Menopausal Frozen Shoulder
Posted , 99 users are following.
Any ladies with frozen shoulder who are peri menopausal/menopausal and not on HRT should have a serious chat with a (preferably female) GP.
I suffered for ages (two male GP's dismissed the idea of it being hormonal) before being diagnosed with menopausal adhesive capsulitis by a Nurse Practitioner who researched the subject for her thesis. This is also sometimes known as menopausal tendonitis/arthritis. After a month of being on conjugated estrogen (Prempak C) it is like someone has 'oiled' my shoulder. I felt like I had completely seized up and my bicep and shoulder muscle were like concrete. I am now able to do gentle exercises to free the adhesion, and can now lift my arm (impossible for months) to wash and dry my hair/shave under arms etc. Estrogen is the WD40 of the body, and without it, in some women the soft connective tissue goes hard and brittle. Not all women suffer from joint/connective tissue problems in menopause,. but interesting it is usually the ladies who were a bit smug, because they got got to 50/55 ish with no real symptoms or hot flushes - then bam, being hit like a ton of bricks with frozen shoulder. I also had stiffness and pain in the other shoulder, other large joints, elbows and fingers. Mornings were terrible, it could take up to ten minutes to actually get OUT of bed, and sleep? Forget it, being woken with shoulder pain every half an hour.
HRT is not for everyone, but AC was ruining my life. Given that the prognosis for recovery can be up to seven years ...I decided the risk was worth it.
i would never EVER have thought that simple 'hormones' could cause so much pain and change me from being a fairly fit 50 year old into a crippled 90 year old.
Google menopausal frozen shoulder/menopausal tendonitis/arthritis and go and see your GP ladies!!
14 likes, 270 replies
Juno
Posted
I have limited movement in my shoulders and I find the tennis elbow, sore and tiring.
I had never thought of any hormonal connection, but it makes perfect sense.
Thank you.
Juno
alisonb62 Juno
Posted
That's very interesting. Apart from mild flushes around the age of 52 when my periods stopped I thought I'd got off light with the menopause, then the frozen shoulder struck. I was 57 the first time which was bad enough but not as bad as this time which almost unbearable, I'm now nearly 59. I will speak with my Dr about this, thank god she's a woman.
Lesley998
Posted
I genuinely thought I had some awful disease, from bone cancer, to motor neurone, to polymyalgia - because I could not believe my body could change so quickly and be so painful and debilitating.
Typically, women who go to the doctor with symptoms of pain and stiffness are tested for inflammatory conditions - and who actually have 'menopausal arthritis' - will test negative, and their bloods will show a very low ESR and CPR. This does not help, as the baffled GP will tend to then assume it is nerve pain...or all in the mind, or Fibromyalgia - and give a low dose amytriptilene, instead of HRT.I believe a lot of women with Fibro actually are suffering from low estrogen.
The first elderly male GP I saw was supposed to be the practice rheumatology expert...and he had never heard of this (and poo poooohed my tentative suggestion that it could be related to meno) yet the nurse practitioner two door down the hall knew all about it? Doesn't make sense to me. I feel I would have been crippled for years if I had not gone to see her.
I am told that I only need to take HRT for a few years, as at some stage the body naturally recognises it has gone through menopause, and adjusts into old age. (What an expression!!) Some women have a natural decline in estrogen and are not affected. It seems to be the the women who have the sudden decline in estrogen/ovarian failure at the end of perimenopause who seem to sufffer the worst, so suddenly and with such ferocity.
I also have a terrible elbow which constantly clicks and pops - so I sympathise with you there too.
Good luck
Lesley
Lesley998
Posted
Gerry_the_neck
Posted
I've been following this post with interest. I've had frozen shoulder 3 times in last 20 years. However I'm not a woman...I'm one of the others ! So, please don't all morph into one giant woman and tear me to pieces. I can see that there is likely to be a greater incidence of frozen shoulder in women who have gone through hormonal changes, especially where osteo arthritis might be developing, and this is borne out with the number of postings on the web from women who are over fifty. However, my experiences with FS were seemingly caused by a neck problem I've had for a long time....cervical spondylosis ( age 40 to 55). Each time, although quite painful for a few months, it eventually cleared up after about 10 months and the shoulder returned to normal., without fail. Point I'm making is that there was nothing intrinsically wrong with the shoulder itself, the symptoms were referred muscle spasms from the neck problem. I'm wondering if this could be true for all cases of FS and , if so, I don't see why they should focus on the shoulder for applied treatments. I think its best left alone and not aggravated further in any way. Thus it might heal sooner than one which is continually exercised. I know the Physios etc like to be seen to be doing something positive, but really their interference might be extending the problem. If they were to say that the FS is likely to dissipate after 3 months and disappear after 10 months, on its own, then we could make the choice of whether to interfere or not. In my opinion, a condition which everyone accepts returns to normal with no resulting signs of wear or tear, should not be tested in ways which might leave more permanent damage.
Sorry to nudge in here on a valid argument on why women might be more susceptible to this condition. I just wanted to point out that the cause of FS may be more neck-based than shoulder based, and maybe treatments should be more concentrated appropriately.
CynCash Gerry_the_neck
Posted
Hi Gerry, thank you for your post! I have had neck problems from a severe whiplash from a car accident decades ago. I have two frozen shoulders and agree that the best way to handle it is to manage the pain and do nothing. Your neck idea is very interesting as I am experiencing quite a bit of pain across my trapezius muscles, which I am using a tens unit to manage pain. That plus some herbal supplements and Aleve (with prilosec for stomach protection) for pain on a limited basis, and some healing epsom salts baths and balms is pretty much all I'm doing. Are there any other neck therapies you found helpful? I assume you are 100% at this point, I'm looking forward to the day!
Nattytee Gerry_the_neck
Posted
Hi all. Having been diagnosed with FS by a doc specialising in shoulder medicine I was told that true FS is caused by the formation of a woody capsule of adhesive tissue around the shoulder joint. This gradually becomes thicker and tighter over time leading to pain and restricted movement. It can occur only once in each shoulder before the body recognises it and eventually breaks it down. It occurs either resulting a traumatic injury or from no known cause although is recognised to be an abnormal autoimmune response. It is posdible for issues in the cervical spine to mimic FS alghough these are not the true thing and when examuned will not present with the adhesive capsule characteristic of the condition.
I have had a treatment of hydrodilation whereby the adhesive capsule is visualized under US and saline is force in under local anaesthetic until part of it is seen to rupture from the bone under the pressure. This has already bought about significant increase in movement and relief of pain without the need for any physio of surgical intervention. I have been told it is possible to need up to three treatments and am will request a second on Monday but was told it is a highly effective ment. Fingers crossed it seems to be working. Unfortunately FS seems to be setting in on the other side now too s look like I might be booking in for more injections!
The specialist did confirm that true FS is more common in ladies and triggered by dropping hormone levels though, that's not to say men cannot suffer from it.
alisonb62 CynCash
Posted
The trapezius thing is interesting as well as the hormonal aspect. Firstly alot of my pain radiates from my back accross to my right shoulder, but is mostly in between the two on my right side although It does shift to the front of my shoulder near my right breast and accross to my breast bone.
The thing with age and hormonal issues is that I'm sure it's not just women who experience changes at this stage of life so it's not unlikely that the problem is partly hormonal for men too.
tabs
Posted
Well I'm very confused now. I thought lesley 998 was on to something as I am a 51 year old ( certainly on the change). I'm on my second frozenshoulder /adhesive capsulitis on my none dominant shoulder. I can see why the change in hormones could cause these problems, sounds very logical and something I will look into further. Then Gerry the neck throws a spanner in the works as I can relate to the neck problems having suffered on and off since 1999 with neck pain after disc removed and fused at C6, so could this be were my problems stem from?, yet another avenue to pursue. I had surery last year for frozen shoulder then within 8 weeks needed MUA as it became encapusalted. Now, just over a year on, the same shoulder is frozen again. According to the consultant this is unheard of. I know Gerry you would disagree with that.! I've also read that having too agressive physio is detrimental, infact my consultant has advised against it. I am worried about surgery I am going to have on my other shoulder at the same time as my MUA this is needed due to arthris , floating bone fragment and spur. I think I am going to end up with frozen shoulder again or encapsulitus. But I am hoping that there will be light at the end of the tunnel and after the surgery this time I will be pain free - eventually.
All your comments are very interesitng and food for thought
Lesley998
Posted
Of course this condition affects both sexes equally...as you know to your painful cost. Neck, spine, shoulder problems hormonal issues....who really knows why this condition appears in both men and young women, and menopausal women. But it seems the resulting constricture and debilitating long term shoulder pain is the same, whatever the etiology.
i was speaking to a lady last week about this who I met on another forum. She is 51, has breast cancer and has been on estrogen supressing drugs for six months.She has developed sudden onset severe pain and stiffness in both shoulders and also has problems with both elbow tendons. She is on the waiting list for a scan, and is terrified the cancer has spread to her bones because no one has offered any other idea why she is in so much pain. We both think the estrogen link is just too much of a coincidence and she feels much less concerned now she knows there could be a reason for this sudden condition after never having had so much as a neck twinge in her life.
Although replacing hormones does help as I first posted above - I have to admit I am still in quite a lot of pain with this one bad shoulder. Thankfully I no longer have pains in other joints, or hips and elbows as I did, and perhaps was lucky that hormone replacement halted any further issues.I am sadly coming to the conclusion that of course, nothing can actually 'cure' FS if hormonal loss is indeed the cause.It seems once the damage is done, and the scar tissue has adhered we are playing the same long waiting game as everyone else.
perhaps tabs....you have being dealt a double blow by being both hormonal, and already having had neck issues...I wish you the best in your journey.
Gerry_the_neck
Posted
I agree with you as well. Where women of a certain age start to experience frozen shoulder, there must be a connection to hormonal changes and oncoming osteoarthritis and the estrogen treatments look like the best preventative options in those circumstances. If your advice was heeded perhaps there would be less incidences of FS in that demographic. So, I support your advice. However, where FS has already occurred I think it would be wise to not exclude the neck as a possible cause....the reason being that any subsequent treatments applied to the shoulder might be counter productive. The logic works like this for me....If someone who doesn't have osteoarthritis or isn't experiencing hormonal changes, but still experiences FS, then you have to look for a common cause, something that might apply to both sets of circumstances, but is not only evident in one. So, where I'm advocating a neck based source, and you are advocating a lack of estrogen source, I'd be inclined to put both together and say they don't necessarilly conflict. I've had FS 3 times and I'll vouch that each time it totally disappeared after 10 months or so, with no residual damage. There was no actual fault in the shoulder. So, like you, I get a bit concerned when I read posts that advocate any kind of surgical intervention or strenuous exercises, because I think that could be creating problems for the future. I understand the frustrations that drive people to these treatments, but I think its only right to add a word of caution. Chances are it will self resolve sooner if left alone.
However, I totally agree that what you suggest might help with correcting the prime cause of why FS is so common in post menopausal cases. Sorry if I sound a bit like a medic...I'm not. I'm just very familiar with my own FS incidences. And I always knew it would be difficult to say my bit here, without crossing some lines. I think our intentions are the same but just aimed at different aspects.
Gerry
Lesley998
Posted
I also found a site from a Vancouver based physio who states that the number one reason for developing frozen shoulder anywhere in the world is being...you guessed it, fifty and female!
I am not allowed to post the link, but if you are interested google Mike Dixon and Electra Health.
...and Garry, again...I know you men get this condition! But this specific thread was to highlight the connection between frozen shoulder and menopausal women.
Fusspot
Posted
I am 55 years old and am just coming up to my one whole year without periods.
I was diagnosed with AC in my right shoulder about this time last year and sent to physiotherapy alongside taking Ibuprofen 400mg.
Whilst the Ibuprofen helped with the pain I was given the usual set of exercises to do (finger walk up wall and various other stretching exercises).
I can now say that the original AC has now resolved, no pain and I can at last lift my arm enough to shave my armpits, reach for things without going 'Owww' and no more of that horrible pain that feels similar to whacking your funny bone and everything has to stop until you can get your breath back again. ROM is not as good as before but perfectly acceptable.
Now I'm getting the same symptoms on the other shoulder. I'm so glad that one resolved before the other as I've heard of people getting "stereo frozen shoulder" which must be horrible.
I must say that I wasn't terribly diligent with the exercises after a couple of months or I would occasionally do the stretches if it was particularly bad but I can say that the condition does seem to resolve itself which I think is important to mention.
My GP was sympathetic and told me that it would resolve in time and he offered me intra-articular injections which he is experienced in giving but I declined as the results can be negligible.
For those with very bad AC and where lifestyle and work is seriously compromised there is MUA (manipulation under anaesthetic) but should only be done by experienced orthopaedic surgeons and sounds awful! The YouTube video of the procedure put me off, even though it was done under GA.
Another interesting treatment is pumping in sterile water and anti-inflammatory infusion into the joint to "re-oil" the joint and gently break the adhesions. This is done with the patient awake under local anaesthetic but is only practised by a few hospitals/consultants in the UK.
Totally agree that it's menopause related, I have 3 friends who are going through or been through "the change" and they have all had frozen shoulder at that time too.
I am not going to have HR as my doctors practice do not approve of it except in exceptional circumstances and the only other symptoms I have are hot flushes at night but there again I'm patiently waiting for this to subside and cuddle my "Chillow" instead!:D
Lesley998
Posted
I had my HRT increased to the highest dose as along with the FS in my left shoulder, I was starting to get worse symptoms in my right shoulder, my elbows, and was starting to get problems with my hips too. I was just about at my wits end. I have to say, I feel the benefit of HRT - having estrogen back again has made a huge difference to my joints and tendons and I truly believe it has turned me back into a 50 year old instead of a 90 year old cripple.
MJTh
Posted
I am brand new to this forum and come out of total frustration. 5 years ago I had a terribly painful case of frozen shoulder. I had an MRI and an ultrasound which revealed a possibility I tore ever so slightly my rotator cuf. The examination was inconclusive but I got teh FS after moving a very heavy treadmill out one room down a hall and into another. i really over stressed the joint and thought I just had sore muscles. It took me 4 years to recover which included the shot in the shoulder twice and PT. I eventually gave up the PT as every time I went it set me back very painfully for at least 3 weeks. I was warned by the specialist that in most cases once having a FS you will get it some years later in the opposite shoulder. I dismissed this as ludicrous since mine was from a dumb injury. Well here I am 5 years later with a FS in my other shoulder! pooh! This one is different. Very painful yet not as excruciating as the first. I went to the Dr much earlier (last time I waited 3 months of trying to deal with the pain on my own) I did get the shot in teh shoulder but I can't tell it actually helped. I also got a two week batch of anti-inflamatory pills. They did help a bit but now that they are over I notice an increase in the burning and more pain. This one seems more inflamed. I can feel the burning all down the front of my shoulder and into my elbow. Sometimes even under the lower part of my shoulder blade. I am so frustrated because I can't ride my bike, open doors reach for things in the fridge, etc.
I have read the discussion here and am very interested in the idea of a hormonal thing. I am 50 and have had some mild menopausal symptoms since my early 40's. But how to bring this up to my Dr? I am living in the Netherlands and Dr's here tend to get rather disgruntled when patients try to tell them what to look into or how to treat you. Hormone Replacement Therapy? How would I know that this is something I should look into/need? Anyone know if I look forward to getting FS's every 5 years for the rest of my life? Or does it just go away after the two shoulders?
I am so sick of being in pain all the time especially when the first one only just got better (although I do not have the complete full range I used to have. I cannot wash my hair with two hands, style it, shave my pit blah blah. It's horrible. Any advise?
Nattytee MJTh
Posted
Yep dropping hormone levels. My shoulder specialist confirmed definitely a culprit! As can be a shoulder injury but menopause is well known. I've just had hydrodilation treatment. A quick jnjectionwhere the adhesive capsule is ruptured in a local anaesthetic injection mixed with saline. Takes 15 mins. Uk cost £150 -£300. You might need more than one injection. Im probably going to need a second this week coming but already the difference made by one has been incredible ; radically improved range of movement ( including vaguely shaved underarms😂, brushed AND sort of tied up hairand most importantly huge reduction in the fire in my shoulder and arm, I can even ride in the far without screaming the entire journey in pain. 100 recommended.