Medical marihuana

Roll on when we can get it here then in UK!.....

Yep, I'm waiting for when it is legal and in roll on form.

 

Lucky you. Unfortunately it's not in the U.K. 😩 I do find a couple of glasses of wine helps to relax the muscles but I guess that's far worse health wise.

As it I've said further down - it is for some things.

It is available here where I live - I couldn't afford it though! The army are looking at setting up guarded plantations to reduce the costs (honestly) - at present it is sourced from the Netherlands.

it is medically legal here too but is only prescribed for people who have terminal illness or who have survived traumatic injuries and are coping with severe chronic pain.  I don't know how they gauge the pain of pmr but I have never heard mention of it from any of my own physicians .

I find that wine and prednisone don't go so well together....I turn bright red in the face...and red is not my colour!

I wonder why it is so expensive in Italy.   

Market forces - supply and demand...

The oil which would help PMR directly, by treating inflammation, is not the same substance used to alter mood and deal with other types of pain, which is the kind we usually hear about.  This oil is, apparently, currently a wasted byproduct from the food industry as the seeds and seed oil are produced like any other crop, but the leaf oil cannot be sold to the public.

Mj has for several people like myself medical benefits that is why it was nedically perscribed.

For me it has improved my sleep greatly and has medical benifits with my pain. Although prednisone is my major pain reliever mj has greatly improved my sleep as well as mood.

I think one foolish if having severe problems not to look at alternatives that could possibly work in partnership with conventional medicine.

There are many types of mj available to me in Canada but they like regular medicine target certain problems.

I don't think anyone here is out to sell it or be more pro than when we discuss new medications like LDN or were its being tested. Let people ask the questions and make up there own minds.

I to got monitored and didn't mention brands strains which are a multitude that do different things.

I would love to talk openly about the strains that work for me in order to help possibly others.

As i said I'm fortunate that it's legal here medically.

i have a friend with MS and she swears by it when she was living in Canada. Now here in the U.K. And suffering.

It IS available for MS in the UK.

Google medical m-word nhs uk and you'll get several links.

Obviously her GP is not on the ball then or she hasn't mentioned it believing it was a banned substance. I will tell her. She will be delighted 😀

Now why doesn't your first comment surprise me...

I suspect it may need some hoops to be jumped through - but it can be got.

is your reluctance due to an (understandable)lack of confidence in the standard of the product?    

I would feel more comfortable all around if I was able to have a face to face conversation with the person selling it in a licensed establishment.  On the other hand I think it's ridiculous having to wait for this particular product to be readily available.  I suppose if it's effective enough to treat MS and epilepsy they do need to keep tabs on it, control dosages and such, but surely my local pharmacy, or for that matter organic foods store which carries a lot of supplements, some of questionable value, could sell it?  Human beings, including lawmakers and regulators, are funny.  

I'm guessing that it takes a lot of testing to get a drug approved, and that maybe the level of profit from the more-natural type of cures perhaps can't justify the cost of testing.  So even if effective it mighttake longer to get to market.

Here in California there is negligible enforcement unless one manufactures, sells or uses in public or whie driving. I tested it once in smoked form for my CRPS condition following a "broken" wrist injury, and for which I had been prescribed Lyrica (which I never took), but it didn't really help me with the CRPS.

I haven't tried it for pmr but I would be surprised if it didn't help with my frequent waking at night. I have by now gotten used to waking 4-6 times every night!

I know the James Pagett Hospital...did and possibly still do prescribe it for MS....it`s in Norfolk....

The testing and monitoring procedures for medications are indeed VERY  expensive - multi-millions of dollars. And it isn't JUST the testing - it is all the manufacturing and production processes which must also be carried out under strict controls that cost as well. 

Hi Dan

I take it mainly for sleep and it is great that way. Certain strains and much better for sleep than others.

You should try it.

I, too,don't understand why I now wake up so many times during the night....is it the 01:30 dose of prednisone?  Is it the pmr?     It's exhausting!

 

I wonder when you say you take it for sleep do you mean that it helps you to fall asleep at night or that it helps you to stay asleep and not wake up every hour?

How about a phone discussion with customer service with a  U.K. Manufacturer?

Hi Ricky

It helps keep me asleep and some strains also make you very sleepy.

Just read a study on Facebook that CBD in MJ helps bone density. I tried to copy it to post but it wouldn't let me.

In Canada i speak directly with the manufacturer/distributor and discuss my issues and they recommend. I've tried several varieties within the strain and worked out which one i like best.

Umm, I don't think that would be very convenient, Ricky, I live in Canada.  I've waited so long I don't mind waiting one more year for the legal clinics to be open.  There are clinics already but they keep getting into trouble because they aren't legal yet.  

Besides I have zero interest in the psychoactive forms.  

Hi guys

Just so you understand I'm on medical MJ so i carry a medical card and speak to an authorized legal dealer in Canada that fills perscriptions. My Dr fills the Perscription online.

Right now I'm researching CBD which comes from MJ and promotes bone growth.

I don't mind too much waking every hour or two, since it seems that I usually need to use the bathroom and/or to jostle my digestive system to relieve any distension with a little walking around so as to return to resting comfortably.

The circadian cycles are about an hour apart, or a little less, so it's possible to wake when the cycle has completed and than get right back to sleep, on to the next cycle.

I seem to retain water until after I go to bed at night, something about eating too late in the day it seems or too much salt and fiber perhaps.

I am aware of that, and in my case I just felt I shouldn't have to jump through all those hoops for something which is, actually, legal, but just impossible to buy locally.  I do know that your PMR journey has been much more difficult than mine, and I honestly can say that had I experienced similar problems with tapering etc I would have been much more proactive about getting my elusive oil!  What I hope for is that by the time I'm safely off pred this substance will be more easily available and will help me stay symptom free, should I need something like it.  Just like h---seed oil helped keep my skin free of itchy red blotches after the hydrocortisone ointment had cleared up the symptoms! 

That's the stuff I want..  So it helps bones too?   Mmmmm....

 

I just make a phone call since its a perscription and it is shipped to my home in days. It actually come from i believe your neck of the woods in British Columbia.

So no need to find it your a registered patient and they have a website but i prefer to talk to them. I did tonight after i read the article on CBD to see if they carried it.

I'm fortunate that my GP recommend it.

You make me laugh which is good

Wrong coast!  I find people do find me humorous, not sure why.  Perhaps it's my extreme earnestness!  

I will look for that..thanks

oh.  I assumed you were in the U.K.!     

i've been doing some checking and find that although it is legally produced and distributed locally I can only buy it with a doctor's prescription......and I am pretty sure i won't qualify for one.......   But I will pursue 

In most countries where medical use is approved that is the case - which seems perfectly reasonable to me!

Were are you Ricky. If in Canada you just need a dr. like mine who is very open minded to perscribe. Then easy peasy to order. As i said he recommended it to me.

GP can't prescribe med. m.  Only a specialist and after that all the paperwork and the medical history has to be submitted to the Ministry of Health for their approval which takes up to 3 months.   Iif they approve the application, a licence is issued to the patient who can then take it to an authorized laboratory to receive the medication.    I understand  and respect the need for caution..... but don't think I will qualify for a  licence simply because the pain is controllable with prednisone - if I take enough of it.....but I will bring the subject up at my next rheum appointment.

I wonder why you were allowed to post about this substance and I wasn't.

Don't know what you said but you may have mentioned a name possibly

No more than you.  Sigh.  Sometimes i feel picked on.  I'm not a bad person.  I don't promote questionable remedies.  I do my research and because of my training I know how to judge websites and weed out the rubbish.  Not being able to see the deleted post is so unhelpful to me because I have absolutely no idea what I said wrong this time.  I certainly didn't post a brand name because I don't know any, and I know better than to do that anyway.  Double sigh.  

What kills me is that we can mention other medications that are not yet legal or available in other countries and speek openly about the drug, what it does etc and yet when it come to this topic we are heavily monitored.

As i said i would love to post some research that just came out on it yet can't or if someone would luke to know what strain to look for i could help them but can't.

I'm not peddling just giving info.

I hear you.

Would love to know what you wrote..... !

If you copy and paste the title and authors of the work or something that would make it come up in a search everyone can google it.

There has been some really interesting stuff coming out recently - with regard to Alzheimers and bone density too. I really would love to know if the oil capsules could be used as a steroid and bisphosphonate sparer! 

 

So would I!

So would I!

I will do. As soon as i get back home, I'm away for a couple of days but i will do.