Posted , 8 users are following.
Auto immune disease seems to be 'encouraged' by toxins in the body. Don't know whether that counts for LS as well.
Could anyone tell me whether regular sauna's would be beneficial?
2 likes, 24 replies
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margaret289 hanny32508
Posted
Good idea, but have no access to a sauna. I tend to find a hot bath (I know some are wincing at this) followed by air drying on the bed then applying dermovate, gives me the most long lasting relief, but if I am sitting on my bum on an office chair working in normal clothing (which generates sweat) I experience discomfort returning quite quickly.
Morrell1951 margaret289
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hanny32508 margaret289
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suedm hanny32508
Posted
The liver is THE detoxifying organ - not the skin.
As to hair dye - I never have, and I have LS my sister always has, and she doesn't have LS.
I believe the problem with LS is deeper than the foods we eat - it is our genes that has predetermined the auto immune activity in our systems and of course probably many conditions are exacerbated by modern pollutants - so one isnt affecting the course of the disease but perhaps helping to alleviate some symptoms.
One cant avoid the worst of the pollutions in most parts of the world these days - Aircraft, road vehicles (esp diesal fuelled)power stations and fires forest or hearth, never mind what farmers put into the soil on the crops and into the animals fish and birds to keep them healthy!
Sorry to sound negative but i am concerned that so many people are so desparate withthe condition they will spoil the quality of the rest of their life trying to find solutions that just are not available to the individual.
I do know that unrelenting stress in our lives has damaged the health of many people - both physically and mentally so we CAN do something to reduce that particular chemical in our systems
Somewhere some have mentioned stem cell therapy and research into the cause if any, of auto immune conditons. If one really want to know what the doctors are doing about the condition perhaps look up scholarly articles on appropriate sites. (just now I heard that if you put doctor in front of your name then you can have access to all sorts of sites that otherwse wouldnt be open to the general public, I havent tried it - but it may open more doors of knowledge to us)
I know there are those who scorn the medical profession - but at least they are qualified to a set universal standard whereas self styled experts only have their own experience to be referenced and personally I cannot put my faith into such people, no matter how loudly they crow about their abilities
How are things with you these days? improving hopefully - you have been such a help to many on this site, thank you
margaret289 suedm
Posted
Of course one will never know if it is the stress reducing feeling of control which alleviates symptoms or what the patient is actually doing, which is making a difference and therefore there is a problem, because that person may trumpet from the rooftops that this or that works for them and folk go out and try it.
However, they will not have the same sense of control, because once again they are being told what they should or should not do. This is all very tricky and one thing is very clear – there is not enough research into the effects of stress on this condition.
The typical pattern of LS on the body is akin to a Rorsach test – the pattern of damaged skin completely ties in with liquid on the skin pressed and held by the folds of the skin. Wherever, the problem lies on the body (groin or under the breast) – it is cause by a fluid. My question is why? Is it fluid per se or something in the fluid to which the body has become sensitive?
As you say, the liver is the ‘detoxer’, but what I would like to know is what is the effect of stress/diet on body fluids generally in terms of general composition/pH etcetera. If Bicarb has a positive effect for some, it possibly means that it is counteracting acid somewhere.
I certainly don't scorn the medical profession, but unfortunately this condition is a complete mystery to many in that profession and they seem to be stabbing in the dark as much as we are as patients. With massive amounts of time between consultations, what exactly are we to do if what is recommended is making things worse or having no effect?
hanny32508
Posted
I have some good doctors around me, willing to think with me. I think that that will be the start of new forms of patient care. The patient experiences the illness, the doctor knows certain things but not all. I believe in this two way street of exchanging thoughts. The outcome should be HEALING.
My thought is that the skin is as much a filter in the human system as the liver, or the kidneys. ( If, as Margaret points out, a simple thing as baking soda can change things around and therefore makes our lives more liveable... that then is a form of healing.) Through the ages people have used forms of sauna's in their everyday lives and found benefits.
Suppose that the regular filters like liver and kidneys are not capable of doing all, how will the skin react? I know, a doctor could give an educated answer. I can not. That's where I will go with this as well.
There might be links that have not been thought of yet.
Thank you so much for your thoughts.
hanny32508
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margaret289 hanny32508
Posted