I’m hopeful that for both of us, it is mono and the virus just hits some harder than others.

      Report / Delete Reply
    • Posted

      I am on month five and still continue to have all of these symptoms as well, including the low grade fever. Usually runs about 99.2-99.6 everyday. Lately the chest pains, digestion issues and fatigue have been the worst. The fatigue comes in  so bad it causes my body to feel faint and unable to move. I go in for an abdominal ultrasound tomorrow, nothing has been found through anything else. Hoping our health improves sooner or later!!
      Report / Delete Reply
    • Posted

      Interesting, I have never had high fever with strep throat too, max was 38C. Then I hd my tonsils removed as I was getting lots of strep throats. 

      Anyways, I dont even knwo my EBV test results. I’ll find out tomorrow.

      My doctors they dont think I have infection as my blood tests don’t show anything.

      I hope we all feel better soon!

      Report / Delete Reply
  • Posted

    Chiming in here to also say that I’ve been having these consistent low grade fevers almost every day.

    I contracted EBV in late October/early November with defining symptoms starting on Nov 4th. 

    The fatigue and body aches are getting better but yeah, I’ll go through phases where my temp is between 99.1 and 100.2. I treat it with analgesics and try to go about my day with frequent rests. 

    Every once in a while I’ll have 1-2 week periods where there is no fever, with minimal fatigue and body aches, so I manage to go to the gym and be productive. 

    Report / Delete Reply
    • Posted

      What your doctor say, is it normal to have low grade fever? I cannot convince my doctor that I feel hot and that's not a normal temperature for me.

      I mostly feel hot when I sit down for a long time. My throat and mouth get hot and that's when I realize my temp is up. The fever with so many symptoms scares me.

      Report / Delete Reply
    • Posted

      rbhtx, that’s the point I’m at too - phases that I’m trying to accept with OTC meds when I need it. Sorry to hear you’re still experiencing this but honestly, a little comforted to hear I’m not the only one with this long term elevated temp.
      Report / Delete Reply
    • Posted

      Tbh I haven’t been to the doctor since January. I’ve tried all sorts of remedies under the sun and got tested for a bunch of stuff already. My dad’s a physician and he just told me I’ll have to wait it out and that we (all the the folks on here) are the unlucky few that got hit hard with this virus. 

      I understand the doctor’s point of view because technically it’s not a fever until 100.4, but it definitely is a low grade fever. 

      I also get it like you, in addition to my mouth feeling hot and dry, I’ll feel like it’s burning behind my eyes and I’ll get achy all over and just general malaise. 

      It definitely scared me too initially! Long term low grade fever is a sign of a lot of bad stuff, including cancers, but I’m just being optimistic that it’s still EBV and my body is having a harder time dealing with it. 

      Report / Delete Reply
    • Posted

      Yep. Are your good phases lasting longer than your bad phases? I think that’s where I am now, but I’ll need a longer timeline to assess. But I feel like my ‘crashes’ are becoming less severe now. 

      They still suck and make me feel like crap and all, but I’m no longer bed bound when I crash. Sure, I may spend 10+ hours on the couch because of fatigue and body aches but I feel like if I really pushed myself, I can get a few good hours out of my day during those crashes. 

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up