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If LS is an autoimmune disease, I'm interested in hearing if anyone has actually been tested for autoimmune diseases as I haven't been offered any blood tests. I know I'm not Diabetic because my partner is and he tests my bloods.
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Thanks for letting us know Pat. That's interesting and of course I had to go find out what ANA panel is... so it is another form of testing for several different autoimmune situations. esp. lupus. will be interested to learn more when you have it.
Dearest Valerie! no no no... it doesn't have to be all down hill. We CAN back out of or control these autoimmune diseases. I have a dear friend who is a prolific graphic artist - the artist's artist if you will. She NEEDS her hands & wrists. She is managing RA with acupuncture and traditional chinese medicine supplements AND Vitamin D3 etc that is the protocol for autoimmunity.
read this all for more knowledge(what I've found out in 3 months online research:
Yes Nancy, I did read about the doctors only believe its an autoimmune disease since 2012 which as you say isn't very long. I am waiting for a call from the doctor this afternoon. I now have oral thrush which needs treated. The list just goes on and on. Must think positive
I did wonder about Lichen Planus Nancy because my mother had it. I didn't actually get to see a doctor, they just left me a prescription. Will see what its like after finish treatment.
Good morning LInda - well here on the east coast of US. smiles. Yes I've had the TPO test that my doctor says should be given whenever the TSH and T4 tests for suspected thyroid are given. And yes I tested positive for autoantibodies for autoimmune thyroid.
while researching this dang thing, I found out a few months ago that Lichen sclerosus has only been proven to be an autoimmune disease in 2012 - which means that many docs haven't had time to find that and act on that yet. I was visually diagnosed with LS and don't feel any need for a biopsy of the obvious.
If you are a bit concerned about how you feel, do read upon thyroid symptoms for instance and ASK your doctor for the TPO test alone with the others. Also my cardioologist-turned-integrative doctor is VERY up on the deficiency of Vitamin D status worldwide and does do that test. You might want to ask about that test. Do read my report to the group here:
to find out about the details. Another test that I did ask my Doctor for is one for Selenium status. Just know that autoimmunity only affects 5% of the population no matter which of 100+ diseases - so most doctors don't know all the ins and outs of this so help them, be a detective for yourself. My doctor has been very appreciative of my own efforts.
Doing okay here on the west coast in the US. Could you please explain further when you had your TPO test and you tested positive for antibodies for autoimmune thyroid, does that mean you have Hashimoto’s? Or that you have a second auto immune disorder with your LS?
I have been taking a version of Synthroid for about 30 years and now my TSH readings are see sawing. In May they were 28.69, then dropped to .23 and then .27. The range being .4-5. My doctor never orders the TPO which I will request next time. I just had a huge blood panel completed in May as it had been 5+ years but in looking back she did not test for Vitamin D either.
My LS was confirmed with a biopsy in 2014 with my gynecologist and after researching I saw it was an autoimmune disease. She didn’t mention that. Thank you so much for all you do for this group!
Hi there Ruby, ah you may know better than me. Dr. Bailey didn't use the term, hashimoto's, just autoimmune thyroid. And wen I was researching all this stuff about autoimmunity months ago i saw that there were a couple differences illnesses involving the thyroid - so I don't really know the difference. I do now take levothyroxin and I wish I had gotten access to a decently trained doctor to test me properly 15 years ago.
Ruby I'm not sure you need the TPO test if you've already been diagnosed and taking synthroxin for 30 years? I think all the TPO does is confirm thatyour body is making antiboies to
Thyroperoxidase (TPO) Antibodies
oh well maybe... "Differentiating thyroid autoimmune disorders from nonautoimmune goiter or hypothyroidism As a diagnostic tool in deciding whether to treat a patient who has subclinical hypothyroidism.'
grin - Me no know... I just feel better since last fall - i.e I don't fall asleep i the middle of the afternoon - and I can get my dishes done at night... grin...
See if you an get your doc office to send you a print out of the exact blood work and as well if they oranotehr doctor's office has blood counts from 5 years ago... argh well if you didn't ASK for a vitamin D test it's probably not there either.. but ask.
cheers, keepign on!
Thanks for the quick response. I’m so glad you are feeling better anyway since you’ve been put on the levothyroxin. And a dx is always good even though we don’t like it, it gives us the facts. I was originally just dx with hyperthyroidism, then years later switched to hypothyroidism. No ones ever mentioned an autoimmune disease, but now I’m wondering if that TPO test would clarify. Does it really matter anyway? It would just give me something else to fret about. Ha. I can see my blood test results for the TSH for 5 years but no more info. Not sure that helps. I do take 4,000 IU Vit D3 daily when I remember to take my vitamins, teehee, so I’m probably ok on that too.
As an aside, when doing your massive research on everything, did you ever come across R. Stuart Fowler MD? He is in Arizona. He thinks all our vulva problems have to do with micro flora imbalances.
Please ask your dr to check you for all above so you will know where you stand and how best to approach your individualized treatment.
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