Lymph nodes everywhere, collarbone included + symptoms?

Yep but I can feel them only on my other side. My left side there 2 very tiny lymph nodes felt by dragging the top skin to the collarbone then I can feel the little lumps. But the other side I can't feel anything in that area except the node under my collarbone.

i think im just worrying too much, im thin so that may be it. Ive also had strep alot when i was younger and also mono. 

I have feel them everywhere as well, like 4-5 in my groin area, lots down the side of my neck (I can feel the chain of them running to do the bottom of my neck). I have bigger ones under my jaw but pretty sure it's from my bad teeth and impacted wisdom teeth. And one behind my ear.

My doctor said they all feel normal, all look normal on ultrasound and basically said they're probably palpable cause I'm thin, I'm actually tall and underweight but not drastically. My health anxiety isnt good, I thought this will just be a small thing in my life that will pass, but honestly has just gotten worse 😞

I'm so happy to read this. I've had a "skittle' under my left collarbone for at least a few years exactly how you described. I asked my PCP years ago and he brushed it off as a lymph node or cyst and nothing concerning. I forget about it for months until something reminds me of it. I too have sinus issues and had sinus surgery last year. I just had my second child and that has set my anxiety through the roof again, so I asked my on about the movable lump at my 6 week postpartum appt a few weeks ago... Her couldn't even find it (I think it was moving around him, or it really is that small and I'm just crazy.) Anyways he said since it's been there so long and not changing its fine, and to leave it alone!

Hi - I hope you're doing well. My collarbone node is still there...It feels a little bigger but my husband insists it's the same size, and it still moves. I also have a cold so that might be why. In the back of my mind I still worry what if something is wrong but it's honestly been there so long without growing..Everytime I freak out I reread this thread and remind myself there are others out there with the same thing and they're fine. How are you?

Hi,

Mine is still there and is the same size, still moves freely. I've had it checked 3 times by ultrasound and it's very very tiny, too small for a fine needle biopsy. It feels bigger than it actually is. Mine is only 2-3mm but feels like 1cm to me.

I've pushed all thoughts about that lymph node to the back of my mind for a while.

I feel the same, very reassuring that someone has the same lymph node in that spot as well, I've tried looking up other who do in the past with no success.

That's reassuring, I've never had an ultrasound on mine, my PCP said it was nothing and my OB couldn't even find it. it feels about a cm too and looks that when it rolls under the skin, but I guess I don't take into factor the skin laying over it

My lymph nodes are too small for even a needle biopsy apparently, ive tried getting it 3 times from 3 different doctors but no success, and said it be useless and inconclusive.

They would take me more seriously if my lymph nodes dramatically grew, but it's been a year and they are still the same size. I know I shouldn't be able to feel them at all but the ultrasound showed they're all smaller then the size of concern(basically normal lymph nodes, shotty nodes they said?). Did your friend have lymph node that kept growing and growing ? I still do worry about this but feel it's not getting anywhere

Same, my OB GYN couldn't even feel the one I was talking about a couple months ago and said if it had been there for years without growing it was surely nothing to worry about. I literally have to dig it out to move it...I'm sure most normal people don't go digging around for lymph nodes. Plus it moves and isn't rock hard. I vaguely remember asking my primary care doctor about it when I first noticed it and he called it a shotty node. My OB said it could also be a cyst. The only time it ever grows is when I mess with it and even then it gets no bigger than a pea. I had mono when I was in college and have read that can cause numerous nodes to remain permanently enlarged, although I'm not sure mine would even be considered enlarged. I think my husband will go crazy if I also him to check it one more time. I've had numerous blood work and cbc's done in the last 3 years from 2 pregnancies plus a thyroid ultrasound last year all of which were normal, I just need to get it through my crazy head that I am fine!

Hi, Stephanie I have the same thing you do I think. Under my right collar bone in that pit area is a little lymph node. It's extremely movable. I can flip it over the collarbone before it goes back into place. It's under 1cm I think. Maybe 7 or 8 mm? I havn't got an offically messured but that's my guess. And the feeling of it is like a semi-flexed muscle? I'm not sure. I noticed it about 7 Months ago and without it changing I think. When I brought it up to my doctor she said "it doesn't feel pathinogenic"? and did a chest x-ray and a follow up a month later and after that she promised it was nothing to worry about. But I came back worried a couple months later worried about it and wondering about Leukemia and got a blood test. She said the test came back "perfect". That made me feel better. I still do worry about this lymph node though sometimes. I even went for a second opinion and he told me it was nothing to worry about. Does this sound relatable with yours? Thank you!

Hi, yes it sounds exactly like mine. It's in the exact same spot and moves the same as yours, the slightest touch will slide it on top of my collarbone.

I have not had a chest x-Ray but have had 3 neck ultrasounds, and the lymph nodes turned out to be much smaller then it feels. It's pathologically within normal limits apparently and is too small for biopsy. (Though has been there for a year with no change in size). I just hate its location. In a spot where everywhere says it's a cause for concern.

Mine is the exact location, but on the left side!! Which online makes it seem even worse but it's never been more than a cm that it feels like, and everyone keeps saying it's within the normal limits. Do you guys notice yours fluctuating throughout the day? I feel like mine is always bigger in the morning. I actually put a band aid on mine last night so I couldn't get to it, and woke up this morning and it still felt bigger. Granted I think I messed with it all day yesterday so maybe I irritated it. I can't help it!! Yesterday it went anywhere from feeling like a pea to a grain of rice and back and forth. It does ache a little today so that's reassuring I guess if I really did irritate it, normally it's painless which also freaks me out. But again, it's so small no one ever seems concerned.

Thank you for your reply! I'm glad I found someone who can relate. I've been to a few doctors who have told me everything is fine but it still makes me nervous sometimes.

Yes exactly! It feels bigger in the morning for some reason. I'm not sure why. That was actually why I started getting nervous about it again. One morning I woke up, checked it and it felt like it was puffier? I'm not sure why. But as the day went on it shrank back down to normal.

Yes this makes me feel better. I've never had any tests other than bloodwork that's all been normal but no one has ever been concerned. Honestly I put it out of my head for awhile before I spiral into a fear of worry again. My husband says I've been pointing it out for at least 3 years so I have to think it would change by now. It kind of feels like a small liqui-gel capsule, almost like a small NyQuil. Not hard but not really soft either.

That's how mine feels too like a fleshy Liquigel capsul. I think it's a little smaller than a Liquigel. I've been aware of it for a little over 7 Months and I don't believe it's changed which is good. The doctor told me to monitor and check it once a month to check for any changes but I'm wondering for how long before I can definitively say it's nothing to worry about.

Mine has been there for at least 3 years that I know about. The only time it really seems to grow is when I obsess over it, or I did have a tetanus shot in that arm over the summer and it grew to about the size of a marble, it went back down though. I think my only problem is I've never been told 100% what it is, but I do hear that anything under 1cm isn't considered enlarged and no changes are good. I don't have any other symptoms and would think after 3 years something would be off?

Oh really? That's interesting. I've read that about the size too I don't have an official measurement though. I'm not a doctor but I've done some reading and online sources say these nodes drain the arm? Maybe that's why is swelled up like it did. I've also read (though I'm not a doctor) that it something was wrong they would swell up to the size of chickens eggs in a few months? I believe mine is around 6 or 7 millimeters (my estimate) and hasn't changed in over 7 months which makes me feel a little better. It could have been there much longer but I'm not sure.

I thought I was doing so well but suddenly I'm obsessing over this again! Is yours visible to the eye when you move it to the top of your collarbone? Mine can't been seen when it's tucked away but if it slides over the bone it can be seen resting on the bone until it retracts back. Sometimes it's like it gets stuck up there for a second but the slightest touch makes it slide back down to its normal spot.

That's exactly how mine is. I can clearly see it moving around when I slide it on top of the color bone. I do exactly what you do! When I think about it is makes me pretty nervous. But I think it's unchanged for 8 month's so I feel that's pretty good! How long has yours been there?

It's been a couple years at least... Probably 3 that I've noticed. It's fluctuated a little in that time usually when I'm obsessing over it or have a cold or the flu, but always retracts. I probably need to just accept the fact that it is fine!