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Methotrexate( I think that's how to spell it) I have stopped it.

Posted , 9 users are following.

louslatts
louslatts

i have ra and oa meth is not working for me so I stopped it. I feel tried enough without having tablets making it worse some days I can't move its that's bad. Has anyone else stopped taking this drug. Thanks in advance 

0 likes, 19 replies

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  • lesley91928
    lesley91928 louslatts

    Posted

    Why u stop taking methaxtrie how long were u on it for I have been on it a year it too down the inflammation from 97 too 22 for me so I take u don't take anything now you must be in pain are u not!!!!!!!
    • louslatts
      louslatts lesley91928

      Posted

      Hello Lesley I was on them only 2 months and yes the pain has come back but I couldn't cope with feeling down and not having any energy as I don't have a lot any way so they was taking my last bit from me.
  • gemma83759
    gemma83759 louslatts

    Posted

    Hi Yeh I stopped it too, I was on the methotrexate tablets 20 mg a week with folic acid, I was sick constantly so I then injected it, nausea was still as bad so came ooff completely. Now I'm on sulfazalazine and in addition going on leflunomide in the next week or two. In my opinion it's hard to keep taking any medication if u don't see any benefit. I have a problem taking the Ra meds, I've always opted for a herbal alternative for everything, tho with ra it's difficult to get it under control.

    What are you taking instead? Hope ur alternative works for you.

    • louslatts
      louslatts gemma83759

      Posted

      hello Gemma 83759 they talked about sulfazalazine on top off mtx so I think I will go with them ones. I will find out on the 22nd and I will keep you all updated new to all this so a don't know a lot just what I have looked up and been told. Thank you 😄
  • slm222
    slm222 louslatts

    Posted

    I've been on MTX for 2 1/2 months and it's made me feel WORSE than the Leflunomide I was on before it. I'm only on 15mg a week but it makes me nauseous and tired and it brought back pain in areas that the Leflunomide had taken care of. I was only on the MTX because I was supposed to get on a free clinical trial for Enbrel and they insisted I be on MTX for 3 months prior to starting the trial, but unfortunately they ended up closing the trial before I could get on. I was scheduled to get on it next month. sad

    I wrote to my Rheumy on Sunday night and told her I want back on the Leflunomide. At least that stuff didn't make me sick and it was cheaper AND it took care of more pain than the methotrexate. She keeps telling me I need to give it more time, but I think 2 1/2 months I should start to feel at least a little better---not worse! 

    I'm so frustrated by all of it. I am getting depressed.

    • bronwyn97278
      bronwyn97278 slm222

      Posted

      Hello suelmc;  sometimes I think that maybe we should be more assertive with our treatment....I don't have RA, thank goodness, but watched a very close friend suffer, and watched what the side affects of MTX did to her lungs...(have also seen the same in another Young Friend).  If you felt that you were getting satisfactory results from the Leflunomide (and not also having to deal with the side affects/stress/depression as a result of the return of the pain)...then stay with what helps you best???  ....let me know how you get on...Bron
    • louslatts
      louslatts slm222

      Posted

      I have only been on mtx for 2 months and there is no way I am going back on it. Don't think it suits me at all. Hope you have a pain free night 😄
    • slm222
      slm222 louslatts

      Posted

      I hear ya, louslatts! It didn't do anything for me and yet my Rheumy almost insists that I stay on it. I have started my Leflunmide again as of Thursday and that's the one I'm sticking with until we can work something else out. My hair was falling out in globs on the MTX. I think it's poison. At least for my body!
  • janis06023
    janis06023 louslatts

    Posted

    My rheumatologist advised me to keep taking the folic acid for about a month after you stop the methotrexate.  It takes a while to get it out of your system, I stopped it too but I am on Humira and doing well on this with 10 mg. of Leuflonamide.
    • louslatts
      louslatts janis06023

      Posted

      thank you for that as I didn't know that. But it's week 3 without them now and I am feeling a lot better apart from my normal joint pain 😜
  • bronwyn97278
    bronwyn97278 louslatts

    Posted

    Hi Louslatts;  as there are too many side affects for you on MTX, and you felt that ?you were better off on other meds.  I don't agree with stopping medications without consulting your GP/specialist, as if you don't follow through with what they prescribe for you, they can retaliate with a sense of "well she won't listen to us, so give up....".  I suggest you ring/make an appointment ASAP with your GP/or the person who prescribed the MTX and tell them what is happening to you.  Take along the others' advice re medications, and then try; , but please don't cease this type of medication abruptly, as it is something that needs to ?weaned off, as do many drugs.....please don't think I'm being rude/hard to  get on with, but am really concerned, as I do know how stressful coping with a new condition/medications/treatments are....please let us know how you get on with a call/visit to GP....don't wait for next scheduled visit.....Bron
    • louslatts
      louslatts bronwyn97278

      Posted

      I did just stop them as I have tried phoning them before and it took them days to phone me back I have to go back on the 22nd this month so I will update you then thanks for your advice 
  • loulou282
    loulou282 louslatts

    Posted

    hi. i agree i think you should give it more time. I also agree that it may not work as i have been on mx for 6 mns and have has more flare up than ever, on av every 2 weeks but not always in the same joints. i am now beginning to feel the sickness as maybe its just starting to really get into my system. i have felt fine b4 with side effects tho. hope you do ok on it as when it works it is suppose to be really good. x
    • louslatts
      louslatts loulou282

      Posted

      I don't want to give mtx more time I feel ok now apart from the normal joint pain it has got a little bit worse but nothing I can't handle. Find out this week what they are putting me on so fingers crossed it works. Hope mtx works out for you 😄
    • bronwyn97278
      bronwyn97278 louslatts

      Posted

      Thanks louslatts;  I can see that you have given this a lot of thought, and only you know your pain and body.  Please let us know what comes out of your visit, as am really interested in what the rhuemy suggests....I am not a big fan of Methotrexate, but have read re others have tried Lueflunomide (? this spelling, as not too sure re this drug); it may be your answer, along with some prednisone??  I do hate to see people in your type of pain, as I know is can be very excruitiating....best wishes, and hoping that you get some good results next visit.   Bron
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