Lymph nodes everywhere, collarbone included + symptoms?

Hi Stephanie, I am new to hear but any advice my husband has 2 swollen nodes on left collar bone he is 5OI am keeping calm in front of him but so worried I am finding it hard to keep together.  He has seen GP who felt them and said they didn't feel anything is wrong but as so anxious he has been referred. He has got a horrible head cold but didn't think they would be raised in this area and everything I read says not good area. Thank you any advice? Maria

Stephanie, do you have any lymph nodes in your groin too? How big do they feel?

Abt 8 mos ago my husband noticed a mushy lump in his inner thigh and he thght he had a hernia from pushing my kickboxing bag because he said when he moved my bag he felt something not right happen to his left leg. Well this past Jan 2017 he got sick with the flu and a week later the lump swelled up like a hard baseball and he could barely walk. So the next day he went to get it checked out. Come to find out its was his lympnode swollen. His catscan and blood were ok but thy referred him to a Hematology/Oncologist. So he went and my husband sort of freaked out when he saw the Oncologist and asked the dr do I have cancer and the dr told him no no we do alot of things. So the dr sent him for a ultrasound and needle biopsy. The needle biopsy came back as inconclusive and the ultrasound came back ok...The dr was happy with the ultrasound and saw tht his lympnode was gone down after taking antibiotics. So now he is scheduled to do a Pet Scan this Tuesday and thy r going to cut a piece out. My husband seems ok and Im the one freaking out and having anxiety and cant eat while my husband is over eating like nothing. My husband said the only thing thts irratating its super tender, it feels like a pulled muscle, it feels like a sunburn sort of and it itches alittle. I know he is always complaining abt his sinuses and allergies. Also... My husband had broken his left leg like 11yrs ago and had plates and had them taien out but he also needs a knee replacement on the same leg. His left leg is slightly shorter than his right leg after the break. Tht is the only place he has the swollen lympnodes. Im wondering if tht is his weak place on his body maybe tht is why those lympnode swelled. Its like a egg now instead of a baseball and its soft instead hard like it was. Keep us in your prayers.

How is everyone doing? Well I've set myself off into panic again. I had an appointment at the dermatologist last week and we started talking about fatty lumps/cysts and I had her check the lump on my collarbone. 2 doctors had brushed it off but she said it was a concerning area and wants me to have an ultrasound, which I'm having tomorrow. She said she thinks it is just a cyst and the fact that it has been there so long and is movable up over my collar bone is a good sign, and that bad lymph nodes wouldn't really move, but of course I'm still panicked. It doesn't help that it feels harder than it used to but maybe the poking hasn't helped that. I am keeping my finger crossed and praying that tomorrow goes fine but can't help my brain from wandering to the worst. Ugh!!

thank you for your reply! I am scared out of my mind even though she said she wasn't worried about it really other than the location - the internet makes the collarbone seem so scary! I'm just trying to remind myself how long it has been there and how little it actually probably is. When she measured it by holding it with her fingers it was about 1cm but I know that is with the skin overlay and it was a bit aggravated from being poked I think, it seems to have shrunk a bit since then. I just hope that the ultrasound comes back as nothing to worry about I feel like I'm constantly poking and prodding everything out of anxiety for it

Hi

I'm new here. It's good to read your posts and hear I'm not the only person with lymph node worries. I'm looking my mind over this! 3 weeks ago I got strep throat.. started taking amoxicillin for it, then noticed my lymph nodes were very tender and painful but not super swollen (can't really feel them too easily) but it's in many different places on my body. Arm pits (which is pain shooting through them) groin, jaw.. I try not to touch them as they're tender to touch. I don't know if it's normal to have this after 3 weeks. I'm so scared after reading the internet. I think I will go see my Dr next week if they don't stop hurting. Does anyone feel pain from they're nodes even when not touching them? Any thoughts or advice?

Hi Stephanie. A Loved one of mine was recently diagnosed with stage 4 large B Cell Non-Hoskins Lymphoma. A CT Scan was performed last March, nothing detected. This march 2017, Showed abnormalities. I have been reading up on integrated oncology in a newly published book that gives the names of the technology that is detecting cancer that conventional screenings & tests are not sophisticated enough for earlier detection. These tests detect once the cancer has gotten large enough to see. It would be hugely insightful for u to read & perhaps follow up on. This technologies are saving people's lives. We left the oncologist we were seeing & have transferred to an integrative oncology cancer medical center. I can give you the name of the MD who has written & published this book. Book name is The Cancer Revolution. God Speed

Hi Stephanie how are you feeling? I know this is an old post but I've been going through this anxiety on and off for years and it's happening again because now I found above my collar bone shotty nodes on the right side....

Hello. I'm Tommy, 39 years old and very afraid. Glad I found this forum; literally everything I've read online says left supraclavicular nodes are malignant. I'm terrified.

I've been brushed off by doctors for over a year about my many symptoms. Some mildly concerned docs told me, "let's wait and see" a year ago about my night sweats, low grade fevers, and constant fatigue. Other doctors have said it's all in my head/anxiety/ motherhood. Dermatologist brushed off my itchy red bumps as a reaction to living in a new environment. But I've known something was wrong.

A few months ago I found supraclavicular left-side nodes; two on my collarbone. I told myself to stop worrying because my blood work was normal. But they aren't going away. I casually mentioned them to my obgyn yesterday and when she felt them she looked sick. She sat down and said she wants an ultrasound and biopsy done on them; that nodes in the collarbone should not ever be felt unless there's a malignancy somewhere. Then she got very emotional and shared that she just lost her husband to Non Hodgkin's lymphoma and this was his only symptom. She said they did a fine needle aspiration and told him it was negative, but he should have had a biopsy; they waited so long to do the biopsy that by the time they did it and it was positive, he could not be saved.

She spent a lot of time on the phone with Medicaid and they approved only a second doctor's visit to a GP I've never seen before. I have to wait for that appointment, and I have to hope that the new GP will refer me to the ultrasound and that Medicaid will pay for it, and that they will take it seriously enough to do a biopsy. I will not rest until I get answers. (Literally... I am unable to sleep because I am wrecked with anxiety.)

Thanks for reading this. I hope those who have dealt with this can reassure me if they are still here!