Menopause and paresthesia?

Posted , 157 users are following.

I would love some input on my strange symptoms. 

I'm 50 years old. For many years, my periods have been very close together, very long, and with 2-3 days of exceptionally heavy flow. I know this weird period stuff is normal in peri menopause. Then, after one of these "normal" (for me!) periods in April, I didn't have one for 60 days - and when I did it again, for the first time in years I didn't have the heavy days. That was over 60 days ago and so far I haven't had another one since.

My FSH level in a blood test two weeks ago was very high - 117.

I tell you all this just as a little background - I already know I'm obvioulsy in peri menopause and nearing actual menopause. 

But here's the reason I'm posting. Starting mid-May, all of a sudden I started having very consistent paresthesia in my feet and legs - a mixture of tingling, pins and needles, slight burning, static sensation outside skin, pricking... no numbness. It has been with me every single day since then - 3 months now. It's worse at some times than others, but always present to some degree (and usually very annoying and concerning). It is definitely in BOTH legs and feet. 

I'm slightly low in B12 and hoped that was the cause - however, after 10 B12 shots over 5 weeks, I have no improvement. I've had various other blood tests, all normal. I had an MRI of my spine (all 3 sections) yesterday and it showed nothing. No MS lesions, no transverse myelitis lesions, no compression/stenosis, no disc problems, no tumors. Now I need to get a brain MRI and of course I'm concerned this one could show MS. However, doctors have told me - and my research confirms this - it would be most unusal for MS to present with paresthesia equally on BOTH sides, stay around consistently for so long without going away even briefly, etc... And I have zero other MS sypmtoms.

So assuming (hopefully!) that's NOT what it is, then it's becoming a real mystery. I've done some reading that suggests these weird tingling sensations CAN be caused by menopause - due to extreme hormone imbalance. Also, my hormones could have been out of whack for a long time what with all my irregular periods, AND about 12 years ago I had my hormone levels checked and supposedly at that time I had the estrogen level of "a post-menopausal woman." At the time my doc said that was a little odd, but ok, no cause for concern. Anyway, I say all this as a way to say perhaps I've been a little bit of a unique case as far as my hormones.

Does anyone think these symptoms COULD actually be attributed to menopause? Or has anyone had something similar happen to them? I've asked my doctor a couple times and she immediately says no, menopause couldn't cause this. I realize it's not typical, but is it possible? So far I have no hot flashes or night sweats, thank heavens, but maybe this is my own personal type of menopause hell?! 

Any insight would be so very much appreciated. Maybe I'm grasping at straws, but it DOES seem an interesting coincidence that all these issues have come up right as I'm going through this different timing in my periods, obvious continued hormone changes, etc... 

Thanks in advance for any help people might be able to offer.

I think I'm going insane. If this could be blamed on menopause, I would be SO relieved and could deal with it!!!

 

12 likes, 501 replies

501 Replies

Prev Next
  • Posted

    Molly I totally understand your frustration I’m going on week 13 of tingling all over that is there in different places of my body but always somewhere but more in my hands and feet.

    Been to neurologist 2x with basically normal exam except for brisk reflexes in knees.   My MRIs of brain and spine were ok but I have what they call non/specific white matter on brain scan which I also had 5 years ago with no change.  But I wasn’t having tingling 5 years ago just neck pain.  Spine MRI was good.  They said I have 2 very minor bulging discs with no nerve pinched.

    All bloodwork was good and my neurologist wants to repeat brain and spine MRI in September to see if there’s any change? I’m so worried it’s MS.  Neurologist says at this point he can neither confirm or rule out MS.  All I do is worry and hope that I won’t wake up with tingling every day.  

    My tingling seems to get worse with activity like exercise and cleaning but sometimes I feel it with just typing and wierdly I feel it in my feet sometimes with just wearing shoes that hurt my feet or just by taking my shoes off or bending?  I also experience “warm sensations” but not quite burning. Mostly my sensations are tingling/stinging/pinching though with some soreness or a chimes occasionally in my triceps but that comes and goes.

    • Posted

      Hi Tara, I’m no dr but I have had exactly what u are feeling. My doctors never sent me for mri because My tingling was on both feet and hands. MS is on one side and u have episodes of it it’s not constant. I felt fine when I had all these symptoms I was able to walk clean  run. Do it all. My sensation was always there and when I wore tight shoes it was worse or  crossed my legs. I would wake up with the sensation all the time and I also had it in my feet. I believe it’s premenopausal    It’s been almost 2 years the sensation going away now.  

    • Posted

      I had the same happen to me five years ago. After MRI i had two doctors tell me if was ms. I also have osteoarthritis in my first two disc of my neck. My chiropractor says this might cause some of the tingling . My episode lasted seven weeks. Was low on vitamin d as well. After my episode was over i worked with my chiropractor and take 3000iu of vitamin d. I haven't had an episode since. I know there is no definitive test for ms, but I wonder now if i even have it. This was also the time I started perimenopause. It is very frustrating!

    • Posted

      Did they tell you that there were lesions in brain and spine? Are you on meds for ms?
    • Posted

      Yes,there were a few lesions. Chiropractor said discs could cause this too. Neurologist also said people can have lesions and not be ms. I was diagnosed at 45, and except for that one episode nothing since. Neurologist said maybe I have a mild case and told me I should take the medicine. I did not have spinal fluid removed. The doctors told me to keep moving, so I walk two\three miles a day.
    • Posted

      Hi Tara I got my mri bk which shows I have a herniated disc in my neck I haven't seen the neuro yet to discuss of this could be a cause ,my husband says that the neck should effect my arms hands only not my legs which it started in my feet spread to knees then hands within 24 hours and is none stop for 18 months tingling vibration nothing helps it never ever stops driving me crazy

    • Posted

      Jane your symptoms are exactly like mine as it's constant never without it tingling in feet legs and hands it's also worse when I cross my legs ,have u taken anything for it what helps you I cannot find relief with anything it's like the vibration you get if u touch a car door when it's running or hold an electric toothbrush constant rumbling feeling my hands hurt but I'm still very strong I also can walk clean and run I don't understand all my tests are always normal

    • Posted

      Hi dawn 

      If the disc is protruding into spinal cord it could affect anything below the point of the spine affected.  At least that’s how my neurologist explained it.  I also have tingling all the time and sometimes pain in my arms (triceps) and quite often neck pain but my 2 discs are not protruding into my spine 

    • Posted

      Its awful i know i have it constantly and in my face a bit yo but not numb and my movements are good
    • Posted

      My first two discs in my neck are osteoarthritic. My chiropractor says the neck and spine are responsible for many different symptoms throughout the body. He said it could cause the tingling that I had. I worked with him many months. The tingling did subside. I occasionally still have some,but pleased with the results.

    • Posted

      Hi dawn, I’m 42

      I been trying to get pregnant  so I was going to a reproductive dr and I my fsh was high in the 60’s my Amh very low and and estrogen low. Doctor would ask me if I had hot flashes insomnia. That’s what I realized that perhaps my symptoms were from

      Premenapause.  I asked the doctor and she said tingling is defiantly a symptom.  

      She put me on a   estrogen patch. It helped I only used it for a short time now im trying evening primrose and flaxseed rather go natural route.   Not sure if these remedies helped or that my hormones levels are just adjusting because my anxiety and panic have also gotten better.   Your symptoms are like mine. I had that vibration too. I Had  the  shakes and Radom

      Shooting pain. My periods are some what regular I maybe skipped a period twice this year.  

    • Posted

      I had a low estrogen patch.   But I’m trying to go the natural route. Using evening primrose  and flaxseed  powder

       

    • Posted

      Hi Jane

      I’m at a loss.  I went for a walk tonight and right now I’m tingly in feet and hands and my thighs are sore? I’m so disgusted.  I just want to cry.  I may try the primrose and flaxseed but how much of each? 

    • Posted

      Hi Shona

      Have you had MRI? Do you have some soreness in legs or arms too? I do and I get a bit of tingling in face too but  not so much.  I get it everywhere else though along with some tiny little muscle twitches.  I’m so at a loss with this 

    • Posted

      No mri yet .a bit of tingling in one side face .but cold sensations down legs and tingly prickly legs and lower arms
    • Posted

      No soreness but at times deep like muscle pain in right thigh sometimes left to but only a bit.droplike icy rain drops at times on body .shoulders etci just want to feel normal it does my head in
    • Posted

      Hi, 

      I posted some months back that I had tingling 24/7 all over.. sore joints deep muscle pain etc ..

      I have been on hormones now for three months and can say I have slowly got better.. now tingling gone 85/90% of the time.. joint pain heaps better.. muscular pain still there.. comes and goes.. def hormonal 

    • Posted

      Hi Rebecca. Wait another couple of months and you will probably find all the tingling gone. Well that's how long it took me. It amazing isn't it. Thank goodness there was a solution to these awful symptoms. I had the tingling, burning and numbness and joint pain plus muscle twitching- all gone after about 5 months. Everything goes away gradually. I started HRT 10 months ago and it's the best thing I ever did. And thanks to my sister who got on the net and researched about it including this forum, because I had no clue and neither did my dr (as with most doctors).

    • Posted

      Hi Rebecca

      sounds identical to my symptoms but I haven’t been to endocrinologist to see if hormones are wacky.  I’m aftaid to take hormones because of side effects though? But tingling drives me nuts!

    • Posted

      Hi Rebecca I have tingling 24 hours a day for 18 months there's never been a second without from feet to knees and both hands came on within 24 hours can u tell me how long u had it and what your now taking for it to get better thanks dawn

    • Posted

      Hi Tara thats how i feel as well.im scared of side effects too.
    • Posted

      Hi Rebecca,

      I'm 51, premenopause, I have been suffering since February from tingling feet and burning legs. , all tests are negative, so I started HRT (estrogen and progestin) 10 days ago, but my symptoms worsened. I'm desperate . I would like to try the  Bio HRT.

      Can you tell me a little  about your treatment. In France, BHRT is not widely known. . Did you  use an progestative cream ?

      I'm sorry for my English. 

       

    • Posted

      I have been in Peri for two years at least but woke one morning Jan this year and had tingling all over which spread and changed each day.. The lead up to this was sore joints that would come and go and thought it was from just working out.. I researched to find these symptoms were the fluctuating hormones.. and since I was barely ovulating my progesterone has dropped back to low levels thus making my estrogen levels dominant.. I have learnt that dominant estrogen is responsible for so many of our problems and having lack of progesterone to make us feel good had gone.. Progesterone is made by our ovaries when we ovulate and is the good feeling hormone.. the one that makes us feel great like when we are pregnant .. estrogen can make us feel like crap.. moody, achy. Fluidy.. hot.. etc.. plus sends our nervous system crazy hence pins and needles.. I have been on hormones for three months now.. hot sweats gone.. mood better joints better and pins and needles 85% better.. I have had two periods in a month and have noticed when they are coming my symptoms come back and again it is fluctuating hormones..
    • Posted

      I take DIM in the morning which helps control Oestrogen dominance and progesterone at night.. So far working well for me.. I have weighed up the risks and feel I need to take these to live a normal life.. Everyone is different and was always against HRT but have known a lot that take BIO and have had brilliant results .. 

    • Posted

      Hi Rebecca, 

      I can not read your answer, please can you  try to send it back ?

      thank you

       

    • Posted

      I have been having similar problems and I am extremely worried. Several months ago was accidentally diagnosed with cervical stenosis in 3 vertebrae of neck with some spurs etc but nothing close to spinal cord. Was completely shocked by diagnosis because I am 47 but a former athlete and still in excellent shape. No real symptoms. Neurosurgeon said I could carry on activities as usual. Perimenopause had already been going on for a year or two but suddenly in last couple months started having night sweats and early morning hot flashes and severe anxiety, doom and gloom, irregular periods, breast pain etc. just more intense peri and AWFUL. Now I’m having electrical shock pains in neck and mouth and face (jaw and teeth) and some tingling in both feet but none in hands or arms where people usually get it with cervical problems. Just so bizarre. Heading back to neurologist. I have had other symptoms like the shakes that I attributed to peri but now wondering if that’s from my neck too. Ugh. Scared. 
    • Posted

      Hi Rebecca - I am sorry for being so ignorant, but what is DIM? Is it a prescription?  I am estrogen dominant & cant take hormones because of my age, so would appreciate any help - thank you!

    • Posted

      You can buy it online and health food shops.. it is a estrogen metaboliser.. If you r dominant of it , you need to reduce it.. Oestrogen really is the ugly hormone
    • Posted

      Hi there - thank you for clarifying that about DIM, interesting article - Thank you!
    • Posted

      Hi Tara

      I have had waves of scalp tingling for 2 months now, every now and then in extremities and also have some small no specific spots on the white matter but not the demylation MS lesions.

      Im 53 and honestly feared MS would be the diagnosis. (And still do worry about it even though Dr snd Radiologist say no)

      I am also in full blown menopause but two things happened the precise time it started. I hurt my neck and had a sinus infection.

      The mri on my neck showed it was full of arthritis, mild disc bulge on two and several large bone spurs. I am told this couldnt cause the tingling scalp sensation even though it starts at the neck and goes overthe head.

      Who knows. Ive had every other test bar testing for viruses so have just started on hrt so hopefully that will help because it's really wearing me down.

    • Posted

      Jaygf I totally understand your frustration.  My husband swears my issues are from my neck but docs keep saying no.  I just got about 10 viles of blood drawn this morning to check a few vitamin levels, my hormones and thyroid.  Here we go....

      I really wish you the best with the hormone therapy.  It’s so frustrating

    • Posted

      I have now read many of the posts relating to neck issues. Doctors told me I have ms. I also discovered my first two discs in my neck have osteoarthritis. I have had tingling all over. I worked with a chiropractor for months and had good results. This makes me wonder if I have been misdiagnosed. Thank you for your post.
    • Posted

      Michelle

      Do you have lesions in brain and spine? That’s the criteria for diagnosing MS in US

    • Posted

      Hi Michelle

      My Dr said even though I have a few bilateral white spots (called foci) they are non specific and are not typical of MS lesions.

      About ten years ago I had two bouts of atypical neuralgia so I had somewhat of an emotional meltdown certain it was MS!

      I had no lesions in my neck (full of other issues) and a previous scan ruled out any lesions on my spine.

      It may be wishful thinking on my part, but when I hurt my neck I had constant headaches and then constant scalp tingling started. Yet Im told the scalp tingling is not referred pain from neck issues.

      As I said in a previous thread, I always thought Id be the type to breeze through menopause given my usual common sense nature , but I couldn't be more wrong!

      This is hideous! ! The hot flushes I could cope with, it's all the other stuff I never knew existed with menopause! Geez... and that's the other thing I have turned into a serial complainer! !

      I've started exercising and drastically modified my diet so hopefully that will help.

      Im sincerely glad your chiropractor helped you, hang onto him or her if they're good. (I had a great chiropractor but he moved interstate).

      I have only been in hrt for 3 days but I swear my scalp tingling has reduced a lot (again it may be wishful thinking).

      I hope you do not have MS and it is a misdiagnosis , I have read stories where that has been the case.

      Wishing you all the best.

    • Posted

      Hi Tara,

      Sounds like me. I had six viles taken vitamin panel; liver function, thyroid, full blood count; white blood count; rheumatoid arthritis; allergies ;hormone levels and so on.

      I had previously been anaemic, very low vitamin D so I knew those would be ok because I had addressed those through hysterectomy and vitamjn D supplements.

      My cholesterol was up a bit and hormones were all indicative of full blown menopause, but that's it.

      My husband also says tingling/headaches are from my neck but like you I am told it is not. Im sort of hoping it is from my neck and menopause combined. ALL I know is that I get relief from heat packs on my neck or when my shoulders /neck are massaged.

      I also have weirdly a marked improvement on my 3rd day of hrt even though it's suppose to take weeks/months to work.

      Maybe menopause has sent me completely loopy!😀

      Fingers crossed for you that isdues get resolved.

    • Posted

      Hi Tara. Just had bloodwork done last week. 5 viles I think. It sure is frustrating! My gyn walked in for my yearly and asked how I was. I broke down crying. Felt so weak and ridiculous. "Middle age" has affected me SO adversely! Thought NOT bleeding would be great. Please let us know what you find out. My doctor is one of the best, and promised to get to the bottom of this for me, but I fear that the trial/error is going to kill me. I'd rather be pregnant, give birth, or pretty much anything else than low on hormones!!😳 Always say "it could always be worse," but some days I wonder...

    • Posted

      Hi Nancy

      Ive had multiple meltdowns at home. Im sure this neck pain, scalp tingling and MRI results have added to it, but I had become an anxiety riddled mess before tbh.

      My new Dr is trying his best to help with various meds and advice which is better than my previous Dr who reluctantly prescribed oestrogen and said "You're just one of those women who don't adjust well to menopause ". I felt like a failure tbh.

      You know, the way menopause was described to me was that hot flushes were going to be an issue and that's it. If only! They were the least of my problems.

      I thought hitting my 50's would be the golden era,lovely husband. , kids grown and happy , getting to the point of no mortgage and travelling ....but it's been awful!

      Im hoping to geta handle on this with help from my Doctor.

      Hang in there?, it sounds like you have a good Gynecologist which is a bonus. I find this forum helps because I dont feel so alone in the 'suffering'.

    • Posted

      Hi Jaygf

      I get some neck relief with heat and message also.  

      Still waiting on bloodwork.  I just read that Vitamin B6 toxicity can cause the tingling and so I stopped my multivitamin 3 days ago and maybe it’s just a coincidence but it seems better?  My B6 is being tested along with iron, folic acid, hormone levels and thyroid so hopefully I get some answers .  Have you had any results from tests? 

    • Posted

      Gosh you guys it is nice to know im also not alone .see neuro on monday .a bit scared but gotta do it
    • Posted

      Did you have a bone density test on  your neck? That would give you a better idea. They usually only scan to the mid section. I am not sure what they do for the neck but for osteoarthritis they recommend weight bearing exercises. Make sure you are eating at least one green leafy vegetable a day and if you can do 3 a day even better. My therapist told me about one of her patients who did a green smoothie every day and she was able to repair her bones. I have osteopenia which comes before the arthritis. I also drink milk. I wouldn't necessarily go by the pain as a marker to the bones getting better. It can be silent sometimes.

    • Posted

      My gyno has seen me at my worst. Crying, brain function off, everything. I have anxiety and depression on and off in my life but at least my cognitive has never been a problem. I remember sitting in his office in full blown postmenopause babbling about my dysfunctional marriage and how my husband was an alcoholic and how lousy I felt. I looked at me and told me that my husband wasn't going to get better which was pretty much right. The only saving grace about all the postmenopausal pain i've gone through is that now I set boundaries and I don't keep relationships that aren't good for me. P.S. my ex isn't a bad guy just had some pretty horrible things happen to him and he chose alcohol instead of treatment.

    • Posted

      Hi Tara

      Funny you should say that, I get relief with hot packs andmassages from the oh.

      My vitamin D levels were great(O had started those before blood test any way), as were my vitamin b BUT I had increased them after my blood results so cut those out as I was taking too many .

      Pathology shows I am in full blown menopause .

      I have improved generally after commencing tibolone but I still get neck pain and tingling scalp though not as bad.

      I also just started on low doses on amitryptiline and gabapentin ,but I think I have to wait six weeks to see if they help, at least with the amitryptiline.

      I stress about having MS as 10 years ago I had a bad bout of neuralgia though my Dr thinks it is not MS.

      It's hard to tell because I am experiencing so many weird things that could be attributed to menopause. Im a bag of anxiety atm which does not help!

      How about you, any results from your bloodwork? Hope you are feeling better.

    • Posted

      Hi dawn, how are you feeling.  

      I was on a estrogen patch for a few months that seemed to help. I stopped taking it though, I got nervous  with supplementing  With estrogen. 

      I did feel

      Better. I figured I try and deal with it without meds. 

      It is getting better  I have had these symptoms for 2 years.  

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.