LPR and shortness of breath

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My biggest symptom of LPR is shortness of breath, which is vocal chord dysfunction. It really showed up first and my other LPR symptoms have showed up after and been mild if they have been there at all.

The shortness of breath is enough of a symptom. I hate it more than I can express and it's given me massive anxiety.

Anyone else? I've been to a speech therapist. I've been to the ENT, had the camera down the nose and confirm acid damage. I've changed my diet and feeling mostly better when I'm strict on it and I'm taking supplements but it's very restrictive (I have a lot of trigger foods) and I can't live like this. I really can't. I've only had this for 2 months. 

Is this life long or can this be fixed?

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  • Posted

    Who told you it's vocal chord dysfunction?  I have this concern but my ENT after checking it witht he camera said I have no problem, not even LPR.   But I believe is related. 

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    • Posted

      My asthma and allergy doctor (I don't have asthma. But at first that's what they thought). He suspected it so sent me to a speech therapist. 

      The only way you can be officially diagnosed with it is if they have the camera down your throat when you are having the breathing difficulty. Which I have not. My ENT did say he saw acid damage though.

      Whatever the official diagnosis I know shortness of breath and lpr are related. If you have lpr, breathing exercises to treat the vcd won't really work 100% if the lpr is what is really causing it.

      One thing that did help me when I'm having shortness of breath is gaviscon, have you tried that?

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    • Posted

      Thanks!  Yes, in my case they said it was COPD, Asthma, reflux, gastritis and anxiety.  After 3 years they said it was not related to any of the previous conditions and besides mild reflux plus now mild barrets I have no other problem .  Before it was sometimes, now is all the time with chest pain.  Not acid related pain, is more like I pull a chest muscle and it always hurt.  Just got some blood test done which shows no inflammation, but does show high cortisol which could be high stress.  I take anxiety medication (but I'm almost out, tapped down and I'm on my last 2-3 weeks) ;-)  So anxiety medication did not help with symptoms (maybe 10%), but it did help me relax.   In my case ENT did see irritation the first time, last 2 times nothing. So basically they disregarded LRP and vocal disfunction. I do have gluten sensitivity but grain free diet has not helped at all. I believe it might be another sensitivity with food, so I'm going all the way eliminating for 60 days all nuts, fruits, eggs, tomatoes, white potatoes and peppers. Thanks God,  he always pick me up when I'm down.

      Yes, I took gaviscon advance and did not help. I still have some just in case. Much better than taking PPI's. ;-)  I do take sucrafate 2-3 times daily which is similar and good for barrets.

       

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    • Posted

      Hello Papote53,

      I have just had another exray and they said Emphysema is showing up.

      However I am so much better since I have been obtating from eating after 6pm at night, and taking Cider Vinegar with hone alternating with Chlorophyll, also Aloe Vera juice 4 times per day.

      Hope you try this,.

      Kind Regards,

      Carmwoman

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    • Posted

      I was diagnosed with mild hyperinfladed lungs 3 years ago but after doing 2 COPD test and 4 anthma test they said I did not have COPD or asthma. I actually took medication for COPD (30 fays) and did not help. Now, I also have this chest pain all day long and for the last few months similar to inflammation pain. So if I do any exercise, even with 10 pounds next day my chest muscles will hurt more and rib-cage will hurt as well.  Blood test shows no inflammation and xray showed again hyperinflated lungs with no obstructions so agai  they disregarded any lung problem. My breathing problem increases when I talk, walk or even stand to long. I had this for like a year and the pain started 3 years ago.    I did have anxiety but that is pretty much under control. I gues after 3 yarsof living like this your mind relaxes by itself.  Now, stress is still a factor because my cortisol levels are high, which means stress is high. Going to see my urologist this Friday, hopefully he will give me some feedback on this. I have taken ACV and aloverajuice before, no side effects but did not help.  I have not taken Chloropyl, so maybe I'll order some. How does  Chloropyl help?

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    • Posted

      Forgot to mention, xray are not good for a COPD diagnosed.  Actually, every time you do an xray for this purpose they ask you to breathe inn all you can and hold, that itself will reflect as hyperinflated lungs. That is why I had to see a Pulmo and they have done 2 COPD test with negative results.  Allergist and primary did 4 more asthma test with same results.  Have you seen a Pulmo? Not sure what would show on an xrayif you have Emphysema, but I guess it will show hyperinflatted lungs as well or would it show something else?
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    • Posted

      Hi Papote53,

      Thankyou for that information, but it does say Moderate generalised centrilobular emphysema, is again demonstrated, most marked at the apices. There is a stable, 31 mm bullous centrally within the right lower lobe, on the ex ray report.

      However since I have been refraining from eating after 6pm at night, taking Aloe Vera 4 times per day alternating with Chlorophyll, and also Apple cider Vinegar with a dash of magnesium and honey, my heartburn is so much better, think my breathing is also a little better.

      I hope you will try my natural receipies too.

      I would love the Ex Rays to be wrong about the Emphysema.

      Take care and Good luck, I have been in misery gasping for breath for 4 years. but have a little bit of relief now, as i did have unbearable Gerd with it.

      Good luck,

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    • Posted

      Hi Papote 53 -

      I've been trying to catch up with you. I am about your age (just turned 50). I also live in Florida. Like you, I was always a very active person (biking, push, pull, chin-ups), until recently. My life was basically reduced to half of what I used to be able to do some months ago. A little background: I do have asthma, but has been well controlled until recently. I did smoke, but quit 20 years ago. I also recently gave up drinking and tobacco chewing. I have been in hospital several times in past 2 months for both breathing and gastro problems. Have had numerous tests done, including heart cath that apparently showed i have the heart of a 30 year old. GI tests showed mild chronic gastritis and duodentitis. Upon x-ray, lungs were found to be mildly hyperinflated. CT scan showed mildly diffuse bronchial thickening. I'm on asthma meds, acid reflux meds and have changed diet drastically - all to no avail. What is going on with us?

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    • Posted

      Hi Keith,

      I replied to you on another forum but basically it was the same.

      It's funny how I read your post and how many things we have in common;

      1. In The 50th's

      2. X-ray Hyperinflated lungs (3 times) but clear on CT. (3 times)

      3. Active before this all started

      4. Live in Florida

      5. Chronic Mild Gastritis

      6. Stopped smoking 20 years ago

      Recently added mild Barretts, not taking PPI's because I have low acid results from Heidelberg reflux test.  I believe bile is part of the problem because I got Barretts and moderate gastritis after gallbladder removal.

      I believe I have 2 problems.  Reflux creating the breathing problem including nasal area (silent reflux), chest pain, sometimes rib-cage pain reflux or nerve issue. GI believe is nerve issue so he suggested anti-depressant for chest pain. Not taking any medication at the present, but 3 years ago I was taking 9 pills for 7 conditions but they did nothing to alleviate chest pain and lack of air so by eating healthy I took care of that.  Yes, All Doc's said that was impossible until they saw it. Sure, look int my file and you will not read eating healthy took care of 9 pills. ;-))))

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    • Posted

      Took care of the 9 pills. not the chest pain or breathing problems. ;-((((
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    • Posted

      Hello again - 

      So, have you found any improvement from dietary changes? I have not yet. Also, have you read the post by the guy who suggests drinking carbonated water and holding burp in for 5 minutes, doing this 4 times a day, eventually working to 20 minutes, all to hopefully strengthen LES (lower esophageal sphincter). Never tried it. Have you? Also, I still think you might be on to something with low stomach acid treatment. Lets keep on this and in touch. We need to figure this out. If it wasnt for this condition, sounds like we both still have a lot of life left in us! Like I said, I am so very tired of steroids, inhalers and acid reducing drugs. Because they are doing nothing!

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    • Posted

      No, never read about that but will like to check it out.  I did take care of the symptoms I had from other conditions like HBP, Cholesterol, Anxiety, nerve damage and sinus but the chest and lack of air is not getting better.

      I did eliminate Diazepam 4 1/2 months ago which I took for 2 1/2 years and they say it will keep the sphincter open.  I also plan to ask my primary to give me Baclofen which is a muscle relaxer but helps close the valve.  

      Yes, I have 4 kids and 1 of them is just 8 and I feel like I'm failing him because I was all into sports and now I'm all into this, completely inactive. ;-(  

      We will find an answer, we just need to stick together and take the chance to find an answer. ;-)

      Like like Baseball Keith? 

       

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    • Posted

      I know its hard with kids. I feel even worse for you with little ones. My son is 18 and graduating high school this year. I had to miss 2 of his travel basketball tournaments because of this. Im not a big proponent of pills, but I could see why someone in our condition would be on anxiety meds as I would lik e to be now. I was really hoping my condition would get better with dietary/lifestyle changes, but youre living proof thats not necessarily the case. I would still be interested in the low acid thing though. How do you think you wound up with gastritis? I did have H. pylori back about 4 years ago, but it was eradicated with antibiotics. Ofcourse, I should have at the time stopped my daily beer drinking and tobacco chewing, but did not. Hence, probably have had a mild form of it ever since. I dont know, maybe some more time away from those evils will heal my gut. I do know that gastritis in and of itself causes many people breathing problems. And yes, I love baseball....big Rays fan. Tried to get my son to play, but he took up basketball instead.....the one sport I never played....lol. I cant believe its up to people like us that suffer like this to figure out our own answers
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    • Posted

      Yes, big fan of baseball and basketball, not to much into football.  But, Yankee fan all the way. Do like the rays and I have been to some games, Love the park!  

      I did have mild inactive gastritis for many years, after they removed the gallbladder about 1 year after I did my 5th endoscope and there it was; moderate gastritis and Barretts.  I'm a member of a Barretts facebook group and just about everyone without a gallbladder had this problem and bile appear to be the problem.   I did come out positive twice to SIBO,  but not to H. pylori.  In my case SIBO ould be the reason for reflux, which my GI never took care of it because he did not believe I had SIBO even with the 2 positive test results.  He did give me antibiotics for 10 days and it did not help.

      The funny thing is that I retired from the military after serving 21 years and I get no disability benefits. All my friends retired and got 100% disability and they send me pics having a  great time all around the world and here I am with no benefits and stock here. ;-(  You gotta love the system!  ;-) Going back to VA tomorrow, but this time with my no friend Lawyer face. jejeje

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    • Posted

      Yankees....haha, my girlfriend used to be a fan (shes from Long Island), until I converted her. Yeah, been to a few Rays games. I like The Trop (as we call it here) too. Shame they might wind up with a different stadium, especially with our brutal summers (outdoor baseball, no thanks). Its a disgrace how many of our vets are treated in this country....one of my BIG pet peeves. About the gall bladder - my dad had his taken out many years ago and it was about that time I believe he was put on omeprazole. I tried to send off a stool sample to a lab to test for many organisms, but all their report said was that I did not have H. pylori (which I already knew). Waste of $150. Anyway, Yes, from what I've heard, SIBO can cause both acid reflux and indirectly breathing problems. There is a diet to follow for it, but if youre eating healthy youre probably already pretty much following it.  i think I have it too. Im on antibiotics now, but not helping with anything at all. I just came across another natural product that can be used for both gastritis and acid reflux _ liquid chlorophyll.  Have you ever tried it? I dont know if you took acid reducers for long (ive been on and off for more than 4 years), but theres evidence that these drugs in themselves not only make matters worse sometimes, but can actually lead to problems like gastritis due to low acid and food sitting in stomach longer.  Ill bet if we stay at this together long enough, we'll figure this thing out. What part of Florida do you live?

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    • Posted

      I was born in New York, so I have no option. ;-)    Yes, I have taken liquid chlorophyll and I actually have some right now. But I only took it for a few days and then my functional said I have MTHFR mutation and this could be a problem so I stopped. Now, is not like I can't, but in my case it can help, or it can make things worse. I'm not getting any better so I will probably start again.

      No, I have never taken PPI's for more than 50 days or so.  Always knew I had low acid so I never took much.  My GI said PPI's is good for low or high acid, which made me realize this was not the GI for me.  I have seen 3 GI's in total, the one at Mayo Cliniic at one of the 3 top hospital in the USA said he saw no connection between my pain and reflux, and he actually said my problem is my back so he sent me to a specialist which did not find a connection as well. I do not even have inflammation and my blood work is a master piece for Doctors.  One Doc like a year ago said that my problem started when I was 6 and my brain is blocking my memory but my body is paying for it.  That was the last tie I saw him. l-)   My primary suggested that I take a 6 month vacation because she accepted Doctors including herself were not helping me. ;-)

      I live borderline between Kissimmee and Orlando, but is part of Orlando.  Pretty close to GATOR land.

       

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    • Posted

      I might try the chlorophyll, nothing to lose. I think when I use up my ppis and H2 blockers, i will be done with them. Like I said, in my case, Im sure my continual use of beer and dip in the face of gastritis hasnt helped me at all. I can tell you that gastritis can, and in my case does, cause pain in back. Ive been on many a forum where sufferers say the same thing. Its amazing what doctors dont know that their patients do. Ill bet if you try treating the low acid in your stomach along with diet, you will notice a difference. I certainly hope so. Please keep me updated. Like I said, its up to people like us, of which there are many, to find an answer to this. 
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    • Posted

      I have no doubt it does, and apparently when I get the back pain, my chest pain gets worse on the right side.  Now, I also have some moderate back conditions which 2 of my Doctors said the back pain is connected to the chest pain but they can't prove it or even treat it.   I might try chlorophyll again, I do know it gives you this nice fresh breath. ;-)))

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    • Posted

      Yeah, Im not sure I agree with her on the stomach acid thing either, since your GI and many other doctors would agree that stomach acid does decrease with age (along with a lot of other things unfortunately...lol). I am currently trying to follow her diet though, and am hoping to wean myself off the acid reducers again. Unfortunately, in my case, since I quit chewing tobacco again not that long ago, it also leads to worse reflux. Yeah, believe or not. True, nicotine makes acid reflux worse, but unfortunately for a period of time after quitting, many people actually experience worse reflux for a while.....not sure why. I still cant believe how similar our experiences are with the doctors. I too kept complaining to my 3rd GI that I was having breathing problems along with the GI problems and he just dismissed them. Unbelievable! They should spend a day feeling like we do! They might look into something further then. Has your eyesight gotten progressively worse too since this all started?
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    • Posted

      Hi Jose - 

      Just remembered you were going back to VA. How did you make out? How about the digestive enzymes....do they seem to help?

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    • Posted

      All good, they will do another COPD test and back/nerve check.  For me going to VA is so much easier, is only 7 minutes from my home and they have a team of Doc, Nurse, Psychiatrist and  social worker assigned to me.  Now, I suspect what ever I have on my chest might be related to my back so they initiated another claim. Actually, the Doc I saw at Mayo Clinic Jacksonville said he believes my chest pain and lack of air are not related to reflux, but instead are related to my back problems (back/nerve). So taking a nerve medication or anti-depressant might do the trick but unless I'm 150% sure I'm not going that way. Took 2 1/2 years of Diazepam and I don't want to go back to the same type of drugs. ;-(   Listen, send me your email to this email so we can stay connected. Don't worry, I do not use this email much -  Let me know, so I can check and save your email.

       

      Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

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    • Posted

      Glad to hear everything went fairly well. Sorry youre still getting the run around on the breathing issue though. And I dont blame you for not wanting to take any more drugs. Im hoping in my case that if my gastritis gets better, so will my breathing. I know gastritis itself can cause shortness of breath and more reflux which also causes shortness of breath. I did quit drinking and chewing after holidays, so maybe my gastritis will finally heal with some time. I think my gastritis was caused by these 2 factors and severe stress in my family business which I have since also left due to chemical exposure. Maybe leaving that environment will also help.I guess we'll see. I think i might try digestive enzymes again....I did try for a short time before. 

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    • Posted

      hello, i am having similar symptoms as you guys. although i'm only 20 and live in the UK i have been having shortness of breath, i mucus sort of feeling in my throat which cause me to keep drinking water and swallowing, no cough though, sometimes i get a sort of mild burning in my throat which leads me to believe its acid related, i do get stomach pains also, all of these symptoms come after food, although the swallowing and breathing doesn't completely go, it dies down by like 90 percent once i haven't eaten in a while, some days i don't have any symptoms but some other days i have the symptoms after every meal, have you had any positive treatments or dietary plans?

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