LS Immunity

hi

LS is an auto immune condition according to my consultant so its important we keep our immune system healthy.  i eat well, exercise and take supplements to help me keep my immune system strong.  Unfortunately i do think stress is a factor to.

Good question. My understanding is that it's the body attacking itself. The reason for estrogen and hydrocortisone, barrier creams, etc, etc is to help fight back. I agree with Jackie for me stress is a major factor

Overactive immune system is what I hear, which is why mu doc prescribed an immune suppressing medicine

Interesting question, I have no answer. Also because I do not really understand how the immune system works and suspect that it is more complicated than at first sight. 

The state of the research is still open. It may be an autoimmune disorder or it may be triggered by trauma, or it may start with some sort of infection like herpes or the same spirochete bacterium responsible for Lyme disease. These are all the subject of ongoing research. In Dr. Goldstein's presentation he shows that there are three inflammatory proteins responsible, but there is no drug that hits only those three. Hense the 'shotgun' solution of steroids.

Inflammation is the subject of much faddish info on the internet, but it's safe to say that our particular bodies produce these particular inflammatory proteins in response to some things (sugar, stress and skin trauma for sure) that don't cause other people any trouble. 'Autoimmune disorder' is about as useful a label as 'genetic'. They just haven't gotten to the bottom of it.

Hi, I think the general consensus is that Lichen Schlerosus is an auto immune disorder, and many people, about 1 in 4  with Lichen Sclerosus also have other auto immune disorders which actually supports this view.   I started out with Oral Lichen Planus, then last year I was diagnosed with Ulcerative colitis (I do have a genetic link to IBD in my family) and then two months later Lichen Schlerosus.

 My understanding of this condition is that the body is confused, it is attacking itself, basically your immune system has become compromised (no one knows for sure exactly why this happens) it has gone into overdrive, and cannot stop, its weird and complicated and scary all at once, and yet sometimes with Lichen Schlerosus you can sometimes find that key,  that "switch" that will turn it off, sometimes for months, and sometimes even for years.

I think it is well known and well documented that sugar is bad for sufferers of Lichen Schlerosus, and therefore watching what you eat is very important.  I have only recently realized just how allergic I am to dairy products!  I knew I was lactose intolerant, and so I made the necessary changes, but for some reason I would cheat every now and then, not realizing the damage I was doing....  

For example, recently over Christmas I had some problems with my kidneys, I had some tests done, all was fine, but I knew the medication I was taking for my Ulcerative Colitis was making me feel very ill, but the company that supplies these drugs was closed for Christmas, and so I had to wait until the New Year, all the while still continuing to take these pills and feeling ill.   I was certain that my pills contained Gluten, which is often in medications, however I was wrong and very shocked when I rang the company and they explained that there was no Gluten in my pills but there was Lactose!!!!   Lactose is apparently in a lot of medications, so it is always worth checking any pills before taking them.  I have had to discontinue taking these pills and three days ago started on some new medication, without Gluten and more importantly without Lactose! 

I mention this in the hope that some of you may realise how easy it is to continue to take foods that are detrimental to your health without fully realising it,  and  also because I have had some problems recently with my undercarriage, which I think may be directly related to my unfortunate situation with my Meds over the Christmas period.

 

It is when the body is attacking itself and I personally believe it is because are body isn't working right do to a deficiency have myself been researching and trying different things while my LS is not cured it is slowly getting better but my energy and mood gave improved drastically I have only been doing this combo for a week and feel an amazing difference stopped eating gluten drink wheatgrass everyday stopped birth control take coconut oil biotin vitamin D and airborne immunity and calcium I'm also want to take pro biotic but because of the price I'm eating acktivia yogurt I have read that a lot if autoimmune dieses are a big affect of a bad gut so I would just do research and try what sounds good to your situation hope this helps