LPR/Silent Reflux - desperately in need of a miracle. Has anyone recovered from this?

Dear irene87,

Thank you for your contribution.

You are very right in saying that we are all different and although some common symptoms are seen in many people, I believe LPR has diferent symptoms in different people.

In my case I get sinusitis and PNd especially after eathing and this PND causes caughing which also affects my voice.

I am on 2x1 Nexium and 4x1 Gaviscon Advance over 2 weeks now and the symptoms lessened but not completely vanished.

I am sure diet plays a great role on this. Also I will try high pH water as suggested.

All the best!

Dear mcson

Thank you for replying.

Coughing is the most distressing part of the condition. It is quite upsetting when in public places and a fit of

coughing occurs. I do chew sugarless gum when outdoors, and sip water throughout the day when home;

this keeps my throat lubricated. I can now answer the telephone, have conversations; which I struggled to

do before.

Regard

Irene 87

Just to clarify for the sake of accuracy - the above advice referring to the use of alkaline water to deactivate pepsin in the "airway". Please note that the "airway" refers to the anatomical structures through which air passes from the nose to the air sacs in the lungs. Along that path lies the larynx and the vocal cords. This area can be drastically affected by reflux. Any alkaline water, or for that matter any substance that happens to make its way into the larynx (the voice box) is violently rejected. No rinse with alkaline water will do anything to whatever is wrong with the larynx and vocal cords ( the source of hoarseness and some coughing). The whole question of whether or not a brief rinse with alkaline water can affect an enzyme within cells is at this point to me problematic. I look forward to strict scientific evidence regarding this.

Dear irene87,

Thank you for your comments.

I am really struggling with caughing and hoarsness sometimes.

all the best!

Dear thomas83,

As I understand from what you have just written you are saying that airways are drastically affected by reflux. however the effect of alkaline water to the airway by means of rinse of the cells is not really proven. Is that what you are saying?

If that is the case, it would be really interesting for me to hear what you are thinking about J.F. Kaufman's article.

The thing is that, I have personally read about the affect of alkaline water on several forums and in the articles of Kaufman only. Apart from that I have read a book which was talking about an alkalising diet and affect of alkaline water in that. However like you, I have not read any other scintific article or study that show the effect of alkaline water in deactivating Pepsin.

I would really appreciate any studies on that.

Kind Regards

Sorry JPT, I have read all those papers, and in fact, mention them in my book. I appreciate your sincerity, but the facts are, once again:

1. Dr. Koufman's paper reports experiments done in the lab, not on people.

2. No alkaline water can possibly flush the larynx - the body does not allow anything but air into the larynx.

3. Certainly pepsin is part of the refluxate and there is evidence that it can irritate tissues.

4. There is as yet no research paper reporting that alkaline water has any effect on pepsin in the tissues of human subjects.

5. I would be more than happy to hear that flushing the throat with alkaline water definitively helps relieve LPR symptoms.

6. This ia not an accusation, merely an observation. Beware of products whose purveyors stand to make lots of money claiming curative powers.

Hello everyone ,

Thank you very much For The discusión. It is very informative. I have my two lungs severely damaged by the silent aspiration of reflux into my lungs. I have got only nis 46% of lung function The theory of my doc. The PH test showed the obvious. The reflux PH which reaches my throat goes as lie as 2.2.

Would I be able to have the copy of your book or any link. It will be very helpful for me. I may need surgery but if will not fix my problem. My reflux got Worse with the several tablets I have to take.

Any info would be appreciate. My case is life treatening as if I don fix my lungs I am fone I this planet. I am too young to go.

I will be immensely gratefully for your info

Regards

Carmela

Emis Moderator comment: I have removed the email address as we do not publish these. If anyone wants to send/receive links etc please use the message service by clicking the message button under the relevant user's name in the left column.

Dear JPT,

What do you mean by sayinh that you use as an aerosol to contact the larynx and brochus. I do not quite get that.

Is there a spray form of alkaline water or something?

Thank you in advance.

All the best

This is a very interesting discussion. Was diagnosed with LPR two years ago and it has badly affected my life for those two years.

The main struggle I have is that very little is known about it and the symptoms are strange and quite sinister in nature.

My symptoms have changed quite a bit. It initially started in my throat (really badly), but the main problem recently has been my chest and breathing. Its difficult to describe, but my chest and lungs feel "fluttery" or "aggravated" when I breathe in particularly and my guess is that this is now aspirated acid. My chest often feels tight too and its difficult to breathe all the way in.

I would be very interested to know if anyone has had back pains with this too?

Maybe those pains are unrelated or are muscular because I am compensating for the breathing problems or I am so tense / anxious because I am worried about the breathing.

I am on oesomeprazole which I think eases things, but dont want to be on those long term. The only thing that really does seem to help is sleep and rest. Stress worsens things.

Would be really interested in your comments and feedback.

Dear fellow sufferers,

I am sure that the moderators of this forum prefer that the tone of the discussion not descend to bitter feuds! My final statement on all this is as follows. LPR is a real condition, and physicians and researchers all over the world are trying to find the best way to diagnose and treat it. As with any troublesome physical problem, individuals may respond differently to substances or methods aimed at curing or alleviating the condition. As a result, what may work ( or seem to work) for one may not be effective for another. Add to that the fact that we now are in an age of digital social media, where anyone with access to the Internet can transfer their thoughts of the moment into words that can be read anywhere immediately. Even a well meaning paragraph, when read as an electronic message, may often sound harsh and offensive, when that was not the intention.

At any rate, be assured that while the medical community does not always agree on all aspects of LPR, the best way to approach dealing with this condition is to find a trusted health care worker and follow their advice. The reason I wrote my book was not to answer all possible questions about LPR, or to reveal some hidden secret about how to remove its symptoms, but to give the reader enough information so that they can ask the right questions and understand better the treatment options. I wish all of you the very best in trying to find relief.

Tom Lee

Dear Tom Lee

I felt very comforted after reading your book

Many thanks

Irene

Dear All,

I do not understand you people. I think this forum should be used to help eachother in fighting this horrible disease. However I see here some people try to race their knowledge and compete with eachother. I rather prefer learning from people and hsaring my knowledge with people instead of telling someone that what he know is wrong. We are all here to learn from eachother, therefore I really do not understand why JPT has taken such an offensive approach.

I appreciate your knowledge as well JPT and I understand that you have had quite much of an experience regarding LPR however you should also appreciate that everybody has a different knowledge and experience, instead you act like the things you know are correct but the others' not.

First off al I think we all should respect our doctors and their knowledge. We may of course think that on a specific matter for which we have spent quite much time in researcing, reading and trying formulas on ourselves, we know better than a doctor however that does however that still doesnot prevail over the general knowledge that doctors have! Therefore without a scientific proof I do not think it is wise to present whatever we know as fact.

I only use this from to learn from you guys. Because you are the ones who have been or who still are where I am . At the end of the day, I may apply the things I lear here or may not, it is completely up to me, but I will definitely follow what doctors prescribe.

Dear Tom Lee;

I still could not download your book due to the fact that I do not have a kindle. Will it be possibl eto read your book on any other device or on PDF?

Kind Regards

Hi all,

I would have posted/acted before now but I was tied up with other work so apologies for that.

I have deleted all of the posts where this was descending into personal attacks. I will read the whole thread when I get a chance and edit/remove any remaining "off topic" comments/posts.

Everyone is entitled to their opinions and it is up to each user to decide whose advice to listen to or not. We do not publish links directly to selling sites for books etc but as I commented earlier in this thread users can message if they want the link. If a user is posting JUST to sell a book then these will be removed but this is not the case here.

If anyone thinks a user is getting personal or aggressive then please send me a message at any time. This goes for any query or problems any user may have. I will reply to any query.

I hope this helps and everyone can continue to post what are their own opinions in a polite manner.

Regards,

Alan

Emis Moderator.

not sure if people are still checking this forum - has anyone had any experience using anti-candida supplements?

I believe this may be causing some of my symptoms related to LPR as I've been reading more about it. I have read that excessive candida in the body can cause pnd symptoms, sore throat, chronic coughing along with other symptoms i have been having. Has anyone had this issue before or used these supplements like candigone?