Menopause and paresthesia?
Posted , 157 users are following.
I would love some input on my strange symptoms.
I'm 50 years old. For many years, my periods have been very close together, very long, and with 2-3 days of exceptionally heavy flow. I know this weird period stuff is normal in peri menopause. Then, after one of these "normal" (for me!) periods in April, I didn't have one for 60 days - and when I did it again, for the first time in years I didn't have the heavy days. That was over 60 days ago and so far I haven't had another one since.
My FSH level in a blood test two weeks ago was very high - 117.
I tell you all this just as a little background - I already know I'm obvioulsy in peri menopause and nearing actual menopause.
But here's the reason I'm posting. Starting mid-May, all of a sudden I started having very consistent paresthesia in my feet and legs - a mixture of tingling, pins and needles, slight burning, static sensation outside skin, pricking... no numbness. It has been with me every single day since then - 3 months now. It's worse at some times than others, but always present to some degree (and usually very annoying and concerning). It is definitely in BOTH legs and feet.
I'm slightly low in B12 and hoped that was the cause - however, after 10 B12 shots over 5 weeks, I have no improvement. I've had various other blood tests, all normal. I had an MRI of my spine (all 3 sections) yesterday and it showed nothing. No MS lesions, no transverse myelitis lesions, no compression/stenosis, no disc problems, no tumors. Now I need to get a brain MRI and of course I'm concerned this one could show MS. However, doctors have told me - and my research confirms this - it would be most unusal for MS to present with paresthesia equally on BOTH sides, stay around consistently for so long without going away even briefly, etc... And I have zero other MS sypmtoms.
So assuming (hopefully!) that's NOT what it is, then it's becoming a real mystery. I've done some reading that suggests these weird tingling sensations CAN be caused by menopause - due to extreme hormone imbalance. Also, my hormones could have been out of whack for a long time what with all my irregular periods, AND about 12 years ago I had my hormone levels checked and supposedly at that time I had the estrogen level of "a post-menopausal woman." At the time my doc said that was a little odd, but ok, no cause for concern. Anyway, I say all this as a way to say perhaps I've been a little bit of a unique case as far as my hormones.
Does anyone think these symptoms COULD actually be attributed to menopause? Or has anyone had something similar happen to them? I've asked my doctor a couple times and she immediately says no, menopause couldn't cause this. I realize it's not typical, but is it possible? So far I have no hot flashes or night sweats, thank heavens, but maybe this is my own personal type of menopause hell?!
Any insight would be so very much appreciated. Maybe I'm grasping at straws, but it DOES seem an interesting coincidence that all these issues have come up right as I'm going through this different timing in my periods, obvious continued hormone changes, etc...
Thanks in advance for any help people might be able to offer.
I think I'm going insane. If this could be blamed on menopause, I would be SO relieved and could deal with it!!!
12 likes, 501 replies
tara50448 molly54321
Posted
Been to neurologist 2x with basically normal exam except for brisk reflexes in knees. My MRIs of brain and spine were ok but I have what they call non/specific white matter on brain scan which I also had 5 years ago with no change. But I wasn’t having tingling 5 years ago just neck pain. Spine MRI was good. They said I have 2 very minor bulging discs with no nerve pinched.
All bloodwork was good and my neurologist wants to repeat brain and spine MRI in September to see if there’s any change? I’m so worried it’s MS. Neurologist says at this point he can neither confirm or rule out MS. All I do is worry and hope that I won’t wake up with tingling every day.
My tingling seems to get worse with activity like exercise and cleaning but sometimes I feel it with just typing and wierdly I feel it in my feet sometimes with just wearing shoes that hurt my feet or just by taking my shoes off or bending? I also experience “warm sensations” but not quite burning. Mostly my sensations are tingling/stinging/pinching though with some soreness or a chimes occasionally in my triceps but that comes and goes.
jane58999 tara50448
Posted
michelle92591 tara50448
Posted
I had the same happen to me five years ago. After MRI i had two doctors tell me if was ms. I also have osteoarthritis in my first two disc of my neck. My chiropractor says this might cause some of the tingling . My episode lasted seven weeks. Was low on vitamin d as well. After my episode was over i worked with my chiropractor and take 3000iu of vitamin d. I haven't had an episode since. I know there is no definitive test for ms, but I wonder now if i even have it. This was also the time I started perimenopause. It is very frustrating!
tara50448 jane58999
Posted
tara50448 michelle92591
Posted
michelle92591 tara50448
Posted
dawn68509 tara50448
Posted
Hi Tara I got my mri bk which shows I have a herniated disc in my neck I haven't seen the neuro yet to discuss of this could be a cause ,my husband says that the neck should effect my arms hands only not my legs which it started in my feet spread to knees then hands within 24 hours and is none stop for 18 months tingling vibration nothing helps it never ever stops driving me crazy
dawn68509 jane58999
Posted
Jane your symptoms are exactly like mine as it's constant never without it tingling in feet legs and hands it's also worse when I cross my legs ,have u taken anything for it what helps you I cannot find relief with anything it's like the vibration you get if u touch a car door when it's running or hold an electric toothbrush constant rumbling feeling my hands hurt but I'm still very strong I also can walk clean and run I don't understand all my tests are always normal
tara50448 dawn68509
Posted
If the disc is protruding into spinal cord it could affect anything below the point of the spine affected. At least that’s how my neurologist explained it. I also have tingling all the time and sometimes pain in my arms (triceps) and quite often neck pain but my 2 discs are not protruding into my spine
shona53538 tara50448
Posted
michelle92591 dawn68509
Posted
jane58999 dawn68509
Posted
I been trying to get pregnant so I was going to a reproductive dr and I my fsh was high in the 60’s my Amh very low and and estrogen low. Doctor would ask me if I had hot flashes insomnia. That’s what I realized that perhaps my symptoms were from
Premenapause. I asked the doctor and she said tingling is defiantly a symptom.
She put me on a estrogen patch. It helped I only used it for a short time now im trying evening primrose and flaxseed rather go natural route. Not sure if these remedies helped or that my hormones levels are just adjusting because my anxiety and panic have also gotten better. Your symptoms are like mine. I had that vibration too. I Had the shakes and Radom
Shooting pain. My periods are some what regular I maybe skipped a period twice this year.
jane58999 tara50448
Posted
tara50448 jane58999
Posted
I’m at a loss. I went for a walk tonight and right now I’m tingly in feet and hands and my thighs are sore? I’m so disgusted. I just want to cry. I may try the primrose and flaxseed but how much of each?
tara50448 shona53538
Posted
Have you had MRI? Do you have some soreness in legs or arms too? I do and I get a bit of tingling in face too but not so much. I get it everywhere else though along with some tiny little muscle twitches. I’m so at a loss with this
shona53538 tara50448
Posted
shona53538 tara50448
Posted
rebecca19258 shona53538
Posted
I posted some months back that I had tingling 24/7 all over.. sore joints deep muscle pain etc ..
I have been on hormones now for three months and can say I have slowly got better.. now tingling gone 85/90% of the time.. joint pain heaps better.. muscular pain still there.. comes and goes.. def hormonal
stav93427 rebecca19258
Posted
Hi Rebecca. Wait another couple of months and you will probably find all the tingling gone. Well that's how long it took me. It amazing isn't it. Thank goodness there was a solution to these awful symptoms. I had the tingling, burning and numbness and joint pain plus muscle twitching- all gone after about 5 months. Everything goes away gradually. I started HRT 10 months ago and it's the best thing I ever did. And thanks to my sister who got on the net and researched about it including this forum, because I had no clue and neither did my dr (as with most doctors).
tara50448 rebecca19258
Posted
sounds identical to my symptoms but I haven’t been to endocrinologist to see if hormones are wacky. I’m aftaid to take hormones because of side effects though? But tingling drives me nuts!
dawn68509 rebecca19258
Posted
Hi Rebecca I have tingling 24 hours a day for 18 months there's never been a second without from feet to knees and both hands came on within 24 hours can u tell me how long u had it and what your now taking for it to get better thanks dawn
shona53538 tara50448
Posted
wafa48079 rebecca19258
Posted
Hi Rebecca,
I'm 51, premenopause, I have been suffering since February from tingling feet and burning legs. , all tests are negative, so I started HRT (estrogen and progestin) 10 days ago, but my symptoms worsened. I'm desperate . I would like to try the Bio HRT.
Can you tell me a little about your treatment. In France, BHRT is not widely known. . Did you use an progestative cream ?
I'm sorry for my English.
rebecca19258 dawn68509
Posted
rebecca19258 wafa48079
Posted
I take DIM in the morning which helps control Oestrogen dominance and progesterone at night.. So far working well for me.. I have weighed up the risks and feel I need to take these to live a normal life.. Everyone is different and was always against HRT but have known a lot that take BIO and have had brilliant results ..
wafa48079 rebecca19258
Posted
I can not read your answer, please can you try to send it back ?
thank you
andrea05399 dawn68509
Posted
debra16694 rebecca19258
Posted
Hi Rebecca - I am sorry for being so ignorant, but what is DIM? Is it a prescription? I am estrogen dominant & cant take hormones because of my age, so would appreciate any help - thank you!
rebecca19258 debra16694
Posted
sn21848 debra16694
Posted
DIM I believe is the ingredient you can get in foods like broccoli. The ingredient in broccoli helps metabolize estrogen and keep everything hormonally balanced. https://drhoffman.com/article/supplement-of-the-week-dim/
debra16694 sn21848
Posted
Gwenn1120 tara50448
Posted
Hi Tara
I have had waves of scalp tingling for 2 months now, every now and then in extremities and also have some small no specific spots on the white matter but not the demylation MS lesions.
Im 53 and honestly feared MS would be the diagnosis. (And still do worry about it even though Dr snd Radiologist say no)
I am also in full blown menopause but two things happened the precise time it started. I hurt my neck and had a sinus infection.
The mri on my neck showed it was full of arthritis, mild disc bulge on two and several large bone spurs. I am told this couldnt cause the tingling scalp sensation even though it starts at the neck and goes overthe head.
Who knows. Ive had every other test bar testing for viruses so have just started on hrt so hopefully that will help because it's really wearing me down.
tara50448 Gwenn1120
Posted
I really wish you the best with the hormone therapy. It’s so frustrating
michelle92591 Gwenn1120
Posted
tara50448 michelle92591
Posted
Do you have lesions in brain and spine? That’s the criteria for diagnosing MS in US
Gwenn1120 michelle92591
Posted
Hi Michelle
My Dr said even though I have a few bilateral white spots (called foci) they are non specific and are not typical of MS lesions.
About ten years ago I had two bouts of atypical neuralgia so I had somewhat of an emotional meltdown certain it was MS!
I had no lesions in my neck (full of other issues) and a previous scan ruled out any lesions on my spine.
It may be wishful thinking on my part, but when I hurt my neck I had constant headaches and then constant scalp tingling started. Yet Im told the scalp tingling is not referred pain from neck issues.
As I said in a previous thread, I always thought Id be the type to breeze through menopause given my usual common sense nature , but I couldn't be more wrong!
This is hideous! ! The hot flushes I could cope with, it's all the other stuff I never knew existed with menopause! Geez... and that's the other thing I have turned into a serial complainer! !
I've started exercising and drastically modified my diet so hopefully that will help.
Im sincerely glad your chiropractor helped you, hang onto him or her if they're good. (I had a great chiropractor but he moved interstate).
I have only been in hrt for 3 days but I swear my scalp tingling has reduced a lot (again it may be wishful thinking).
I hope you do not have MS and it is a misdiagnosis , I have read stories where that has been the case.
Wishing you all the best.
Gwenn1120 tara50448
Posted
Hi Tara,
Sounds like me. I had six viles taken vitamin panel; liver function, thyroid, full blood count; white blood count; rheumatoid arthritis; allergies ;hormone levels and so on.
I had previously been anaemic, very low vitamin D so I knew those would be ok because I had addressed those through hysterectomy and vitamjn D supplements.
My cholesterol was up a bit and hormones were all indicative of full blown menopause, but that's it.
My husband also says tingling/headaches are from my neck but like you I am told it is not. Im sort of hoping it is from my neck and menopause combined. ALL I know is that I get relief from heat packs on my neck or when my shoulders /neck are massaged.
I also have weirdly a marked improvement on my 3rd day of hrt even though it's suppose to take weeks/months to work.
Maybe menopause has sent me completely loopy!😀
Fingers crossed for you that isdues get resolved.
Nancy2121 tara50448
Posted
Hi Tara. Just had bloodwork done last week. 5 viles I think. It sure is frustrating! My gyn walked in for my yearly and asked how I was. I broke down crying. Felt so weak and ridiculous. "Middle age" has affected me SO adversely! Thought NOT bleeding would be great. Please let us know what you find out. My doctor is one of the best, and promised to get to the bottom of this for me, but I fear that the trial/error is going to kill me. I'd rather be pregnant, give birth, or pretty much anything else than low on hormones!!😳 Always say "it could always be worse," but some days I wonder...
Gwenn1120 Nancy2121
Posted
Hi Nancy
Ive had multiple meltdowns at home. Im sure this neck pain, scalp tingling and MRI results have added to it, but I had become an anxiety riddled mess before tbh.
My new Dr is trying his best to help with various meds and advice which is better than my previous Dr who reluctantly prescribed oestrogen and said "You're just one of those women who don't adjust well to menopause ". I felt like a failure tbh.
You know, the way menopause was described to me was that hot flushes were going to be an issue and that's it. If only! They were the least of my problems.
I thought hitting my 50's would be the golden era,lovely husband. , kids grown and happy , getting to the point of no mortgage and travelling ....but it's been awful!
Im hoping to geta handle on this with help from my Doctor.
Hang in there?, it sounds like you have a good Gynecologist which is a bonus. I find this forum helps because I dont feel so alone in the 'suffering'.
tara50448 Gwenn1120
Posted
I get some neck relief with heat and message also.
Still waiting on bloodwork. I just read that Vitamin B6 toxicity can cause the tingling and so I stopped my multivitamin 3 days ago and maybe it’s just a coincidence but it seems better? My B6 is being tested along with iron, folic acid, hormone levels and thyroid so hopefully I get some answers . Have you had any results from tests?
shona53538 tara50448
Posted
sn21848 michelle92591
Posted
Did you have a bone density test on your neck? That would give you a better idea. They usually only scan to the mid section. I am not sure what they do for the neck but for osteoarthritis they recommend weight bearing exercises. Make sure you are eating at least one green leafy vegetable a day and if you can do 3 a day even better. My therapist told me about one of her patients who did a green smoothie every day and she was able to repair her bones. I have osteopenia which comes before the arthritis. I also drink milk. I wouldn't necessarily go by the pain as a marker to the bones getting better. It can be silent sometimes.
sn21848 Nancy2121
Posted
My gyno has seen me at my worst. Crying, brain function off, everything. I have anxiety and depression on and off in my life but at least my cognitive has never been a problem. I remember sitting in his office in full blown postmenopause babbling about my dysfunctional marriage and how my husband was an alcoholic and how lousy I felt. I looked at me and told me that my husband wasn't going to get better which was pretty much right. The only saving grace about all the postmenopausal pain i've gone through is that now I set boundaries and I don't keep relationships that aren't good for me. P.S. my ex isn't a bad guy just had some pretty horrible things happen to him and he chose alcohol instead of treatment.
Gwenn1120 tara50448
Posted
Hi Tara
Funny you should say that, I get relief with hot packs andmassages from the oh.
My vitamin D levels were great(O had started those before blood test any way), as were my vitamin b BUT I had increased them after my blood results so cut those out as I was taking too many .
Pathology shows I am in full blown menopause .
I have improved generally after commencing tibolone but I still get neck pain and tingling scalp though not as bad.
I also just started on low doses on amitryptiline and gabapentin ,but I think I have to wait six weeks to see if they help, at least with the amitryptiline.
I stress about having MS as 10 years ago I had a bad bout of neuralgia though my Dr thinks it is not MS.
It's hard to tell because I am experiencing so many weird things that could be attributed to menopause. Im a bag of anxiety atm which does not help!
How about you, any results from your bloodwork? Hope you are feeling better.
jane58999 dawn68509
Posted
I was on a estrogen patch for a few months that seemed to help. I stopped taking it though, I got nervous with supplementing With estrogen.
I did feel
Better. I figured I try and deal with it without meds.
It is getting better I have had these symptoms for 2 years.