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Methotrexate

Posted , 10 users are following.

Carolb13
Carolb13

Hi

I have had Osteoarthritis for quite some years now, but have just recently been diagnosed with Psoriatic Arthritis and they have started me on Methotrexate which I have been taking for two weeks now, I would love to hear from anyone that has had relief from it, and how long it took before you started to feel any relief, thank-you in advance

1 like, 40 replies

40 Replies

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  • pat62
    pat62 Carolb13

    Posted

    I have Psoriatic Enthesophathy, and I am lucky enough to be able to avoid medication  for it so far, as i wanted to avoid side effects and interactions with other medication. My rheumatologist wanted to start me on some, but I held back until I had done more research.  from research I found that ginger and tumeric, combined with black pepper to help the absorbsion, are anti-inflammatories, and from experimentation I found that suger was a definite inflammatory for me.    I am not painless,  but it keeps it to a bearable level.  

    It works for me.  I know that we are all different, but thought it worth sharing.   

    • Carolb13
      Carolb13 pat62

      Posted

      Thank-you for your reply Pat, is that very different to just Psoriatic Arthritis?, I always like to try herbal options if I can, and I do swear by ginger for sickness, but touch wood it hasn't made me feel sick though, but I will keep in mind your suggestions though, thank-you
    • sheila65847
      sheila65847 pat62

      Posted

      Hi Pat,

      that's interesting, I've had this nagging feeling for a while that refined sugar is not good for me. I use a lot of fresh ginger whilst cooking. Do you have any advice re dosage amounts? Thank you

  • sheila65847
    sheila65847 Carolb13

    Posted

    Hi Cazab,

    Methotrexate works well for most folks. Please make sure you take folic acid and get your bloods checked regularly. I developed a rare reaction to Mtx and became quite poorly so take care.

    • Carolb13
      Carolb13 sheila65847

      Posted

      Hi Sheila

      I do take a Folic Acid, I have to take one on one evening then six Methatrexate the following evening, thank-you so much for the advice, it's very much appreciated

    • sheila65847
      sheila65847 Carolb13

      Posted

      You're welcome, Carol. I'm glad you found this forum, you will get lots of support here, which helps enormously. Its a funny old illness, i was diagnosed in Nov 2011. Was medically retired from work in 2014. Im still getting to grips with the conditionc Some times are better than others. Please keep in touch, if you have any questions, just ask away, someone always responds. Good luck.
    • Carolb13
      Carolb13 sheila65847

      Posted

      Bless you Sheila, I am so glad I found it too, everyone is so very helpful, it just makes things so much easier knowing there are other people going throught the same and so much worse too, and even if you can't off any advice as in treatments just having a kind words really helps too, I certainly will keep in touch
    • stephen54311
      stephen54311 Carolb13

      Posted

      If you can stand needles try to get onto injections much better
  • pat62
    pat62 Carolb13

    Posted

    Psoriatic Enthesopathy is where the tendons are affected and become inflamed. 

    From trying to find out more about it, I gather that not much is known about it in England.  (My rheumatologist was German and he says more is known about it in Germany)    I could not make out whether my pain was in the bones or the joints, or neither.  And finding out that it was the tendons made sense of it.  The GP was insisting the pain was fibromyalgia because I also have ME,  but I had insisted on a rheumatology appointment.  

    Different people find there bodies react to various things.  Some it seems can't eat tomatoes, but I have no problem with them.  

    Hope you find what works for you.

    • Carolb13
      Carolb13 pat62

      Posted

      Hi Pat

      That sounds very painful, you have my sympathy, I sure hope you manage to get some pain relief for it

    • stephen54311
      stephen54311 pat62

      Posted

      Nice to hear some one else with this problem (well not nice but you know what I mean)if I lift anything remotely heavy my hands,wrists,fingers swell and are quite painful over my tendons
    • sheila65847
      sheila65847 stephen54311

      Posted

      Hi Stephen,

      are you UK? I know my problem is the synovial membrane rather than a bone problem, I've never heard it called what Pat said though my symptoms match what she said. I'm just curious. ...... Thank you

  • KupKake
    KupKake Carolb13

    Posted

    Hiya,

    I was initially put on Methotrexate, it took 3 months to start working but then it did make a difference and I felt a lot better.  Unfortunately I had to stop taking it for a week as I was on antibiotics and when I went back onto Methotrexate it stopped working completely!  So don't forget to take your dose!

    I went onto Enbrel after that and it also worked well, then started to not work so well so I was put back on Methotrexate, probably a year since I last took it and the combination of Methotrexate and Enbrel have kept everything under control for the last 18 months.  The Rheumatologist said that the biologics often work better when taken with Methotrexate..

    I hope it all works well for you! xx

    • Carolb13
      Carolb13 KupKake

      Posted

      Thank-you so much for your reply KupKake, I will keep that in mind, then at least I can mention it to them, that is if they don't, have seen a few people mention Enbrel since I have been on here xx
    • sheila65847
      sheila65847 Carolb13

      Posted

      Hi carol

      just a thought - have you been told to get a pneumonia vaccine? No one told me so I ended up with severe pneumonia in April 2015, I was hospitalised for over a week. The drug combo I was on (Humira and Leflunomide ) stopped working when they were re introduced in July 2015. Apparently my body had formed antibodies! Kupkake refers to a similar experience. Also make sure you get the flu vaccine in the Autumn.

    • Carolb13
      Carolb13 sheila65847

      Posted

      They haven't no, but we do get a the flu jab where I work usually in October, I will definitrely mention that when I have my apptointment with them on the 17th, thank-you for letting me know
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